60 acast.com theMSguide podcast https://shows.acast.com/themsguide-podcast en Dominic Shadbolt Multiple Sclerosis, MS,MS Journey,MS Patient,DMT,Stem Cell,HSCT,Barry Singer,MS Living Well,Jon Strum,MS Society,MS Trust,National MS Society,MSSA theMSguide This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on the topics that affect them and their care. is the aim of the podcast.


theMSguide.com is beholden to no one so we are happy to tackle the hard topics and apply the patient lens to them.


theMSguide.com started life as a YouTube channel . Many people, including me, listen to more and more podcasts these days. Building on the success of the channel is what brings us together here.

Hosted on Acast. See acast.com/privacy for more information.

]]> This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on the topics that affect them and their care. is the aim of the podcast.


theMSguide.com is beholden to no one so we are happy to tackle the hard topics and apply the patient lens to them.


theMSguide.com started life as a YouTube channel . Many people, including me, listen to more and more podcasts these days. Building on the success of the channel is what brings us together here.

Hosted on Acast. See acast.com/privacy for more information.

]]> false Dominic Shadbolt info+65731dd80a01ad001247ac9d@mg-eu.acast.com 65731dd80a01ad001247ac9d themsguide-podcast episodic https://assets.pippa.io/shows/cover/1702042924936-836dc70a2fc9f67ac6217d57ec57ed6a.jpeg https://shows.acast.com/themsguide-podcast theMSguide podcast Testing the use of AI in MRI for MS Testing the use of AI in MRI for MS Mon, 19 Aug 2024 14:50:09 GMT 22:31 66c35ba1930b5815c2552a95 false https://youtu.be/sKW1xYdKkgE 66c35ba1930b5815c2552a95 65731dd80a01ad001247ac9d testing-the-use-of-ai-in-mri-for-ms The ASSIST-MS trial in the UK is at the cutting edge #ai #mri full 2 1 The use of Artificial Intelligence to help in medicine is a massive topic in Multiple Sclerosis. Hear how AI is making the interpretation of MRI faster, more accurate, and more thorough. Time after Time.


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> The use of Artificial Intelligence to help in medicine is a massive topic in Multiple Sclerosis. Hear how AI is making the interpretation of MRI faster, more accurate, and more thorough. Time after Time.


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Another New AI Tool That Will Transform Your MS Care Another New AI Tool That Will Transform Your MS Care Sun, 26 May 2024 18:03:48 GMT 32:41 66537983c8b8cc0012023983 false https://youtu.be/tRQd0n2L9n0 66537983c8b8cc0012023983 65731dd80a01ad001247ac9d another-new-ai-tool-that-will-transform-your-ms-care Incredible AI powered insoles full 1 19 All the promised trial details are here:


Boston, US

Brigham and Women's Hospital

Principal Investigator: Tanuja Chitnis, MD

tchitnis@bwh.harvard.edu


Ottawa, Canada

The Ottawa Hospital

Principal Investigator: Gauruv Bose, MD

gabose@toh.ca


London, UK

The Royal London Hospital

Principal Investigator: Sharmilee Gnanapavan, Dr.

s.gnanapavan@qmul.ac.uk


Inclusion criteria:


Participants must have a diagnosis of Multiple Sclerosis (MS) within an age range of 18 to 60.

The participant must have an Extended Disability Status Scale (EDSS) score at screening less than or equal to 6.5, inclusive.

As background, the main study is 6 months in duration, with an option for the participant to continue for an additional 6 months.


For reference, here is a public link where we publish info on the MS study, including site contact info:


https://clinicaltrials.gov/study/NCT05781113?term=NCT05781113&city=&rank=1


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> All the promised trial details are here:


Boston, US

Brigham and Women's Hospital

Principal Investigator: Tanuja Chitnis, MD

tchitnis@bwh.harvard.edu


Ottawa, Canada

The Ottawa Hospital

Principal Investigator: Gauruv Bose, MD

gabose@toh.ca


London, UK

The Royal London Hospital

Principal Investigator: Sharmilee Gnanapavan, Dr.

s.gnanapavan@qmul.ac.uk


Inclusion criteria:


Participants must have a diagnosis of Multiple Sclerosis (MS) within an age range of 18 to 60.

The participant must have an Extended Disability Status Scale (EDSS) score at screening less than or equal to 6.5, inclusive.

As background, the main study is 6 months in duration, with an option for the participant to continue for an additional 6 months.


For reference, here is a public link where we publish info on the MS study, including site contact info:


https://clinicaltrials.gov/study/NCT05781113?term=NCT05781113&city=&rank=1


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Sex in MS : the things you need to know from Dr Brown Sex in MS : the things you need to know from Dr Brown Sun, 05 May 2024 15:52:38 GMT 26:44 662e3666437bd70012d27035 false https://youtu.be/66SLWMu6fYQ 662e3666437bd70012d27035 65731dd80a01ad001247ac9d sex-in-ms-the-solutions-epiode Episode 2 - some solutions full 1 18 ex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.


Here are the promised resources we discussed.


https://mstrust.org.uk/a-z/sexual-problems-women-ms


https://mstrust.org.uk/a-z/sexual-problems-men-ms


https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships


https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work


https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises


https://www.thecouplesummit.org/blog/relationship-check-ins


https://www.gottman.com/blog/category/column/the-four-horsemen/


https://www.gottman.com/blog/category/love-relationships/


Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.


Just email me at dominic@theMSguide.com


Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> ex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.


Here are the promised resources we discussed.


https://mstrust.org.uk/a-z/sexual-problems-women-ms


https://mstrust.org.uk/a-z/sexual-problems-men-ms


https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships


https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work


https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises


https://www.thecouplesummit.org/blog/relationship-check-ins


https://www.gottman.com/blog/category/column/the-four-horsemen/


https://www.gottman.com/blog/category/love-relationships/


Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.


Just email me at dominic@theMSguide.com


Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Sex in MS : the things you need to know from Dr Brown Sex in MS : the things you need to know from Dr Brown Sun, 28 Apr 2024 11:50:30 GMT 18:39 662e35483922620013b9d578 false https://youtu.be/6Ez90YK1frs 662e35483922620013b9d578 65731dd80a01ad001247ac9d sex-in-ms-the-problems Episode 1 - the issues full 1 17 Sex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.


Here are the promised resources we discussed.


https://mstrust.org.uk/a-z/sexual-problems-women-ms


https://mstrust.org.uk/a-z/sexual-problems-men-ms


https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships


https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work


https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises


https://www.thecouplesummit.org/blog/relationship-check-ins


https://www.gottman.com/blog/category/column/the-four-horsemen/


https://www.gottman.com/blog/category/love-relationships/


Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.


Just email me at dominic@theMSguide.com


Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Sex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.


Here are the promised resources we discussed.


https://mstrust.org.uk/a-z/sexual-problems-women-ms


https://mstrust.org.uk/a-z/sexual-problems-men-ms


https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships


https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work


https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises


https://www.thecouplesummit.org/blog/relationship-check-ins


https://www.gottman.com/blog/category/column/the-four-horsemen/


https://www.gottman.com/blog/category/love-relationships/


Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.


Just email me at dominic@theMSguide.com


Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Digital and Social changed the MS world. Meet the man behind it and hear his incredible story. Digital and Social changed the MS world. Meet the man behind it and hear his incredible story. Sun, 21 Apr 2024 09:04:08 GMT 35:09 6624c9dd62fe14001254a8f6 false https://youtu.be/cpr7lJk4kLk 6624c9dd62fe14001254a8f6 65731dd80a01ad001247ac9d digital-and-social-changed-the-ms-world George Pepper is the publicity shy face behind shift.ms full 1 16 If you haven't become part of the Shift MS community then go to www.shift.ms to explore an incredible array of resources.


If you are in London then the best lamb chops are at Tayyabs in East London near the Royal London Hospital. www.tayyabs.co.uk


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> If you haven't become part of the Shift MS community then go to www.shift.ms to explore an incredible array of resources.


If you are in London then the best lamb chops are at Tayyabs in East London near the Royal London Hospital. www.tayyabs.co.uk


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Men get better MS treatment than women. Men get better MS treatment than women. Sat, 06 Apr 2024 15:31:44 GMT 34:40 66103e4e7682980017885c94 false https://youtu.be/8yz1tdhFzRw 66103e4e7682980017885c94 65731dd80a01ad001247ac9d men-get-better-ms-treatment-than-women Prof Vicky Leavitt joins me and Rebecca Scott to discuss her new paper that exposes this. We talk next steps as well. full 1 15 Join us to learn more as Professor Vicky Leavitt of Columbia University joins me and Scottie to talk us through her latest paper. We discover that it raises more questions than it answers.


Learn more about Vicky here:


https://mr.research.columbia.edu/content/victoria-m-leavitt


and delve into her vast amount of research here:


https://scholar.google.com/citations?user=D8B_Oq8AAAAJ&hl=en


If you'd like a copy of the paper please email me asking for it. dominic@theMSguide.com


Please Subscribe to the podcast or the YouTube channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Join us to learn more as Professor Vicky Leavitt of Columbia University joins me and Scottie to talk us through her latest paper. We discover that it raises more questions than it answers.


Learn more about Vicky here:


https://mr.research.columbia.edu/content/victoria-m-leavitt


and delve into her vast amount of research here:


https://scholar.google.com/citations?user=D8B_Oq8AAAAJ&hl=en


If you'd like a copy of the paper please email me asking for it. dominic@theMSguide.com


Please Subscribe to the podcast or the YouTube channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Joe Bush is running the London Marathon and Raising £££ for MS Research Joe Bush is running the London Marathon and Raising £££ for MS Research Mon, 01 Apr 2024 19:09:00 GMT 5:51 660a8245c2a9380016526e83 false https://shows.acast.com/themsguide-podcast/episodes/joe-bush-is-running-the-london-marathon 660a8245c2a9380016526e83 65731dd80a01ad001247ac9d joe-bush-is-running-the-london-marathon full 1 14 Joe is an incredible young man who is taking his passion for running and using it to help support MS Research via the MS Society. I was put in touch with him as he is the son of the best friend of a pal of mine.


Please help support his efforts by donating through his Just Giving page here: https://justgiving.com/page/joebush


Follow Joe on Twitter/X here: @joebushy1 - https://twitter.com/joebushy1


Read more about the research support from the MS Society here: https://www.mssociety.org.uk/research


Read more about the London Marathon here: https://www.tcslondonmarathon.com/

Hosted on Acast. See acast.com/privacy for more information.

]]> Joe is an incredible young man who is taking his passion for running and using it to help support MS Research via the MS Society. I was put in touch with him as he is the son of the best friend of a pal of mine.


Please help support his efforts by donating through his Just Giving page here: https://justgiving.com/page/joebush


Follow Joe on Twitter/X here: @joebushy1 - https://twitter.com/joebushy1


Read more about the research support from the MS Society here: https://www.mssociety.org.uk/research


Read more about the London Marathon here: https://www.tcslondonmarathon.com/

Hosted on Acast. See acast.com/privacy for more information.

]]> The Amazing MS Charity That Few People Have Heard Of MS-UK The Amazing MS Charity That Few People Have Heard Of MS-UK Thu, 21 Mar 2024 17:45:28 GMT 21:27 65fc70942f72c100163fb328 false https://youtu.be/fmBS9Xye6WU 65fc70942f72c100163fb328 65731dd80a01ad001247ac9d the-amazing-ms-charity-that-few-people-have-heard-of-ms-uk A discussion with Diana from MS-UK full 1 13 Please check out the incredible resources at https://ms-uk.org


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Please check out the incredible resources at https://ms-uk.org


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> How patients benefit when their Neurologist/Nurse attends medical conferences How patients benefit when their Neurologist/Nurse attends medical conferences Fri, 08 Mar 2024 15:19:16 GMT 20:52 65c4a3f549412d001593b4e6 false https://youtu.be/nOSq5yM9yA0 65c4a3f549412d001593b4e6 65731dd80a01ad001247ac9d how-patients-benefit-from-medical-conferences They may be fun but they are not a jolly to get away from seeing patients! full 1 11 Have you ever wondered what your doctor does when they flit off to exotic (and not so exotic) locations for medical conferences? They are important and you can benefit tremendously from having a doctor who works hard to stay up to date with the latest ideas in the field.


Ask your doctor what the last conference they attended was and what they learned that affected your treatment and why.


Contrary to what some thing it isn't a ski/Beach trip funded by the drug manufacturers. Really, the rules on pharma are extremely restrictive these days and rightly so.


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)


CONy. ECTRIMS, Beyond the Limits, MS Society Research Conference, MS Trust Professionals,

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]]> Have you ever wondered what your doctor does when they flit off to exotic (and not so exotic) locations for medical conferences? They are important and you can benefit tremendously from having a doctor who works hard to stay up to date with the latest ideas in the field.


Ask your doctor what the last conference they attended was and what they learned that affected your treatment and why.


Contrary to what some thing it isn't a ski/Beach trip funded by the drug manufacturers. Really, the rules on pharma are extremely restrictive these days and rightly so.


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)


CONy. ECTRIMS, Beyond the Limits, MS Society Research Conference, MS Trust Professionals,

Hosted on Acast. See acast.com/privacy for more information.

]]> Changing your Neurologist is easier than you may think - your referral rights in the NHS - how to go about it Changing your Neurologist is easier than you may think - your referral rights in the NHS - how to go about it Sat, 24 Feb 2024 17:20:59 GMT 34:17 65c4a385a1646c0016c231ed false https://youtu.be/Mk5LhCFYT0c 65c4a385a1646c0016c231ed 65731dd80a01ad001247ac9d your-referral-rights-in-the-nhs full 1 10 This podcast deals with changing your neurologist (in the UK) but also has a ton of good tips that are generally useful. Wendy is a senior manager in the NHS (we can't say where!) and really understands the system.


Since recording this episode Wendy has been to see her new neurologist and has been bowled over by how good a good MS neurologist can be. We'll follow-up soon.


An NHS leaflet detailing your right to choose: https://www.england.nhs.uk/wp-content/uploads/2017/03/patient-leaflet-digital.pdf


www.nhs.uk/patientchoice


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> This podcast deals with changing your neurologist (in the UK) but also has a ton of good tips that are generally useful. Wendy is a senior manager in the NHS (we can't say where!) and really understands the system.


Since recording this episode Wendy has been to see her new neurologist and has been bowled over by how good a good MS neurologist can be. We'll follow-up soon.


An NHS leaflet detailing your right to choose: https://www.england.nhs.uk/wp-content/uploads/2017/03/patient-leaflet-digital.pdf


www.nhs.uk/patientchoice


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Coping with mobility loss caused by Multiple Sclerosis Coping with mobility loss caused by Multiple Sclerosis Sat, 17 Feb 2024 13:15:04 GMT 58:56 65ce0f9ddaf7f90016043ff3 false https://youtu.be/g62uKAZ34o0 65ce0f9ddaf7f90016043ff3 65731dd80a01ad001247ac9d losing-your-mobility-from-ms Ann shares her experiences of going from walking to a wheelchair in a matter of months. full 1 9 Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Nerve Remyelination & Regeneration in Multiple Sclerosis]]> Sat, 03 Feb 2024 15:00:47 GMT 33:05 65be2af3863949001614e373 false https://youtu.be/IxXLs38F5vY 65be2af3863949001614e373 65731dd80a01ad001247ac9d nerve-remyelination-regeneration-in-multiple-sclerosis Prof Plucino helps set understanding and expectations for MS patients. PLUS: How to get involved in Clinical Trials full 1 8 Professor Stefano Plucino - a leader in this field who is a working MS Neurologist and researcher at the University of Cambridge in the UK helps us understand what is coming, when it will be here and how you can get involved with Clinical trial of these amazing new therapies.


Always ask your doctor - press them on this - what6 trials are running and how you might get involved. As ever, much of the burden falls to us but don't be disheartened.


Go to www.clinicaltrials.gov and you can search by condition (MS I guess!), country, recruiting status, eligibility criteria and there will always be a contact you can email directly or share with your neuro to refer you. I'd just send the email myself. Time is not our friend in MS.


If you are in the UK then the best thing you can do to indicate your interest and availability for clinical trial is go to https://ukmsregister.org and register there. You can take part in all sorts of research through this amazing hub.


If you have any questions then drop a note in the comments and please don't forget to like and subscribe on your podcast platform of choice. It really helps get this content in front of you and likeminded people. Thank you.


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Professor Stefano Plucino - a leader in this field who is a working MS Neurologist and researcher at the University of Cambridge in the UK helps us understand what is coming, when it will be here and how you can get involved with Clinical trial of these amazing new therapies.


Always ask your doctor - press them on this - what6 trials are running and how you might get involved. As ever, much of the burden falls to us but don't be disheartened.


Go to www.clinicaltrials.gov and you can search by condition (MS I guess!), country, recruiting status, eligibility criteria and there will always be a contact you can email directly or share with your neuro to refer you. I'd just send the email myself. Time is not our friend in MS.


If you are in the UK then the best thing you can do to indicate your interest and availability for clinical trial is go to https://ukmsregister.org and register there. You can take part in all sorts of research through this amazing hub.


If you have any questions then drop a note in the comments and please don't forget to like and subscribe on your podcast platform of choice. It really helps get this content in front of you and likeminded people. Thank you.


Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Let's Talk About Sex - in MS]]> Tue, 23 Jan 2024 18:08:13 GMT 32:57 6596c0133a2c300016c5320b false https://youtu.be/JuZJ--3HUeE 6596c0133a2c300016c5320b 65731dd80a01ad001247ac9d lets-talk-about-sex theMSguide meets 3 ladies , all with strong views, to talk about how to overcome and minimise problems caused by MS full 1 7 Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> theMSguide talks with Professor Bart Van Wijmeersch an MS Neurologist who is a bit different theMSguide talks with Professor Bart Van Wijmeersch an MS Neurologist who is a bit different Sat, 20 Jan 2024 17:57:31 GMT 39:08 65a0739a1664bf00178b3bc3 false https://youtu.be/z1UxLQjx5TM 65a0739a1664bf00178b3bc3 65731dd80a01ad001247ac9d themsguide-talks-to-professor-bart-van-wijmeersch We talk about the Gold Standard of MS care and predicting future outcomes with new tech today! full 1 6 Prof Bart van Wijmeersch practices in Belgium and he has a very enlightened view on how to treat patients. I just loved talking to him and hearing how he goes about everything. Ypou are v lucky to be one of his patients.


We cover the use of Evoked Potentials to aid in predicting the course of our MS and how these form part of the diagnostic and managing process.


Read what the MS Trust says about Evoked Potentials: https://mstrust.org.uk/a-z/evoked-potentials#:~:text=As%20damage%20to%20the%20nerves,you%20notice%20any%20clinical%20symptoms.


A simply fascinating interview.


This is the full length version. I think I Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Prof Bart van Wijmeersch practices in Belgium and he has a very enlightened view on how to treat patients. I just loved talking to him and hearing how he goes about everything. Ypou are v lucky to be one of his patients.


We cover the use of Evoked Potentials to aid in predicting the course of our MS and how these form part of the diagnostic and managing process.


Read what the MS Trust says about Evoked Potentials: https://mstrust.org.uk/a-z/evoked-potentials#:~:text=As%20damage%20to%20the%20nerves,you%20notice%20any%20clinical%20symptoms.


A simply fascinating interview.


This is the full length version. I think I Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Scientists crack mystery of how MS gene spread - Exclusive interview with the Lead Researcher Scientists crack mystery of how MS gene spread - Exclusive interview with the Lead Researcher Wed, 17 Jan 2024 20:58:08 GMT 36:49 65a83f5c1a69290016b910bd false https://youtu.be/G2eNtYO3d6A 65a83f5c1a69290016b910bd 65731dd80a01ad001247ac9d scientists-crack-mystery-of-how-ms-gene-spread-exclusive Professer Fugger joins theMSguide.com to talk in depth about what this means, how to interpret it, Where does EBV fit? full 1 5 Prof Fugger is the lead researcher on this incredibly important paper. It has been established how the 'MS Gene' came to be. Hear Lars talk in depth to theMSguide.com about his discovery and where the EBV we hear so much about fits. You#'ll be very surprised at some of the things you'll learn.


Read more here: https://www.bbc.co.uk/news/health-67917294


Please Subscribe to the podcast and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> Prof Fugger is the lead researcher on this incredibly important paper. It has been established how the 'MS Gene' came to be. Hear Lars talk in depth to theMSguide.com about his discovery and where the EBV we hear so much about fits. You#'ll be very surprised at some of the things you'll learn.


Read more here: https://www.bbc.co.uk/news/health-67917294


Please Subscribe to the podcast and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


https://www.patreon.com/theMSguide


theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


Email: dominic@theMSguide.com

Twitter: @theMSguide

LinkedIn: https://www.linkedin.com/company/themsguide/

Instagram: @theMSguide

Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

Hosted on Acast. See acast.com/privacy for more information.

]]> #TimeIsBrain - Brain health: time matters in multiple sclerosis. #TimeIsBrain - Brain health: time matters in multiple sclerosis. Thu, 04 Jan 2024 23:21:49 GMT 21:28 6581e6e8715d5300167b5f23 false https://youtu.be/ics1rSS11KY 6581e6e8715d5300167b5f23 65731dd80a01ad001247ac9d timeisbrain Emily Stock from the Brain Health Initiative joins theMSguide.com to talk time full 1 4 Brain health: time matters in multiple sclerosis. Emily Stock joins us to talk about a global initiative tio ensure that MS has an appropriately rapid intervention protocol in the same way that styoke or cancer have. The sooner an MS diagnosis is acted on the more brain (function/quality of life) is saved.

Hosted on Acast. See acast.com/privacy for more information.

]]> Brain health: time matters in multiple sclerosis. Emily Stock joins us to talk about a global initiative tio ensure that MS has an appropriately rapid intervention protocol in the same way that styoke or cancer have. The sooner an MS diagnosis is acted on the more brain (function/quality of life) is saved.

Hosted on Acast. See acast.com/privacy for more information.

]]> Clinical Trial Failure in MS: What does the big BTK trial failure mean for patients? Clinical Trial Failure in MS: What does the big BTK trial failure mean for patients? Sun, 10 Dec 2023 15:57:25 GMT 24:26 6575dfe39ec65700123fe77b false https://youtu.be/4LbOhTs8m60 6575dfe39ec65700123fe77b 65731dd80a01ad001247ac9d clinical-trial-failure-in-ms-are-btks-worth-waiting-for I am joined by Aaron Boster MD to discuss what this means for patients full 1 3 On this patient focused podcast I get together with one of the leading MS Neurologists in the US - Aaron Boster MD - to discuss the implications of the trial failure of evobrutinib. Aaron helps break down what it all means and more importantly, what does it mean for patients?


Please help support the channel by subscibing and on Patreon. patreon.com/theMSguide Thank you for your help. I appreciate it.

Hosted on Acast. See acast.com/privacy for more information.

]]> On this patient focused podcast I get together with one of the leading MS Neurologists in the US - Aaron Boster MD - to discuss the implications of the trial failure of evobrutinib. Aaron helps break down what it all means and more importantly, what does it mean for patients?


Please help support the channel by subscibing and on Patreon. patreon.com/theMSguide Thank you for your help. I appreciate it.

Hosted on Acast. See acast.com/privacy for more information.

]]> Cathy Chester : The Doyenne of MS Cathy Chester : The Doyenne of MS Fri, 08 Dec 2023 17:50:06 GMT 45:09 657323bbc193270011fee104 false https://youtu.be/7_R8U4jeGrE 657323bbc193270011fee104 65731dd80a01ad001247ac9d cathy-chester-the-doyenne-of-ms doyenne: the most respected or prominent woman in a particular field. full 1 2 In this episode Cathy (in the USA) and I (in the UK) combine our 60+y of living with Multiple Sclerosis to observe how far things have come, what the positive changes are and what still needs to be done.


Please support theMSguide on Patreon at: patereon.com/theMSguide Thank You.

Hosted on Acast. See acast.com/privacy for more information.

]]> In this episode Cathy (in the USA) and I (in the UK) combine our 60+y of living with Multiple Sclerosis to observe how far things have come, what the positive changes are and what still needs to be done.


Please support theMSguide on Patreon at: patereon.com/theMSguide Thank You.

Hosted on Acast. See acast.com/privacy for more information.

]]>