Young Tongues

Immunotherapy, Uncertainty & Hope: A Conversation with Professor Kevin Harrington

Thu, 09 Apr 2026 23:10:00 GMT

In this episode, we’re joined by Professor Kevin Harrington, one of the world’s leading experts in head and neck cancer, to break down what’s really changing in tongue cancer treatment, and what it means for patients today. We talk about the rise in younger patients without clear risk factors, why we still don’t fully understand why this is happening, and what that uncertainty means for the future. We also dive into immunotherapy: what it actually is, how it works, and why it’s starting to change outcomes in ways that simply weren’t possible before.

💬 Need Support?

If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here:

🌍 Website

🤝 Join support groups & mailing list: via the website

💌 Contact us: podcast@youngtonguesglobal.com

📢 Get Involved

We’re building this with our community — and you can be part of it:

✨ Volunteer & share your experience

🎙️ Apply to appear on the podcast

🧠 Take part in research opportunities

💛 Support Our Work

We’re a small charity with a big mission — and we rely on community support to keep going.

👉 Find out more how to make a donation or fundraise for us here

📲 Follow & Connect

Instagram | Facebook | TikTok | Mailing List

Hosted on Acast. See acast.com/privacy for more information.

New Season, New Co-Host, Same Chaos

Thu, 02 Apr 2026 23:02:00 GMT

Season 3 is officially here and we’re coming back bigger, louder, and with a brand new co-host.

In this episode, we welcome Stef as our third co-host, reflect on how Young Tongues began, and share what’s coming this season — from honest conversations and expert guests to your stories. We also cover the growth of our global community, why fundraising matters, and exciting updates across research, policy and future plans, including building a Patient Hub to make information clearer and more accessible. We also explore what it means to live beyond diagnosis — the reality, the humour, and everything in between.

💬 Need Support?

If you’ve been diagnosed with tongue cancer (or are supporting someone who has), you can find help here:

🌍 Website

🤝 Join support groups & mailing list: via the website

💌 Contact us: podcast@youngtonguesglobal.com

📢 Get Involved

We’re building this with our community — and you can be part of it:

✨ Volunteer & share your experience

🎙️ Apply to appear on the podcast

🧠 Take part in research opportunities

💛 Support Our Work

We’re a small charity with a big mission — and we rely on community support to keep going.

👉 Find out more how to make a donation or fundraise for us here

📲 Follow & Connect

Instagram | Facebook | TikTok | Mailing List

Hosted on Acast. See acast.com/privacy for more information.

That’s a Wrap!

Thu, 14 Aug 2025 23:00:00 GMT

In the final episode of Season 2 of the Young Tongues Podcast, hosts Barbara and Jamie revisit the highlights of the past year. They reflect on the podcast’s accomplishments, sharing their favorite moments, standout guests and the most impactful interviews. The conversation turns personal as they explore childhood memories and cultural roots—Barbara’s in Switzerland and Jamie’s in San Diego. They also take a moment to thank their audience and acknowledge key contributors, including a special segment recognising individuals with honorary awards. The season wraps up with an open invitation for listener suggestions as they look ahead to Season 3.

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Amelia's Story

Fri, 01 Aug 2025 13:31:54 GMT

In this episode of the Young Tongues Podcast, host Barbara sits down with Amelia, a fellow tongue cancer patient and mother of three, to share her powerful and deeply personal journey. Amelia's story begins in May 2024 with what seemed like a minor ulcer on her tongue—an issue initially dismissed by her dentist. Trusting her instincts, she sought a second opinion from her GP, leading to a biopsy and a life-changing diagnosis of tongue cancer.

Amelia walks us through the whirlwind that followed: a partial glossectomy, neck dissection, and a radial forearm free flap reconstruction. She opens up about the difficult road to recovery, including the unexpected challenge of vocal cord palsy and the emotional weight of radiotherapy.

Despite ongoing complications and the need for additional surgery, Amelia remains resilient. She speaks candidly about the strength she draws from her support system and her unwavering determination to live life to the fullest. The episode closes as she looks ahead to an upcoming procedure, facing the future with courage and hope.

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Expert Guest: Professor Camilla Dawson

Fri, 11 Jul 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, host Barbara is joined by Professor Camilla Dawson, a speech and language consultant. They explore Camilla’s professional background, her journey into speech therapy, and her deep commitment to supporting cancer patients. The discussion covers best practices for speech and language support before and after treatments such as surgery and radiotherapy. Key topics include the importance of meeting the care team prior to surgery, managing speech and swallowing difficulties and the effects of radiation on the muscles of the tongue and throat. Barbara and Camilla also address the emotional and psychological aspects of recovery, touching on issues such as intimacy after treatment and the concept of liminality. They highlight the value of personalised care plans and the ongoing need for innovation and research in the field. The episode concludes with an insightful look at tracheostomies, including how patients can prepare for them both mentally and physically.

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Amy's Story

Fri, 04 Jul 2025 00:00:00 GMT

In this powerful episode of the Young Tongues Podcast, Barbara sits down with Amy, a fellow tongue cancer survivor, as she recounts her deeply personal journey from diagnosis to recovery. Amy opens up about life before cancer: her career, family, and passions - and the moment an unexpected ulcer turned into a stage three diagnosis. She walks us through the physical and emotional trials of surgery and radiation and the essential role of community and workplace support in her healing. Amy also shares how she’s navigating her return to work and adapting to new health realities. This episode is a candid, hopeful, and inspiring look at resilience in the face of life-altering illness.

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Elfie's Story

Fri, 27 Jun 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara speaks with Elfie, a fellow tongue cancer survivor whose remarkable story is one of resilience and reinvention.

Elfie opens up about her life-changing journey—from surviving a traumatic accident in her twenties that led to the amputation of her left leg, to facing a tongue cancer diagnosis years later. She shares the emotional and physical toll of treatment, including the loss of taste and speech difficulties, and how she found strength through it all.

Despite multiple surgeries and setbacks, Elfie’s defiant spirit shines through. Post-recovery, she embraced challenges like rock climbing and axe throwing, redefining what’s possible after cancer. She also discusses her recent contribution to the book Unleashing the Courageous Feminine, a therapeutic milestone and a celebration of her voice. The episode concludes with a heartfelt conversation about the power of support groups, raising awareness, and holding onto hope for life after cancer.

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Expert Guest: Krishna Suchak

Fri, 20 Jun 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara interviews Krishna Suchak, a consultant pathologist. Krishna explains her work, describing what a pathologist does, including analyzing tissue and fluid samples to diagnose cancer. She details the workflow from biopsy to diagnosis, the interpretation process, and how pathologists work with multidisciplinary teams. Krishna also discusses the significance of clear margins in pathology reports. Listener questions are addressed on topics such as genetic testing, the risk of biopsies spreading cancer, and the method of interpreting unusual looking cells in lymph nodes. The episode concludes with a focus on the future of cancer diagnosis and the role of primary care education in improving early detection.

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Lynsi's Story

Fri, 13 Jun 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara talks with Lynsi from Bedford, UK, about her journey with head and neck cancer. Diagnosed at 31, Lynsi shares her experience through multiple surgeries—including flap failures—and chemo-radiation after a recurrence. She discusses the challenges of moving between NHS trusts, the importance of self-advocacy, and how treatment affected her relationship with food and body image. Lynsi also opens up about the emotional impact of potential fertility loss and her hopes for the future.

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Susan's Story

Fri, 06 Jun 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara speaks with Susan, one of the founding members of the support group for young people with tongue cancer. Susan recounts her journey, which began with a small, painless sore on her tongue and led to a series of misdiagnoses over nine months. Eventually diagnosed with stage four tongue cancer, she underwent intensive treatment—including a hemiglossectomy, neck dissection, chemotherapy, and radiation—all during the height of the Covid-19 pandemic. Susan opens up about the profound emotional and physical challenges she faced, from severe weight loss and "cancer anorexia" to the psychological toll of the illness. She highlights the critical role of therapy, self-advocacy, and the support she found within the Young Tongues community. Now nearly four years cancer-free, Susan reflects on how the experience reshaped her outlook on life and emotional well-being, and shares her ongoing dedication to supporting others in her role as a trustee of Young Tongues.

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Resilience and Reflection: Barbara & Jamie Reconnect

Fri, 30 May 2025 00:00:00 GMT

In this heartfelt episode of the Young Tongues Podcast, co-hosts Barbara and Jamie reunite to reflect on both personal and professional milestones. Jamie marks five years since her cancer diagnosis, while Barbara candidly shares her ongoing journey with chronic fatigue syndrome and mental health challenges. The conversation also celebrates key achievements, including Barbara’s recent appearances at major medical conferences and the launch of Unmuted, Young Tongues’ inaugural Annual Impact event. Together, they spotlight persistent issues facing tongue cancer patients - particularly the need for better biopsy pain management - and outline upcoming efforts to gather patient data to drive systemic change. The episode closes with a health update on former guest and friend, Molly, as she navigates increasingly limited treatment options. Barbara and Jamie also announce a short summer break and extend an invitation to potential sponsors looking to support the podcast’s mission.

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Molly's Story

Fri, 23 May 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, host Barbara sits down with her friend and fellow Young Tongues original, Molly—an adventurous veterinarian from Kansas. Molly shares her deeply personal journey with tongue cancer, from her initial diagnosis in 2020 to her current experience living with chronic cancer. She opens up about her treatment regimen, emotional challenges, and the crucial role of self-advocacy and social support. Molly highlights the importance of empathy and understanding from loved ones and healthcare providers alike. She also reflects on the power of living in the moment and embracing the time she has. Through her candid and courageous story, Molly offers insight, strength, and encouragement to others navigating life with chronic cancer.

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Rachael's Story

Fri, 16 May 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara sits down with Rachel Corby, a fellow tongue cancer survivor, to share her powerful story of diagnosis, treatment, and healing. Rachel opens up about receiving her diagnosis shortly after giving birth. She highlights the challenges of undergoing surgery and radiation while caring for two young children. She candidly discusses the physical and emotional toll of treatment, including the impact on her ability to eat and speak, and how she adapted to those changes. Rachel also reflects on the vital support she received from her family and the sense of connection and strength she found through the Young Tongues community. Throughout the conversation, she emphasizes the importance of self-advocacy, shares the lessons cancer has taught her, and describes how her outlook on life has evolved.

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Ben's Story

Fri, 09 May 2025 13:42:49 GMT

In this episode of the Young Tongues Podcast, host Barbara interviews Ben, one of the original members of the peer support group. Ben shares his journey from initial diagnosis of tongue cancer to his extensive treatment and the long-term side effects he has endured. He discusses the moment he realized something was wrong, the process of his diagnosis, and the multitude of treatments he underwent, including the removal of 80% of his tongue and subsequent reconstruction. Ben elaborates on the challenges of radiation, describing the physical and emotional toll it took. He also explores the lasting impact on his speech and how he manages social interactions when people struggle to understand him. Beyond speech, the podcast delves into Ben's challenges with eating and maintaining oral health, especially dealing with painful high-fluoride toothpaste post-radiation. The discussion also covers managing radiation-induced fibrosis in his neck, the importance of ongoing physiotherapy, and pain management strategies. Finally, the episode highlights Ben's active involvement in creative arts and community support, exemplifying his resilience and generous spirit in helping fellow cancer survivors.

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Jarrod's Story

Fri, 02 May 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara speaks with Jarrod from Melbourne, Australia. Jarrod shares his personal story of being diagnosed with tongue cancer at age 35, the challenges he faced during diagnosis, treatment, and recovery, and how a strong medical background and support from family helped him persevere. He underwent extensive surgery, radiation, and chemotherapy, experiencing severe side effects but ultimately emerged stronger, focusing on family and health. Jared now aims to support others by sharing his journey and working with organizations like Head and Neck Cancer Australia. His remarkable recovery and resilience serve as an inspiration for others.

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Janice's Story

Fri, 25 Apr 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, host Barbara interviews Janice Koh, a well-known actress and tongue cancer survivor. Janice shares her personal journey, from her diagnosis in July 2022 and the impact it had on her life and career, to her treatment and recovery process. She highlights the emotional and physical challenges she faced, including multiple surgeries and chemo-radiation, and speaks about the importance of a robust support system and maintaining a sense of agency. Janice also discusses her return to the stage, the need for new skills, and the psychological adjustments required. She reflects on her identity post-diagnosis and shares her hopes for the future, emphasizing the importance of living in the present and embracing life's uncertainties.

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Joe's Story

Fri, 18 Apr 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara sits down with Joe Butler, who shares his inspiring journey 13 years after being diagnosed with tongue cancer. Diagnosed at the age of 27 during a routine dental checkup, Joe discusses the shock of his diagnosis, the rigorous treatments of surgery, radiotherapy, and chemotherapy, and the emotional and physical challenges he faced. Now a father of four and an ambassador for the Mouth Cancer Foundation, Joe reflects on his recovery, the importance of healthcare professional awareness, and his hopes for increased cancer detection and support for future patients. He also touches on the long-term side effects he manages and the vital role his personal support system played in his recovery.

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Kelly & Tom's Story

Thu, 10 Apr 2025 23:01:00 GMT

In this episode Barbara interviews Kelly and her fiancé Tom about their experience with Kelly's tongue cancer diagnosis and treatment. Kelly, who is based in Pittsburgh and works as an administrative professional, shares her journey through two bouts of tongue cancer, highlighting the surgeries, treatments, and their impact on her life. Tom provides a caretaker's perspective, detailing the challenges and his role in supporting Kelly. The conversation explores the emotional and logistical hurdles faced by both as they navigate through medical treatments, including chemo and radiation, and the importance of having a strong support system. The couple discusses overcoming obstacles, such as dietary changes and communication difficulties, emphasizing their strengthened relationship and resilience. The episode offers valuable insights into the realities of battling tongue cancer and the intricate dynamics between patients and their loved ones.

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Mus's Story Part 2

Fri, 04 Apr 2025 00:00:00 GMT

In this episode of the Young Tongues Podcast, Barbara welcomes back fellow Young Tongue Mus. Mus shares an update on his cancer journey, detailing the progression of his symptoms, diagnosis, and the treatments he's undergoing, including immunotherapy and participation in a clinical trial. Despite setbacks and complications, Mus remains determined to maintain a normal life, including celebrating his big birthday with a grand party. Barbara and Mus also discuss the importance of community support, self-advocacy in medical settings, and the shifting dynamics with friends and family in light of a chronic cancer diagnosis. The episode highlights the significance of advancements in cancer treatment and the collective power of patient communities.

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Lauren's story

Fri, 21 Feb 2025 00:00:00 GMT

In this episode of the Young Tongues podcast, host Barbara interviews Lauren, a member of their community. Lauren, a 39-year-old mother of three from Virginia, shares her journey with tongue cancer. Diagnosed in late 2021 after initially thinking she had an ear infection, Lauren details her painful experiences, multiple surgeries, and the severe challenges posed by radiation and chemotherapy. Despite these hardships, she talks about finding moments of joy and support through community and family. Lauren also highlights the emotional and ongoing physical impacts of her treatment, including dry mouth and loss of taste. The conversation delves deep into the personal and emotional toll of cancer, while offering insights and hope to others facing similar struggles.

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Pete's Story

Fri, 14 Feb 2025 00:00:00 GMT

In this episode of the Young Tongues podcast, Barbara sits down with Pete Jackson as he shares his journey with tongue cancer. Pete provides an intimate account of his life before and after diagnosis, detailing the early symptoms, the diagnostic process, and the challenges of treatment. Despite the fears and uncertainties, his resilience, positive mindset, and strong support network played a vital role in his recovery. He emphasises the power of peer support, highlighting how the Young Tongues community and other social connections were instrumental in navigating both the emotional and logistical aspects of treatment. Pete concludes with a heartfelt message of gratitude for the unwavering support of his community and the NHS.

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The Radiotherapy Decision

Fri, 07 Feb 2025 20:26:02 GMT

In this episode of the Young Tongues podcast, Barbara and Jamie catch up on life events and reflect on recent activities, including World Cancer Day. A significant portion of the episode is dedicated to discussing the difficult decisions around choosing to undergo radiation therapy for tongue cancer, drawing from both Barbara's and Jamie's personal experiences. The conversation highlights the importance of understanding individual risk factors, trusting medical professionals, and the long-term impacts of treatment. They stress the significance of patient empowerment, informed decision-making, and the importance of a supportive community.

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Expert Guest: Dr. Alexandra Kejner

Fri, 31 Jan 2025 05:00:00 GMT

In this episode of the Young Tongues podcast, host Barbara welcomes Dr. Alexandra Kejner, a head and neck surgeon from South Carolina. Dr. Kejner shares her personal journey and professional background, highlighting her family's origins and her path to becoming a surgeon. The discussion dives into the intricacies of head and neck surgeries, the collaborative nature of surgical teams, and advancements in reconstructive techniques. The conversation also covers scar management, cosmetic concerns post-surgery, and the importance of holistic post-operative care. Dr. Kejnershares insights on maintaining a balance between professional demands and personal life, emphasizing the significance of peer support among female surgeons. The episode ends with a vision for future collaborations between healthcare professionals and patient organizations to improve outcomes for young tongue cancer patients.

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Kelly's Story

Fri, 24 Jan 2025 00:04:00 GMT

In this episode of The Young Tongues Podcast, Barbara interviews Kelly, about her experience with tongue cancer. Kelly details her initial symptoms, misdiagnoses, and the prolonged delays before receiving an accurate diagnosis and treatment. Throughout the conversation, Kelly highlights the lack of communication and inconsistent standards of care she faced. Despite these challenges, she shares how her eventual treatment team provided the support she needed. Kelly also discusses her mission to raise awareness about these issues by sharing her story through various media platforms. The episode concludes with a call for uniform standards in cancer treatment and support across the UK.

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Expert Guest: Dr Elizabeth Marsh

Fri, 17 Jan 2025 16:44:32 GMT

In this episode of the Young Tongues Podcast, Barbara Fountain speaks with Dr Elizabeth Marsh, an Associate Professor of Molecular and Cellular Biology. Dr Marsh specialises in researching human papillomavirus (HPV) and its role in causing head and neck cancers. The conversation covers a range of topics, including Dr Marsh's professional background, the nature of HPV, its transmission, and the differences between HPV-related cancers of the cervix and those of the head and neck. The discussion also explores the effects of the HPV vaccine.

Questions from the audience address subjects such as the specifics of HPV strains, the accuracy of testing, vaccine effectiveness, and the potential influence of hormones on tumour growth. The episode highlights the significance of continued research and the encouraging prospects for advancements in HPV-related cancer treatments.

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Expert Guest: Dr Roganie Govender

Fri, 10 Jan 2025 01:26:09 GMT

In this episode of the Young Tongues podcast, Barbara welcomes speech pathologist and audiologist Dr Roganie Govender. The conversation delves into Dr Roganie Govender professional journey and contributions to speech and language therapy, especially for head and neck cancer patients. The discussion covers the importance of person-centered care, the role of speech and language therapy in recovery, and the ongoing research aimed at improving patient outcomes. They address listener questions about rehabilitation timelines, the benefits of prehabilitation, and practical exercises to improve speech post-treatment, emphasizing patience and the personalized nature of therapy.

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Happy New Year

Fri, 03 Jan 2025 12:14:08 GMT

In this episode of the Young Tongues podcast, hosts Barbara and Jamie mark the show's one-year anniversary. They share their experiences navigating the Christmas season and strategies for coping with post-holiday fatigue. Reflecting on the challenges of living with and recovering from tongue cancer, Barbara also reveals the Young Tongues' plans for the year ahead, including new virtual and in-person meetups, volunteer recruitment, and the launch of a patient resource website.

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Maria's Story

Fri, 20 Dec 2024 10:58:45 GMT

In this episode of the Young Tongues podcast, Barbara talks to Maria Scott, a 47-year-old tongue cancer survivor. Maria shares her journey from being diagnosed with pre-cancerous cells in 2014 to going through stage 4 squamous cell carcinoma of the tongue. She discusses the rigorous treatments she underwent, including a hemiglossectomy, neck dissection, radiation, and chemotherapy. Maria also details the long-term effects of her treatment, such as radiation fibrosis, which severely limits her mobility and quality of life. Despite the challenges, Maria highlights the importance of advocating for oneself and finding joy in life through the support of her family, partner, and dogs. She expresses hope for new treatments and trials that may alleviate the symptoms of radiation fibrosis and improve the lives of cancer survivors.

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Getting Ready for Christmas

Fri, 13 Dec 2024 05:00:26 GMT

In this episode of the Young Tongues podcast, Barbara and Jamie open up about recent challenges and personal milestones. Jamie shares the anxiety of discovering a new bump on her tongue and the immense relief when it turned out not to be cancer. Barbara reflects on her ambitious November plans that didn’t unfold as she hoped and bravely discusses her recent diagnosis of lipoedema. Together, they emphasize how important it is to care for every aspect of our health—not just the parts tied to a cancer diagnosis.

As the holidays approach, their conversation shifts to the joys and complexities of the season. They share honest reflections on navigating food challenges, social interactions, and finding balance amidst the festivities, offering thoughtful tips and coping strategies to help others facing similar struggles. Throughout, Barbara and Jamie remind listeners of the incredible support and understanding within the Young Tongues community.

Before signing off, they take a moment to express their deep gratitude to their listeners and community for the strength and connection they bring, wishing everyone a warm and joyful Christmas filled with love and self-care.

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Expert Guest: Dr. Melina Windon

Fri, 06 Dec 2024 05:00:33 GMT

In this episode of the Young Tongues podcast, host Barbara interviews Dr. Melina Windon, MD from the University of Kentucky, a specialist in head and neck and microvascular reconstructive surgery. Dr. Windon discusses her medical journey, the complexities of tongue cancer surgeries, and her research on HPV-related cancers. She explains the surgical process, including the selection of donor sites for reconstructive flaps, and addresses listener questions. Dr. Windon highlights the importance of early diagnosis and the challenges in healthcare delivery while expressing hope for advancements through clinical trials and immunotherapy.

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Steven's Story

Fri, 15 Nov 2024 03:01:38 GMT

In this week's episode of the Young Tongues Podcast, we sit down with Steven, a beloved community member and actor who has been experiencing recurrent tongue cancer since 1997. Steven opens up about his journey from his initial diagnosis while working at Walt Disney World, to enduring multiple treatments—surgeries, radiation, and chemotherapy—and the emotional rollercoaster that followed. Steven's story highlights the importance of early detection, the critical role of speech therapy, and the struggle to avoid feeling 'othered' due to health and social anxieties. He delves into the power of community support, sharing how friends and supportive networks have helped him through his darkest moments.

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All things Mental Health - Part 2

Fri, 08 Nov 2024 04:01:00 GMT

In this episode of the Young Tongues podcast, hosts Barbara and Jamie explore the multifaceted experience of 'scanxiety' — the anxiety associated with awaiting medical scan results. They discuss the profound psychological impact and communication challenges surrounding their tongue cancer diagnoses. The conversation incorporates personal anecdotes, revealing how different communication approaches from healthcare providers influence a patient's mental well-being. Additionally, the episode covers coping mechanisms, both involuntary and deliberate, such as physical activities, meditation, and setting public goals. The hosts also highlight the role of support groups, community involvement, and the emotional toll of survivor's guilt. They address the importance of early diagnosis, support during grief, and maintaining personal boundaries within the support community. Moreover, the discussion touches on facing online trolling and the significance of raising awareness about tongue cancer.

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The Mental Health of it All - Part 1

Fri, 25 Oct 2024 03:02:45 GMT

In this episode of the Young Tongues podcast, Barbara, along with her co-host Jamie, delves into the mental health struggles faced by young tongue cancer patients. They discuss the significant lack of mental health support in cancer treatment plans and stress the need for mental strength and agility. Personal anecdotes shed light on the long-term trauma, everyday challenges, and the importance of maintaining a balanced mindset. The conversation highlights coping mechanisms such as therapy, meditation, and breathing techniques, as well as the profound impact of peer support groups and virtual meetups. The episode addresses the prevalence of depression, anxiety, and PTSD-like symptoms, while also underscoring the importance of seeking professional help. The role of community support and relatable peers in emotional well-being is emphasised, providing a holistic view on navigating life during and after cancer treatment.

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Mus's Story

Fri, 18 Oct 2024 14:43:16 GMT

In this insightful episode of the Young Tongues podcast, host Barbara interviews Mus Tarry, a local councillor from Surrey, who shares his personal experience with tongue cancer. Mus recounts his journey from early symptom detection in 2022, through his diagnosis, to undergoing major surgery. The narrative delves into the emotional and logistical challenges faced, highlighting the critical support from medical professionals, his place of work, and loved ones. Mus details the process of preparing for surgery, the intense experience of recovery in the ICU, and subsequent complications that led to multiple operations. Additionally, this episode explores his encounters with chemo-radiation, underlining the physical and emotional toll alongside the importance of maintaining routines and the significant impact of a supportive community. Throughout, Mus's story is one of resilience, determination, and the crucial role of family, healthcare teams, and community support in navigating and overcoming such a profound medical journey.

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Candi's Story

Fri, 11 Oct 2024 04:00:13 GMT

In this episode of the Young Tongues podcast, we hear from Candi, a former nurse and police constable, who shares her deeply personal journey with tongue cancer. Candi opens up about her early life, career, and family, leading up to the moment she first discovered something was wrong during a routine dentist visit. She recounts the shock of her diagnosis, the emotional weight of sharing the news with her family, and the grueling medical path that followed, including multiple surgeries and a long hospital stay. Throughout the episode, Candi candidly discusses her recovery process, the physical and emotional changes she has faced, and her determination to find a new sense of normalcy. She also talks about her aspirations to return to work and the ongoing challenges of navigating life as a cancer survivor, offering listeners both insight and hope.

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Post-Summer Energy: The Duo Is Back!

Mon, 07 Oct 2024 18:46:28 GMT

In this episode of the Young Tongues podcast, hosts Barbara and Jamie reunite after an eventful summer break, sharing deeply personal stories and meaningful reflections. Barbara opens up about her trip back home to Switzerland, where she raised awareness for tongue cancer while balancing her role as CEO of the Young Tongues charity. Meanwhile, Jamie recounts the harrowing experience of her family’s evacuation during a California wildfire. Together, they reflect on their journeys as tongue cancer survivors and how these life-changing experiences continue to shape their advocacy, work, and personal growth. Looking ahead, they tease upcoming episodes featuring inspiring interviews with fellow tongue cancer survivors, offering listeners a chance to hear powerful stories from the community and deepen awareness around tongue cancer.

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Jennifer's Story

Fri, 30 Aug 2024 03:00:39 GMT

In this episode of the Young Tongues podcast, Barbara interviews Jennifer Alexander, a member of the community, who shares her experience with tongue cancer. Jennifer talks about her various diagnoses since her early twenties, her struggles with treatments, and her surgeries. She emphasizes the importance of HPV vaccination for preventing HPV+ oral cancer and shares her experiences in advocating for cancer awareness. The conversation also touches on the psychological impacts of a cancer diagnosis, the stigma associated with HPV, and the importance of not feeling ashamed.

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Angilee's Story

Fri, 23 Aug 2024 03:00:04 GMT

In this episode of the Young Tongues podcast, host Barbara Fountain interviews Angilee Wilkerson about her experience with tongue cancer. Angilee, who noticed something was wrong when her tongue moved to one side, was diagnosed with stage 3 tongue cancer. Despite being given a 40% chance of survival with chemo and radiation, Angilee with the support of ther clinical team opted for a wait and watch approach. Three years out from surgery Angilee is still cancer free. Angilee also discusses her invention, TOUGLES, a device to help tongue cancer survivors eat and improve speech. The episode touches on her recovery journey, the impact of the surgery on her eating and speech, and the emotional and psychological aspects of her choices.

https://www.tougles.com/

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Jamie's Radiation Experience - Part Two

Fri, 16 Aug 2024 03:00:13 GMT

In this episode of the Young Tongues podcast, Barbara and Jamie continue their chat about radiation. Jamie recounts her struggles during this treatment phase, including severe dry mouth, thick mucus, painful blisters, and burns. She describes the coping mechanisms she employed, such as using a humidifier and experimenting with various soothing products. Jamie highlights the difficulty of maintaining her oral health and energy levels, battling weight loss, and dealing with the emotional toll. She talks about her struggles to keep up with treatment towards the end and her progress post-radiation, emphasizing the challenges of regaining her sense of taste and normalcy. The episode also underscores the importance of community support and connecting with others who have undergone similar experiences.

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Steph's Story

Fri, 09 Aug 2024 14:45:47 GMT

In this episode of the Young Tongues podcast, Jamie introduces a guest very dear to her heart, Steph, who played a vital role during her own tongue cancer diagnosis. Steph, a critical care nurse, details her journey from discovering a lump under her chin to being diagnosed with stage three squamous cell carcinoma of the oral tongue. She recounts the initial misdiagnoses, the eventual diagnosis process, her 12-hour surgery, and the emotional and physical struggles during recovery. Steph also shares her grueling experience with radiation treatment, the lasting physical effects, and the emotional toll of her journey. She emphasizes the importance of finding a supportive community of fellow cancer survivors and shares how her life and career have changed post-cancer. The episode concludes with Steph providing advice for newly diagnosed patients and a light-hearted discussion on fictional characters they identify with.

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Jamie's Radiation Experience - Part One

Fri, 02 Aug 2024 04:00:46 GMT

In this episode of the Young Tongues podcast, Barbara discusses her summer activities and experiences with her co-host Jamie. Jamie delves into her radiation experience for tongue cancer, including preparations, side effects, and the emotional journey. They touch upon the significance of having a support system, especially during COVID-19, and highlight the importance of mentally preparing yourself. The episode concludes with a listener question about regaining feeling in post-surgery areas, followed by a teaser for an upcoming interview with another patient.

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Andrea's Story

Fri, 26 Jul 2024 04:00:47 GMT

In this episode of the Young Tongues podcast, Barbara interviews Andrea Rodriguez, a fellow tongue cancer patient from Texas. Andrea shares her journey, starting from her first dental appointment at just 18 being diagnosed with leukoplakia, through multiple diagnoses and the impact treatment had on her her emotional and physical health. She details the initial appearance of lesions, the progression to cancer, surgeries, and subsequent radiation therapy. Andrea emphasizes the importance of community support, mental health, and the invaluable assistance she received from the Young Tongues community. The conversation underscores the significance of staying positive, seeking help, and the impact of a supportive network during such a challenging experience.

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Hospital to Home

Fri, 19 Jul 2024 04:00:38 GMT

In this episode of the Young Tongues podcast, co-hosts Barbara and Jamie discuss the challenges and experiences faced after tongue cancer surgery, particularly the transition from hospital to home. Both hosts open up about their personal struggles, including managing fatigue, the psychological impact of their surgeries, and the unique issues of caring for young children post-surgery. The episode also touches on their different decisions regarding post-surgery radiation therapy and their eventual return to work, highlighting how varied and personal these journeys can be.

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Cancer Sex And Intimacy

Fri, 12 Jul 2024 04:19:37 GMT

In this episode of the Young Tongues podcast, Barbara chats with Sarah and Cheryl from Cancer Sex and Intimacy. They dive into their project, which tackles the often-ignored topic of sex and intimacy for cancer patients. Sarah opens up about her Hodgkin's lymphoma treatment and its toll on her sexual health, while Cheryl shares her journey with stage 4 neuroendocrine cancer and the lack of support for intimacy after treatment. They stress how crucial it is to talk about sexual health in cancer care, the importance of supportive communities, and the need for better communication between patients and doctors. They also discuss their booklet, 'Pleasure and Intimacy: A Guide for People Living with Cancer,' and share personal stories about reclaiming sexual health, the impact of cancer on relationships, and dealing with menopause.

To get a copy of the 'Pleasure & Intimacy' booklet please email us at cancerandintimacy@gmail.com or find us on instagram @sex_cancer_intimacy. The information is predominantly aimed at women and non-binary people but there is definitely something for everyone so please don't hesitate to ask us for a copy.

The booklet was put together for the Cancer, Sex & Intimacy project by Fruit fly Collective with graphic design by Daphne Vanden Borre.

For menopause support look to Make Menopause Matter and @dianedanzebrink for their amazing booklet 'Understanding Menopause'

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Welcome to Season 2!

Fri, 05 Jul 2024 04:00:42 GMT

In this week's episode, Young Tongues podcast hosts Barbara Fountain and Jamie Powell return after a six-month hiatus to catch up and discuss their plans for season 2. Barbara shares her recent experience walking 100K across the Jordan desert and updates on her struggle with chronic fatigue. Jamie talks about her summer in Southern California and her progress with trying new foods. The hosts express gratitude for their listeners' support and unveil a big development: a substantial donation from Oracle Head and Neck Cancer UK that allows Barbara to work full-time on Young Tongues. They tease the next episode focused on sex and intimacy after cancer and emphasize the importance of advocacy and self-care in their journeys. The episode maintains their usual blend of candid conversation and humor.

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Nursing Husbands and a spooky watermelon

Fri, 20 Oct 2023 09:07:02 GMT

In this episode we look at the 48 hours after being released from hospital with all it's tirals and tribulations

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Technically Challenged, Wards and Fighting Moms

Wed, 11 Oct 2023 15:59:34 GMT

Jamie & Barbara are joined by their first ever guest Hannah and discuss the ins and out of hospital life after surgery.

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ICU, Trauma and Marie Kondo

Fri, 11 Aug 2023 13:43:39 GMT

Content warning: We discuss themes of sexual violence in this episode.

Firstly apololgies for the radio silence! We had some technical challenges. In this episode Barbara and Jamie discuss the ICU and HDU experience following their surgeries. And how being totally vulnerable can bring up past trauma and how we sometimes are seen as a "cancer patient" and not a a whole human with a complex history. At the end we lighten the mood a bit talking about our go to tv programms whilst going through treatment.

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Missing Mattresses, Pandemic Protocols and Post Surgery Feels

Fri, 12 May 2023 17:17:55 GMT

It's time to talk about our surgery experience

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Pre-Op, Cancer Tourists and Leaky Big Face

Mon, 10 Apr 2023 11:59:39 GMT

This week talk about our experience of what happened between diagnosis and Surgery.

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Anxiety, Grief and Stupid Songs

Fri, 17 Mar 2023 10:57:36 GMT

After an eventful few weeks we go off script and share what has been going on in our life after tongue cancer.

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The Bump

Mon, 30 Jan 2023 11:42:57 GMT

This podcast is all about our marvellous and magnificent tongues! That got you going? We had TONGUE CANCER! Ewww! Did that just kill the mood?

Don't worry, this is not what you think, get ready to hear all the ins and outs about life with our incredible tongues.

For a long time, we couldn't talk...but now, we have a lot to say!

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