60 acast.com Too Human For Words https://www.toohumanforwords.com/ en Sasha Kerdel chronic illness, critical illness,health, wellness,human,shame,advocacy,inclusion,human rights,humanity,community,support,disability,invisible illness,illness Sasha Kerdel The Fight For Quality of Life Are you a human? There's a good chance you are if you are reading this! Too Human For Words is a podcast that brainstorms with guests celebrating our exquisite uniqueness and explores our similarities to look at how we can build better systems and communities to support each and everybody's quality of life. I have come to this place from a perspective of chronic illness for inclusion and advocacy, however this is a human podcast not a an illness podcast. Illness issues are just human issues magnified. When we make the world better for those who suffer, we make it better for every one. Join me in the fight for quality of life.

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Are you a human? There's a good chance you are if you are reading this! Too Human For Words is a podcast that brainstorms with guests celebrating our exquisite uniqueness and explores our similarities to look at how we can build better systems and communities to support each and everybody's quality of life. I have come to this place from a perspective of chronic illness for inclusion and advocacy, however this is a human podcast not a an illness podcast. Illness issues are just human issues magnified. When we make the world better for those who suffer, we make it better for every one. Join me in the fight for quality of life.

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> false Sasha Kerdel toohumanpod@gmail.com 601112fb81bccb27ad119bfb too-human-for-words serial https://assets.pippa.io/shows/601112fb81bccb27ad119bfb/1634123613592-649d256248f61450c9f898a0afe42528.jpeg https://www.toohumanforwords.com/ Too Human For Words Ruwani De Silva Ruwani De Silva Tue, 04 Jan 2022 22:00:02 GMT 1:03:51 61d42a7f761b5d0012988b1f false https://shows.acast.com/too-human-for-words/episodes/ruwani-de-silva 61d42a7f761b5d0012988b1f 601112fb81bccb27ad119bfb ruwani-de-silva The connection between mental health and the weather full 1 6 We have made it to the final episode of season one!


Too Human for Words is the podcast where we discuss the similarities we experience in our health challenges that we have in common and how we can use those similarities as powerful information to build better systems, utilize our resources better and build stronger communities beyond the labels.


Today we chat to Ruwani De Silva. Ruwani experienced chronic anxiety while studying weather science. We discuss how Ruwani used the concept of mapping weather patterns to track her emotions and the power of finding ways to understand and express invisible illness. This story of lived experience really highlights that value that comes out of some of our hardest times. We reflect on the power of just being present for each other without expectation or judgement. We all have a brain, everyone is touched in some way by mental health. There is nothing to be ashamed of by struggling with mental health and by educating ourselves we can all build strength by being open in our vulnerability.

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> We have made it to the final episode of season one!


Too Human for Words is the podcast where we discuss the similarities we experience in our health challenges that we have in common and how we can use those similarities as powerful information to build better systems, utilize our resources better and build stronger communities beyond the labels.


Today we chat to Ruwani De Silva. Ruwani experienced chronic anxiety while studying weather science. We discuss how Ruwani used the concept of mapping weather patterns to track her emotions and the power of finding ways to understand and express invisible illness. This story of lived experience really highlights that value that comes out of some of our hardest times. We reflect on the power of just being present for each other without expectation or judgement. We all have a brain, everyone is touched in some way by mental health. There is nothing to be ashamed of by struggling with mental health and by educating ourselves we can all build strength by being open in our vulnerability.

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Professor Michelle Leech Professor Michelle Leech Fri, 31 Dec 2021 05:50:51 GMT 1:22:16 61ce9a3b40b3c90013943838 false https://shows.acast.com/too-human-for-words/episodes/professor-michelle-leech 61ce9a3b40b3c90013943838 601112fb81bccb27ad119bfb professor-michelle-leech Medical Education full 1 5 Happy New Year! Today we sneak into to 2021 an interview with Rheumatologist, Head of the Medical Course at Monash University and Deputy Dean at the Faculty of Medicine, Nursing and Health Sciences, Professor Michelle Leech of Monash University in Melbourne.

We cover a whole lot from moving forwards with digitally empowered patients and the value of the patient voice, social media and isolation,

the idea of giving real hope and removing fear in health care, how medical validation impacts quality of life, and the emotional impacts of the phrase "the burden of disease" to individuals and the community.

We also hear about Prof. M. Leech's experience with breast cancer and the perspective she gained returning to work as a medical professional after being a patient with a critical illness.


The books mentioned were:

-The Patient Will See you Now by Eric Topol 

-The Way We Die Now by Charles Willeford

-Illness as Metaphors, Aids and it's Metaphors by Susan Sontag


And lastly, we learn to ask ourselves "How do we like to be supported".


Have a wonderful new year! See you in 2022.





Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Happy New Year! Today we sneak into to 2021 an interview with Rheumatologist, Head of the Medical Course at Monash University and Deputy Dean at the Faculty of Medicine, Nursing and Health Sciences, Professor Michelle Leech of Monash University in Melbourne.

We cover a whole lot from moving forwards with digitally empowered patients and the value of the patient voice, social media and isolation,

the idea of giving real hope and removing fear in health care, how medical validation impacts quality of life, and the emotional impacts of the phrase "the burden of disease" to individuals and the community.

We also hear about Prof. M. Leech's experience with breast cancer and the perspective she gained returning to work as a medical professional after being a patient with a critical illness.


The books mentioned were:

-The Patient Will See you Now by Eric Topol 

-The Way We Die Now by Charles Willeford

-Illness as Metaphors, Aids and it's Metaphors by Susan Sontag


And lastly, we learn to ask ourselves "How do we like to be supported".


Have a wonderful new year! See you in 2022.





Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Salisa Doust Salisa Doust Wed, 22 Dec 2021 10:19:22 GMT 49:09 61c2fba6a5110f0014a5f769 true https://shows.acast.com/too-human-for-words/episodes/salisa-doust 61c2fba6a5110f0014a5f769 601112fb81bccb27ad119bfb salisa-doust Breast Reduction and Body Image full 1 4 Salisa Doust joins us today to chat about the reality of a breast reduction. It is a perfect example of how from the outside we don't see all of the physical and emotional chronic issues that contributed to needing a breast reduction. We dive deeper into the stigma of breast implants versus reductions and how it feels for it to be validated as medically necessary.


Too Human for Words is the podcast where we talk to medical and health professionals, and people with lived experience. Together we go beyond our labels and discuss what makes us similar to brainstorm ways of creating stronger support systems, communities, resources, and how to improve the system.

Chronic illness, disability, invisible illness, chronic disease, critical illness and other sustained health issues that last more than three months are just human issues magnified. This is not just an illness podcast, it's a human podcast. Through these conversations we fight for inclusion and quality of life for everyone.



Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Salisa Doust joins us today to chat about the reality of a breast reduction. It is a perfect example of how from the outside we don't see all of the physical and emotional chronic issues that contributed to needing a breast reduction. We dive deeper into the stigma of breast implants versus reductions and how it feels for it to be validated as medically necessary.


Too Human for Words is the podcast where we talk to medical and health professionals, and people with lived experience. Together we go beyond our labels and discuss what makes us similar to brainstorm ways of creating stronger support systems, communities, resources, and how to improve the system.

Chronic illness, disability, invisible illness, chronic disease, critical illness and other sustained health issues that last more than three months are just human issues magnified. This is not just an illness podcast, it's a human podcast. Through these conversations we fight for inclusion and quality of life for everyone.



Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Fur Wale Fur Wale Wed, 15 Dec 2021 00:16:29 GMT 45:51 61b933deed33180012bc1cf5 false https://shows.acast.com/too-human-for-words/episodes/fur-wale 61b933deed33180012bc1cf5 601112fb81bccb27ad119bfb fur-wale Chronic pain, Validation and Mindset full 1 3 Fur Wale is a public speaker, a writer, mentor, public speaking coach and so, so much more. She is also a person with a mind and body with things going on. In this episode Fur tells us about her experience with trauma, chronic pain, and the journey of being validated by the medical system.


Too Human for Words is the podcast where we talk to medical and health professionals as well as people with lived experience about what we have in common and how that can provide powerful information to fight for better quality of life and inclusion for everyone.

If you are a spoonie, experience disability, chronic illness, sustained injury, critical illness, mental illness, you work in the medical or health field, your a supporter, or your a human with a mind and a body, this podcast is for you!

Our voices are important and our community is mighty!


Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Fur Wale is a public speaker, a writer, mentor, public speaking coach and so, so much more. She is also a person with a mind and body with things going on. In this episode Fur tells us about her experience with trauma, chronic pain, and the journey of being validated by the medical system.


Too Human for Words is the podcast where we talk to medical and health professionals as well as people with lived experience about what we have in common and how that can provide powerful information to fight for better quality of life and inclusion for everyone.

If you are a spoonie, experience disability, chronic illness, sustained injury, critical illness, mental illness, you work in the medical or health field, your a supporter, or your a human with a mind and a body, this podcast is for you!

Our voices are important and our community is mighty!


Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Dorothy Kamaker Dorothy Kamaker Tue, 07 Dec 2021 22:00:00 GMT 1:05:42 61af5b73ef7cad0012058625 false https://shows.acast.com/too-human-for-words/episodes/dorothy-kamaker 61af5b73ef7cad0012058625 601112fb81bccb27ad119bfb dorothy-kamaker Independent Patient Advocate full 1 2 In this episode of Too Human for Words we talk to Dorothy Kamaker. Dorothy is an Independent Patient Advocate.

Dorothy contains a wealth of knowledge and life experience that provided the perfect foundation to advocate for patients fully understanding their needs and the language of the system. We discuss how to look for the patient advocates in your life and build that support system before you need it, how to be your own advocate,

how to find your own Independent Patient Advocate and much more, including allowing yourself a healthcare holiday!

Enjoy and I look forward to sharing all of Dorothy's amazing insights and advice with you.



Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> In this episode of Too Human for Words we talk to Dorothy Kamaker. Dorothy is an Independent Patient Advocate.

Dorothy contains a wealth of knowledge and life experience that provided the perfect foundation to advocate for patients fully understanding their needs and the language of the system. We discuss how to look for the patient advocates in your life and build that support system before you need it, how to be your own advocate,

how to find your own Independent Patient Advocate and much more, including allowing yourself a healthcare holiday!

Enjoy and I look forward to sharing all of Dorothy's amazing insights and advice with you.



Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Andrew Taylor Andrew Taylor Tue, 30 Nov 2021 22:00:35 GMT 1:09:48 61a38ebbefe03000140ea8fe true https://shows.acast.com/too-human-for-words/episodes/andrew-taylor 61a38ebbefe03000140ea8fe 601112fb81bccb27ad119bfb andrew-taylor Food Addiction, Vulnerability and Masculinity. full 1 1 Welcome to the first real life episode Too Human For Words! I’m so excited that you’re here, we have so much to talk about. In this podcast we talk about the things that we have in common as humans that we don’t usually discuss but if we did what we could do with that information. As a community of people with chronic illness, disability, invisible illness, critical illness or to be more specific anyone that suffers from something that impedes life or quality of life for three months or longer we are all valid in this discussion. When we take away labels our community is everywhere and this information can help us lift quality of life for everyone.

In this episode I was lucky enough to talk to Andrew Taylor. 

Andrew Taylor found accidental fame by mistakenly posting his video journal publicly on YouTube, when he ate potatoes for a year to manage his food addiction. 

We chat about his experience of accidentally going viral, telling friends about his plan, how jokes about appearance affect men just as much as women and so much more. Andrew is a wealth of knowledge and so generous about sharing his experience to help others. We look at how physical and mental health intertwine with masculinity and discuss the value of living more simply. 

 Enjoy today’s episode! I can’t wait to talk to you next week!



Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Welcome to the first real life episode Too Human For Words! I’m so excited that you’re here, we have so much to talk about. In this podcast we talk about the things that we have in common as humans that we don’t usually discuss but if we did what we could do with that information. As a community of people with chronic illness, disability, invisible illness, critical illness or to be more specific anyone that suffers from something that impedes life or quality of life for three months or longer we are all valid in this discussion. When we take away labels our community is everywhere and this information can help us lift quality of life for everyone.

In this episode I was lucky enough to talk to Andrew Taylor. 

Andrew Taylor found accidental fame by mistakenly posting his video journal publicly on YouTube, when he ate potatoes for a year to manage his food addiction. 

We chat about his experience of accidentally going viral, telling friends about his plan, how jokes about appearance affect men just as much as women and so much more. Andrew is a wealth of knowledge and so generous about sharing his experience to help others. We look at how physical and mental health intertwine with masculinity and discuss the value of living more simply. 

 Enjoy today’s episode! I can’t wait to talk to you next week!



Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Season 1-Trailer Season 1-Trailer Tue, 30 Nov 2021 11:16:16 GMT 2:29 61a60b5420e9ba0013eecdc1 false https://shows.acast.com/too-human-for-words/episodes/season-1-trailer 61a60b5420e9ba0013eecdc1 601112fb81bccb27ad119bfb season-1-trailer The Teaser full 1 Welcome to Too Human For Words. Here is a little, teaser, taster, trailer episode to dip your toe into what is to come! See you for Season 1!

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Welcome to Too Human For Words. Here is a little, teaser, taster, trailer episode to dip your toe into what is to come! See you for Season 1!

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Nice to meet you! Nice to meet you! Wed, 13 Oct 2021 07:47:36 GMT 4:14 61668f1813fcc200130cd154 false https://shows.acast.com/too-human-for-words/episodes/nice-to-meet-you 61668f1813fcc200130cd154 601112fb81bccb27ad119bfb nice-to-meet-you Introduction Episode... Here we go! trailer 1 Hi, nice to meet you! I'm Sasha and I'm a human. I'm a human who has struggled with that fact and the reality of that for a really long time. I have a couple of chronic illness, and I've supported my family through their health challenges such as when my Mum had Breast Cancer. For so long I had been struggling to give my body the attention it needed feeling that it wasn't important enough or bad enough. I was shocked to see that as I was supporting my Mum we had SO much in common! A lot of our symptoms and struggles were the same even though the biology of our illnesses were different. It really blew my mind and made me realize that we should all be considered important. Whether your struggle is life threatening or quality of life threatening they are both just as IMPORTANT. What would happen if rather than having chronic illness and critical illness on opposing side of our empathy we realized that both are valid? We can build more effective systems, utilize our resources better and build stronger communities that are not diagnosis or experience based. In this podcast I brainstorm with guests on how we can recognizing our similarities to build a more proactive, inclusive world. I will be speaking to medical professionals along with people who have lived experience delving into these very human issues. This is not just an illness podcast, it's a human podcast. No one is Too Human For Words.

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]> Hi, nice to meet you! I'm Sasha and I'm a human. I'm a human who has struggled with that fact and the reality of that for a really long time. I have a couple of chronic illness, and I've supported my family through their health challenges such as when my Mum had Breast Cancer. For so long I had been struggling to give my body the attention it needed feeling that it wasn't important enough or bad enough. I was shocked to see that as I was supporting my Mum we had SO much in common! A lot of our symptoms and struggles were the same even though the biology of our illnesses were different. It really blew my mind and made me realize that we should all be considered important. Whether your struggle is life threatening or quality of life threatening they are both just as IMPORTANT. What would happen if rather than having chronic illness and critical illness on opposing side of our empathy we realized that both are valid? We can build more effective systems, utilize our resources better and build stronger communities that are not diagnosis or experience based. In this podcast I brainstorm with guests on how we can recognizing our similarities to build a more proactive, inclusive world. I will be speaking to medical professionals along with people who have lived experience delving into these very human issues. This is not just an illness podcast, it's a human podcast. No one is Too Human For Words.

Support this show http://supporter.acast.com/too-human-for-words.

Hosted on Acast. See acast.com/privacy for more information.

]]>