60 acast.com SMA My Way https://shows.acast.com/sma-my-way en Roche SMA,Disability,Spinal Muscular Atrophy,Accessibility Roche What’s it like living with spinal muscular atrophy (SMA)?


Join Karli, Louise, Martyn and Pia, the SMA My Way Champions, and their special guests as they talk careers, science, dating, travel, parenting, music and fashion and much more. 


SMA is a rare neuromuscular disease with a close-knit community of resilient problem-solvers at its heart. Focusing on their passions, the Champions foster conversations that are dynamic, inspiring and bring people together.


All episodes are available with subtitles on YouTube: https://www.youtube.com/playlist?list=PLmXzuVn0p6GD0W59WShp5lC2ucwlqVD8E. For a transcript of the episodes and more information: https://global.smamyway.com/resources.


Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. 

Hosted on Acast. See acast.com/privacy for more information.

]]> What’s it like living with spinal muscular atrophy (SMA)?


Join Karli, Louise, Martyn and Pia, the SMA My Way Champions, and their special guests as they talk careers, science, dating, travel, parenting, music and fashion and much more. 


SMA is a rare neuromuscular disease with a close-knit community of resilient problem-solvers at its heart. Focusing on their passions, the Champions foster conversations that are dynamic, inspiring and bring people together.


All episodes are available with subtitles on YouTube: https://www.youtube.com/playlist?list=PLmXzuVn0p6GD0W59WShp5lC2ucwlqVD8E. For a transcript of the episodes and more information: https://global.smamyway.com/resources.


Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. 

Hosted on Acast. See acast.com/privacy for more information.

]]> false Roche pn_roche_sma_dmd@porternovelli.com 64c8cfbfced45f0010164d31 sma-my-way episodic https://assets.pippa.io/shows/64c8cfbfced45f0010164d31/1700499379848-6549a60e91922aad9d131cbb5d65711a.jpeg https://shows.acast.com/sma-my-way SMA My Way Martyn speaks with Josh Wintersgill, Founder and Entrepreneur - Part 2 Martyn speaks with Josh Wintersgill, Founder and Entrepreneur - Part 2 Thu, 25 Jul 2024 11:26:19 GMT 28:48 66a2365c22781665a99364d6 false https://shows.acast.com/sma-my-way/episodes/martyn-speaks-with-josh-wintersgill-founder-and-entrepreneur 66a2365c22781665a99364d6 64c8cfbfced45f0010164d31 martyn-speaks-with-josh-wintersgill-founder-and-entrepreneur full 1 4.1 Martyn is a founder, CEO, author, advisor, and social activist, driven by the vision of a truly inclusive world. In part 2 of Martyn's episode he is joined by his friend and entrepreneur, Josh Wintersgill. Together they explore the world of entrepreneurship for disabled founders, navigating the challenges of securing funding, and the profound impact entrepreneurship can have in fostering inclusivity on a global scale.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche.


M-XX-00016668

Date of Preparation: March 2024

Hosted on Acast. See acast.com/privacy for more information.

]]> Martyn is a founder, CEO, author, advisor, and social activist, driven by the vision of a truly inclusive world. In part 2 of Martyn's episode he is joined by his friend and entrepreneur, Josh Wintersgill. Together they explore the world of entrepreneurship for disabled founders, navigating the challenges of securing funding, and the profound impact entrepreneurship can have in fostering inclusivity on a global scale.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche.


M-XX-00016668

Date of Preparation: March 2024

Hosted on Acast. See acast.com/privacy for more information.

]]> Martyn speaks with Josh Wintersgill, Founder and Entrepreneur Martyn speaks with Josh Wintersgill, Founder and Entrepreneur Thu, 25 Jul 2024 11:25:34 GMT 25:43 66a23541399d35be9850e2c5 false https://shows.acast.com/sma-my-way/episodes/martyn-speaks-with-josh-wintersgill 66a23541399d35be9850e2c5 64c8cfbfced45f0010164d31 martyn-speaks-with-josh-wintersgill full 1 4 Martyn is a founder, CEO, author, advisor, and social activist, driven by the vision of a truly inclusive world. In part 1 of Martyn's episode he is joined by his friend and entrepreneur, Josh Wintersgill. Together, they delve into their travel adventures, dissecting the complexities of tourism, unveiling innovative solutions in development, and sharing their collective aspirations for the future.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche.


M-XX-00016668

Date of Preparation: March 2024

Hosted on Acast. See acast.com/privacy for more information.

]]> Martyn is a founder, CEO, author, advisor, and social activist, driven by the vision of a truly inclusive world. In part 1 of Martyn's episode he is joined by his friend and entrepreneur, Josh Wintersgill. Together, they delve into their travel adventures, dissecting the complexities of tourism, unveiling innovative solutions in development, and sharing their collective aspirations for the future.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community. This podcast series is sponsored by Roche.


M-XX-00016668

Date of Preparation: March 2024

Hosted on Acast. See acast.com/privacy for more information.

]]> Care for adults living with SMA in Europe - from critical changes to best practices Care for adults living with SMA in Europe - from critical changes to best practices Fri, 05 Jul 2024 13:24:23 GMT 29:54 6687f377453c109b96a90b72 false https://shows.acast.com/sma-my-way/episodes/care-for-adults-living-with-sma-in-europe-from-critical-chan 6687f377453c109b96a90b72 64c8cfbfced45f0010164d31 care-for-adults-living-with-sma-in-europe-from-critical-chan full 1 3 Across Europe, the lived experience of adults with Spinal Muscular Atrophy (SMA) varies drastically. That’s why it’s important that we recognise disparities in care and champion positive change, as advocates for the SMA community. Join us for this episode as we explore perspectives from people living with SMA on best practices and critical changes needed for those living with this rare disease in Europe.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00017821. Date of Preparation: June 2024

Hosted on Acast. See acast.com/privacy for more information.

]]> Across Europe, the lived experience of adults with Spinal Muscular Atrophy (SMA) varies drastically. That’s why it’s important that we recognise disparities in care and champion positive change, as advocates for the SMA community. Join us for this episode as we explore perspectives from people living with SMA on best practices and critical changes needed for those living with this rare disease in Europe.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00017821. Date of Preparation: June 2024

Hosted on Acast. See acast.com/privacy for more information.

]]> Pia speaks with Anna Kuusela, leadership coach and business mentor - Part 2 Pia speaks with Anna Kuusela, leadership coach and business mentor - Part 2 Wed, 07 Feb 2024 10:17:20 GMT 16:44 65c344032f12a60016f68543 false https://shows.acast.com/sma-my-way/episodes/pia-speaks-with-anna-kuusela-leadership-coach-and-business-m 65c344032f12a60016f68543 64c8cfbfced45f0010164d31 pia-speaks-with-anna-kuusela-leadership-coach-and-business-m full 1 2.2 Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 2 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss emotional intelligence and the role leaders need to play to ensure better inclusion and diversity in the workplace.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015970. Date of preparation: January 2024.

Hosted on Acast. See acast.com/privacy for more information.

]]> Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 2 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss emotional intelligence and the role leaders need to play to ensure better inclusion and diversity in the workplace.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015970. Date of preparation: January 2024.

Hosted on Acast. See acast.com/privacy for more information.

]]> Pia speaks with Anna Kuusela, leadership coach and business mentor Pia speaks with Anna Kuusela, leadership coach and business mentor Wed, 10 Jan 2024 14:15:45 GMT 19:02 6596922e3a2c300016bc6ca7 false https://shows.acast.com/sma-my-way/episodes/episode-2-part-1-pia-speaks-with-anna-kuusela-leadership-coa 6596922e3a2c300016bc6ca7 64c8cfbfced45f0010164d31 episode-2-part-1-pia-speaks-with-anna-kuusela-leadership-coa full 1 2.1 Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 1 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss Pia's life as a caregiver and the process of coming to terms with her child's SMA diagnosis.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015751. Date of preparation: December 2023.

Hosted on Acast. See acast.com/privacy for more information.

]]> Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 1 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss Pia's life as a caregiver and the process of coming to terms with her child's SMA diagnosis.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015751. Date of preparation: December 2023.

Hosted on Acast. See acast.com/privacy for more information.

]]> Meet Karli, Louise, Martyn and Pia Meet Karli, Louise, Martyn and Pia Tue, 21 Nov 2023 16:55:06 GMT 21:15 655b8b4d4c0cfb0012c2dd2e false https://shows.acast.com/sma-my-way/episodes/meet-karli-louise-martyn-and-pia 655b8b4d4c0cfb0012c2dd2e 64c8cfbfced45f0010164d31 meet-karli-louise-martyn-and-pia full 1 1 Karli is a disabled writer, music enthusiast, and pun connoisseur, and she’s just one of your hosts! In the very first episode of SMA My Way, Karli introduces SMA Champions Louise, Martyn, Pia, their passions and the conversations that inspired them to speak on life with SMA.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015592. Date of preparation: November 2023.

Hosted on Acast. See acast.com/privacy for more information.

]]> Karli is a disabled writer, music enthusiast, and pun connoisseur, and she’s just one of your hosts! In the very first episode of SMA My Way, Karli introduces SMA Champions Louise, Martyn, Pia, their passions and the conversations that inspired them to speak on life with SMA.


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.


Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015592. Date of preparation: November 2023.

Hosted on Acast. See acast.com/privacy for more information.

]]> Introducing…SMA My Way Introducing…SMA My Way Mon, 20 Nov 2023 16:57:39 GMT 2:51 655b89be78d7ac0011e843d1 false https://shows.acast.com/sma-my-way/episodes/introducingsma-my-way 655b89be78d7ac0011e843d1 64c8cfbfced45f0010164d31 introducingsma-my-way trailer 1 Introducing Karli, Louise, Martyn and Pia - four incredible people who live with or care for people with Spinal Muscular Atrophy (SMA).


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources


Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015591. Date of preparation: November 2023.

Hosted on Acast. See acast.com/privacy for more information.

]]> Introducing Karli, Louise, Martyn and Pia - four incredible people who live with or care for people with Spinal Muscular Atrophy (SMA).


Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources


Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.


This podcast series is sponsored by Roche. M-XX-00015591. Date of preparation: November 2023.

Hosted on Acast. See acast.com/privacy for more information.

]]>