Challenge Accepted

Our chat with Luke Clements, Cerebra Professor of Law continues, looking at transition when your young person is funded by NHS Continuing Healthcare and what to do if you suspect some iffy decision making is taking place.

Tell us what you think and suggest ideas for future episodes here

Links to the documents mentioned in the episode:

Mental Capacity Act Code of Practice

Disabled Children: a legal handbook

Cerebra Accessing Public Services Toolkit

Luke Clements ‘resources’ page

Template letters Cerebra

National framework for NHS continuing healthcare and NHS-funded nursing care (2022)

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One of the Good Guys

Mon, 17 Nov 2025 10:56:24 GMT

Our much anticipated episode featuring Luke Clements, Cerebra Professor of Law at Leeds University. Hugely knowledgeable, a member of the Challenging Behaviour Foundation's Legal Panel and champion for family carers everywhere. We discuss the law; how it should work, how it sometimes doesn't work and how it changes as your young person transitions to adulthood.

Tell us what you think and suggest ideas for future episodes here

Links to the documents mentioned in the episode:

Mental Capacity Act Code of Practice

Disabled Children: a legal handbook

Cerebra Accessing Public Services Toolkit

Luke Clements ‘resources’ page

Template letters Cerebra

National framework for NHS continuing healthcare and NHS-funded nursing care (2022)

Hosted on Acast. See acast.com/privacy for more information.

Nobody has the trump card

Mon, 28 Jul 2025 09:59:45 GMT

Our family carers continue their discussions diving deep into the complexities of navigating the system: deputyship, best interests, annual health checks, and the emotional realities of lifelong caring. If you've been wondering how to ensure your young person's rights are upheld, this episode is for you - jargon free explanations from those who are already living it.

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

Deputyship Deputyship - Challenging Behaviour Foundation

Health Health - Challenging Behaviour Foundation

Transition: Transition to Adulthood - Challenging Behaviour Foundation

Family Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

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Hang on, I didn't know about that!

Mon, 14 Jul 2025 16:10:57 GMT

As the title suggests we know that when your young person is going through transition from children to adult services so much is different - plus how do you know what is possible if nobody tells you?!

In this episode real families discuss the importance of connecting with others locally and nationally. With some top tips on how to prepare your young person, their siblings and yourself for some potentially huge changes and how to bond with the people who may be caring for your teenager on a day to day basis if they are moving away from home for the first time.

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

8 Ways to get a House 8 ways to get a House - Challenging Behaviour Foundation

Planning Your House Planning your house - Challenging Behaviour Foundation

Transition: Transition to Adulthood - Challenging Behaviour Foundation

Family Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

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So it IS possible...

Tue, 01 Jul 2025 15:22:41 GMT

Challenge Accepted Series 3 continues and we are talking about a biggie - housing! In this episode our family carers talk about how they secured a home for their relative and what they want you to know if you are on a similar journey. What's the HOLD scheme? How do you insist on the things you know are important, the non-negotiables? Whether you’re overwhelmed by choices or feel constrained by limited options listen in for real life, real people and real understanding.

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

8 Ways to get a House 8 ways to get a House - Challenging Behaviour Foundation

Planning Your House Planning your house - Challenging Behaviour Foundation

Transition: Transition to Adulthood - Challenging Behaviour Foundation

Family Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

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Getting to where you want to be...

Tue, 25 Feb 2025 12:23:50 GMT

Join Challenge Accepted' s third series as we take a look at the transition from children's services to adult services for young people with severe learning disabilities who may display behaviours described as challenging. This episode is a taste of what's to come and we hear from family carers who've been through transition. Where are their relatives now? How did they decide what was best for them? Words of wisdom, witty observations and a whole lot of understanding from those who get it....

Episode links

Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation

8 Ways to get a House 8 ways to get a House - Challenging Behaviour Foundation

Challenging Behaviour Foundation Homepage for the Challenging Behaviour Foundation

Family Support Service Family Support Service - Challenging Behaviour Foundation

Peer Support Peer support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.

Reconnaissance, research and risk assessments

Tue, 16 Jul 2024 09:00:39 GMT

Our family carers are back talking about the summer holidays. This episode acknowledges the challenges of accessing play schemes and respite including how one family carer who became the Chair of her local play scheme to ensure it was accessible to all! There’s also ideas for managing the change in routine, finding spaces to meet others and relaxed theatre performances. So whether you are staying home or getting away, there is something for everybody from others who ‘get it’.

Episode links

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

CBF Family Carers’ Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

CBF Private Facebook Group: (1) The CBF Family Forum | Facebook

Peer Support from The CBF: Peer support - Challenging Behaviour Foundation

Quick read guide to Challenging Behaviour: Quick read challenging behaviour guide

Activities to do at home: Activities-for-Children-Young-People-or-Adults-with-Severe-Learning-Disabilities-to-do-at-Home-2022.pdf (challengingbehaviour.org.uk)

Relaxed theatre performances: Upcoming Relaxed Performances – ATG Tickets - United Kingdom

Relaxed performance in Kent/Medway: Relaxed performance of Jack and the Beanstalk: December 2024 - Medway Tickets Live

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'Mission Impossible'

Tue, 16 Jul 2024 09:00:14 GMT

Our family carers are back talking about the summer holidays. This episode includes honest conversations about the challenges and creative ways to overcome these, keeping everyone including siblings happy and entertained, and the simple joy of a hose pipe in the garden! There’s also some top tips for places to go in Kent and how to manage flying further afield. So whether you are staying home or getting away, there is something for everybody from others who ‘get it’.

Episode links

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

CBF Family Carers’ Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

CBF Private Facebook Group: (1) The CBF Family Forum | Facebook

Peer Support from The CBF: Peer support - Challenging Behaviour Foundation

Quick read guide to Challenging Behaviour: Quick read challenging behaviour guide

Activities to do at home: Activities-for-Children-Young-People-or-Adults-with-Severe-Learning-Disabilities-to-do-at-Home-2022.pdf (challengingbehaviour.org.uk)

Port Lympne Wild Animal Park: Port Lympne Safari Park, Wild Animal Reserve & Hotel | The Aspinall Foundation

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“Another way of not meeting people”

Fri, 22 Dec 2023 11:03:52 GMT

Back in September on a very hot day we invited three Kent mums who, despite living within a few miles of each other, had never met, to join us for an afternoon. This episode is about the importance of connecting with others ‘get it’ in the way that only another family carer of someone with severe learning disabilities can

Episode links:

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717

Peer support from the CBF: Peer support - Challenging Behaviour Foundation

Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf

Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation

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“Wine is not the answer, earbuds help”

Fri, 22 Dec 2023 10:41:55 GMT

A chat with Maria, whose adult son lives at home with her, about her experience of having a carers assessment. Maria tells us of the support that she has received in the past, the types of questions she was asked and why everyone should request a carers assessment.

Episode links:

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

Carers assessments: Accessing Support with a Carers Assessment (challengingbehaviour.org.uk)

CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717

Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf

Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation

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Christmas time shredded paper and doughballs

Fri, 22 Dec 2023 01:24:58 GMT

Ahh it's holiday season and what could go wrong? Whatever you're celebrating at this time of year it can be a wonderful time to catch up with friends and family... or a challenging time with changes to routine, so many different sights and smells, and far far far too much excitement. In this special episode we talk to our family podcast guests about how they celebrate the festive season and their tips on what works for them to have the day they and their loved ones need.

Episode links:

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717

Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf

Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation

Crisis Support for urgent help or emotional support over the holiday period Crisis-support.pdf (challengingbehaviour.org.uk)

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“I give myself permission”

Thu, 21 Dec 2023 22:53:55 GMT

Eva contacted the CBF to tell us that she’d recently given herself permission to take time for herself and she shared a list of amazing activities that she’d been trying out – so of course we needed to speak to her about these interesting activities to hear how they had helped with her overall well being.

Episode links:

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

Carers Assessments: Accessing Support with a Carers Assessment (challengingbehaviour.org.uk)

CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717

Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf

Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.

“In boating ponds and ornamental pools”

Tue, 19 Dec 2023 09:28:18 GMT

This episode is for anyone who might be having a day where they think – I can’t face going out. Kate tells us about the challenges of navigating days out with her daughter’s obsessions and how over the years she’s become more upfront and honest with her family and friends about what to expect on a day out with them.

Episode links:

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation

CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717

Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf

Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation

Hosted on Acast. See acast.com/privacy for more information.

“So much of life is I’m terribly sorry, I’m so sorry”

Thu, 14 Dec 2023 16:17:18 GMT

Challenge Accepted kicks off! We speak with Shaun writerof the BBC series There She Goes and his wife Sarah , about the ups and downs of life with their daughter Joey and the impact of the show.

Episode links:

Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation

There She Goes on BBC iPlayer: BBC iPlayer - There She Goes

Peer support from the CBF: Peer support - Challenging Behaviour Foundation

Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf

Hosted on Acast. See acast.com/privacy for more information.