60 acast.com What the Ef?! https://www.whattheefpodcast.com/ en What the EF What the EF What the Ef?! is the podcast that says out loud what everyone else with epilepsy is thinking: WTF is happening right now?! Hosted by Landis Wiedner, this show unpacks the unfiltered, often hilarious, sometimes heartbreaking realities of life with epilepsy. Each week, Landis brings together neurologists, advocates, celebrities, caregivers, and everyday people to share raw stories, expert insights, and those “you-can’t-make-this-up” epilepsy moments no one talks about—but everyone should.


It’s equal parts education, community, and comic relief. Whether you’re living with seizures, supporting someone who is, or just curious to learn more, this show creates an approachable, stigma-busting space where laughter and real talk fuel change.


⚡ Epilepsy • Seizures • Awareness • Advocacy • WTF moments ⚡


Special thanks to SK Life Science and Neurelis for sponsoring 2024 and supporting conversations that matter.


Disclaimer: This podcast is for informational and entertainment purposes only. Nothing shared here should be taken as medical advice. Always consult your physician or qualified healthcare provider for diagnosis and treatment.

Hosted on Acast. See acast.com/privacy for more information.

]]> What the Ef?! is the podcast that says out loud what everyone else with epilepsy is thinking: WTF is happening right now?! Hosted by Landis Wiedner, this show unpacks the unfiltered, often hilarious, sometimes heartbreaking realities of life with epilepsy. Each week, Landis brings together neurologists, advocates, celebrities, caregivers, and everyday people to share raw stories, expert insights, and those “you-can’t-make-this-up” epilepsy moments no one talks about—but everyone should.


It’s equal parts education, community, and comic relief. Whether you’re living with seizures, supporting someone who is, or just curious to learn more, this show creates an approachable, stigma-busting space where laughter and real talk fuel change.


⚡ Epilepsy • Seizures • Awareness • Advocacy • WTF moments ⚡


Special thanks to SK Life Science and Neurelis for sponsoring 2024 and supporting conversations that matter.


Disclaimer: This podcast is for informational and entertainment purposes only. Nothing shared here should be taken as medical advice. Always consult your physician or qualified healthcare provider for diagnosis and treatment.

Hosted on Acast. See acast.com/privacy for more information.

]]> true What the EF info+685d870247311de1b6040723@mg-eu.acast.com 685d870247311de1b6040723 what-the-ef https://anchor.fm/s/b3dcf9ac/podcast/rss episodic https://assets.pippa.io/shows/685d870247311de1b6040723/1758810007055-c7341022-c9b5-4c40-9c77-160ece528223.jpeg https://www.whattheefpodcast.com/ What the Ef?! https://feeds.acast.com/public/shows/685d870247311de1b6040723 Seizures Every Day, Every Night with Mia Randell Seizures Every Day, Every Night with Mia Randell Tue, 03 Mar 2026 10:30:00 GMT 48:06 69a5b6cc3214c3197d644928 false https://shows.acast.com/what-the-ef/episodes/seizures-every-day-every-night-with-mia-randell 69a5b6cc3214c3197d644928 685d870247311de1b6040723 seizures-every-day-every-night-with-mia-randell full 10 8 Five years of memories: gone. Landis sits down with Mia, who lost most of high school to undiagnosed epilepsy—and no, the memories don’t come back if you show her photos (people keep trying). She still has seizures every day and every night—and yes, she’s still doing life anyway. Mia shares her vibrant approach to life when memory, sleep, and certainty are a luxury.


Be sure to follow the podcast on Instagram, YouTube, & TikTok! @whattheefpodcast


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, Danny Did Foundation, & Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> Five years of memories: gone. Landis sits down with Mia, who lost most of high school to undiagnosed epilepsy—and no, the memories don’t come back if you show her photos (people keep trying). She still has seizures every day and every night—and yes, she’s still doing life anyway. Mia shares her vibrant approach to life when memory, sleep, and certainty are a luxury.


Be sure to follow the podcast on Instagram, YouTube, & TikTok! @whattheefpodcast


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, Danny Did Foundation, & Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> How to Actually Sleep Better with Dr. Chris Allen (aka Sleep Dr. Chris) How to Actually Sleep Better with Dr. Chris Allen (aka Sleep Dr. Chris) Tue, 24 Feb 2026 10:00:00 GMT 44:13 699c98783a5156c5d2a57e65 false https://shows.acast.com/what-the-ef/episodes/how-to-actually-sleep-better-with-dr-chris-allen-aka-sleep-d 699c98783a5156c5d2a57e65 685d870247311de1b6040723 how-to-actually-sleep-better-with-dr-chris-allen-aka-sleep-d full 10 7 Are you a late-night scroller who swears it “helps you relax”? Yeah… this episode is for you. Landis sits down with neurologist and sleep specialist Dr. Chris Allen to break down how to actually build better sleep habits with epilepsy — not just why sleep matters, but what to do when your brain won’t shut off.


Tune in for realistic tools that can help protect your sleep — and your seizure threshold — without turning into a monk or throwing your phone across the room.


Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast


Check out more from Sleep Dr. Chris here: https://www.sleepdrchris.com/


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors SK life science & Neurelis AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> Are you a late-night scroller who swears it “helps you relax”? Yeah… this episode is for you. Landis sits down with neurologist and sleep specialist Dr. Chris Allen to break down how to actually build better sleep habits with epilepsy — not just why sleep matters, but what to do when your brain won’t shut off.


Tune in for realistic tools that can help protect your sleep — and your seizure threshold — without turning into a monk or throwing your phone across the room.


Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast


Check out more from Sleep Dr. Chris here: https://www.sleepdrchris.com/


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors SK life science & Neurelis AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> Being a Teacher With Epilepsy with Charlie Dishman Being a Teacher With Epilepsy with Charlie Dishman Tue, 17 Feb 2026 10:30:00 GMT 42:59 69937034d85aecd27a5f3d9f false https://shows.acast.com/what-the-ef/episodes/being-a-teacher-with-epilepsy-with-charlie-dishman 69937034d85aecd27a5f3d9f 685d870247311de1b6040723 being-a-teacher-with-epilepsy-with-charlie-dishman full 10 6 Teaching high school is hard. Teaching high school with epilepsy? Next level. Charlie joins Landis to talk about navigating the classroom with epilepsy — including student teaching, when seizures required using a wheelchair. 


They share what it’s taken to advocate for safety at work, why being friends with the school nurse is basically a survival skill, and why explaining epilepsy to new students every year feels a lot like coming out: vulnerable, emotional, and rooted in the hope of being accepted.


Because sometimes the hardest part isn’t the seizures — it’s explaining them, repeatedly, forever.


Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, the Danny Did Foundation, & Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> Teaching high school is hard. Teaching high school with epilepsy? Next level. Charlie joins Landis to talk about navigating the classroom with epilepsy — including student teaching, when seizures required using a wheelchair. 


They share what it’s taken to advocate for safety at work, why being friends with the school nurse is basically a survival skill, and why explaining epilepsy to new students every year feels a lot like coming out: vulnerable, emotional, and rooted in the hope of being accepted.


Because sometimes the hardest part isn’t the seizures — it’s explaining them, repeatedly, forever.


Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, the Danny Did Foundation, & Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> Do I Need a Seizure Action Plan? (Probably. Here’s Why.) with Jason Raether, RN Do I Need a Seizure Action Plan? (Probably. Here’s Why.) with Jason Raether, RN Tue, 10 Feb 2026 10:30:00 GMT 41:30 698622a79a20cfbf33cb0731 false https://shows.acast.com/what-the-ef/episodes/who-needs-a-seizure-action-plan-with-jason-raether-rn 698622a79a20cfbf33cb0731 685d870247311de1b6040723 who-needs-a-seizure-action-plan-with-jason-raether-rn full 10 5 This week, Landis sits down with Jason — a longtime nurse and fellow person with epilepsy — to talk about what seizure action plans really look like in real life. Not the perfect-on-paper version. The messy, human, constantly evolving one.


Jason shares his own epilepsy journey, what it’s like as a school nurse, caring for hundreds of kids while managing seizures himself, and why seizure action plans matter more than most of us realize. 


They unpack what should actually be included, how plans change over time, and why not having one (yes, even as an advocate 👀) is way more common than we admit. Note: Landis openly admits she didn’t have one at the time of recording… but swore she would by the time this episode came out. Accountability, baby.


👉 Want help creating your own seizure action plan?

Copy & paste into your phone: https://www.whattheefpodcast.com/resources

More templates: https://seizureactionplans.org/sap-examples/


Shout out to sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America! Thank you for supporting “What the Ef?!” podcast! 

Hosted on Acast. See acast.com/privacy for more information.

]]> This week, Landis sits down with Jason — a longtime nurse and fellow person with epilepsy — to talk about what seizure action plans really look like in real life. Not the perfect-on-paper version. The messy, human, constantly evolving one.


Jason shares his own epilepsy journey, what it’s like as a school nurse, caring for hundreds of kids while managing seizures himself, and why seizure action plans matter more than most of us realize. 


They unpack what should actually be included, how plans change over time, and why not having one (yes, even as an advocate 👀) is way more common than we admit. Note: Landis openly admits she didn’t have one at the time of recording… but swore she would by the time this episode came out. Accountability, baby.


👉 Want help creating your own seizure action plan?

Copy & paste into your phone: https://www.whattheefpodcast.com/resources

More templates: https://seizureactionplans.org/sap-examples/


Shout out to sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America! Thank you for supporting “What the Ef?!” podcast! 

Hosted on Acast. See acast.com/privacy for more information.

]]> Why Your Neurologist Might Be on TikTok with Dr. Jessica Lowe Why Your Neurologist Might Be on TikTok with Dr. Jessica Lowe Tue, 03 Feb 2026 10:00:00 GMT 51:40 697ceac6f0f157225a4b30d1 false https://shows.acast.com/what-the-ef/episodes/why-your-neurologist-might-be-on-tiktok-with-dr-jessica-lowe 697ceac6f0f157225a4b30d1 685d870247311de1b6040723 why-your-neurologist-might-be-on-tiktok-with-dr-jessica-lowe full 10 4 If you’ve ever Googled your symptoms at 2 a.m. and immediately decided it was “probably fine but also definitely fatal” — this one’s for you.


Landis sits down with neurologist and epileptologist Dr. Jessica Lowe — aka Dr. Brain Barbie — to talk about the messy middle between medicine and social media. From meeting patients where they already are (hi, TikTok), to the fear doctors have around posting publicly, to why showing personality — pink nails and all — can actually help patients feel safer, heard, and more confident walking into appointments.


Make sure to follow the podcast on all channels for more convos!

Instagram, YouTube, TikTok


Learn more here: whattheefpodcast.com


HUGE shout outs to the folks that continue to keep this podcast going! Sponsors Neurelis & SK life science and community partners Epilepsy Foundation of America, the Danny Did Foundation, and Epilepsy Alliance America!



Hosted on Acast. See acast.com/privacy for more information.

]]> If you’ve ever Googled your symptoms at 2 a.m. and immediately decided it was “probably fine but also definitely fatal” — this one’s for you.


Landis sits down with neurologist and epileptologist Dr. Jessica Lowe — aka Dr. Brain Barbie — to talk about the messy middle between medicine and social media. From meeting patients where they already are (hi, TikTok), to the fear doctors have around posting publicly, to why showing personality — pink nails and all — can actually help patients feel safer, heard, and more confident walking into appointments.


Make sure to follow the podcast on all channels for more convos!

Instagram, YouTube, TikTok


Learn more here: whattheefpodcast.com


HUGE shout outs to the folks that continue to keep this podcast going! Sponsors Neurelis & SK life science and community partners Epilepsy Foundation of America, the Danny Did Foundation, and Epilepsy Alliance America!



Hosted on Acast. See acast.com/privacy for more information.

]]> Diagnosed with Epilepsy as an Adult (finally) with Lakesha Floyd Diagnosed with Epilepsy as an Adult (finally) with Lakesha Floyd Tue, 27 Jan 2026 10:00:00 GMT 43:46 6977b5f94366b0662d716159 false https://shows.acast.com/what-the-ef/episodes/diagnosed-with-epilepsy-as-an-adult-finally-with-lakesha-flo 6977b5f94366b0662d716159 685d870247311de1b6040723 diagnosed-with-epilepsy-as-an-adult-finally-with-lakesha-flo full 10 3 Anyone else been told their seizures were “just stress”? That’s what doctors told Lakesha Floyd for DECADES until she was finally diagnosed with epilepsy at 45. 


Lakesha shares how her seizure years of being dismissed, the complicated emotions that come with an adult diagnosis, and what happens when denial stops feeling safe. It’s a conversation about finding self-trust when your world is turned upside down and not letting “it’s just stress” be the final answer.


Because if you need to hear it today: epilepsy is not the end.


Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast


Learn more here: whattheefpodcast.com


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors SK life science & Neurelis AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America.

Hosted on Acast. See acast.com/privacy for more information.

]]> Anyone else been told their seizures were “just stress”? That’s what doctors told Lakesha Floyd for DECADES until she was finally diagnosed with epilepsy at 45. 


Lakesha shares how her seizure years of being dismissed, the complicated emotions that come with an adult diagnosis, and what happens when denial stops feeling safe. It’s a conversation about finding self-trust when your world is turned upside down and not letting “it’s just stress” be the final answer.


Because if you need to hear it today: epilepsy is not the end.


Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast


Learn more here: whattheefpodcast.com


Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors SK life science & Neurelis AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America.

Hosted on Acast. See acast.com/privacy for more information.

]]> How Do I Actually Track My Seizures? with Mukki Gill How Do I Actually Track My Seizures? with Mukki Gill Tue, 20 Jan 2026 10:00:00 GMT 36:08 696a84221e4bca00bf023a07 false https://shows.acast.com/what-the-ef/episodes/how-do-i-actually-track-my-seizures-with-mukki-gill 696a84221e4bca00bf023a07 685d870247311de1b6040723 how-do-i-actually-track-my-seizures-with-mukki-gill full 10 2 In this convo with Mukki Gill, founder of ZOR!, she talks about changing the game in epilepsy apps by synthesizing all of that data into one clear, usable place. After watching her mom take notes that look like “Santa’s list” for her brother’s Dravet’s Syndrome, Mukki wanted to create a simpler, more useful format for people with epilepsy.


My seizure info seems to be everywhere—Notes app, calendars, wearables, half-remembered symptoms, and “I’ll explain it to my doctor somehow.” Enter the ZOR! app, which takes data from your Apple Watch to coexist with your epilepsy info. No matter searching for patterns–this app does it for you!  


Oh, and have you ever wondered how seizure alert dogs know when a seizure is coming? Mukki has, too–and is planning on elevating the ZOR! app to use that science to *predict* our seizures! Get ready to be inspired and excited about some life changing tech!


Learn more and sign up for ZOR! app: https://zor.llc/


Be sure to follow @whattheefpodcast on Insta, YouTube, and TikTok for more on the good, the bad, and the hilarious parts of living with epilepsy.

Learn more here: whattheefpodcast.com


Huge shout out to the people who believe in this podcast! Sponsors SK life science & Neurelis and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!


Hosted on Acast. See acast.com/privacy for more information.

]]> In this convo with Mukki Gill, founder of ZOR!, she talks about changing the game in epilepsy apps by synthesizing all of that data into one clear, usable place. After watching her mom take notes that look like “Santa’s list” for her brother’s Dravet’s Syndrome, Mukki wanted to create a simpler, more useful format for people with epilepsy.


My seizure info seems to be everywhere—Notes app, calendars, wearables, half-remembered symptoms, and “I’ll explain it to my doctor somehow.” Enter the ZOR! app, which takes data from your Apple Watch to coexist with your epilepsy info. No matter searching for patterns–this app does it for you!  


Oh, and have you ever wondered how seizure alert dogs know when a seizure is coming? Mukki has, too–and is planning on elevating the ZOR! app to use that science to *predict* our seizures! Get ready to be inspired and excited about some life changing tech!


Learn more and sign up for ZOR! app: https://zor.llc/


Be sure to follow @whattheefpodcast on Insta, YouTube, and TikTok for more on the good, the bad, and the hilarious parts of living with epilepsy.

Learn more here: whattheefpodcast.com


Huge shout out to the people who believe in this podcast! Sponsors SK life science & Neurelis and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!


Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Can I Play Pro Sports with Epilepsy? Yes, If You're Spenser Jaye.]]> Tue, 13 Jan 2026 10:00:00 GMT 49:58 696553781f21449d6dd9121e false https://shows.acast.com/what-the-ef/episodes/being-a-pro-athlete-living-with-epilepsy-with-spenser-jaye 696553781f21449d6dd9121e 685d870247311de1b6040723 being-a-pro-athlete-living-with-epilepsy-with-spenser-jaye full 10 1 This week I’m joined by Spenser Jaye—a former D1 and professional soccer player who’s been navigating epilepsy since she was 13. We get into what it really looks like to chase big goals when your nervous system has its own agenda: the decision points, the fear, the disclosure question, the stuff people don’t see… and the ways support can change everything.


We also talk about why Spenser built 1in26 Athlete Foundation—a space for athletes and active people with epilepsy to feel included, capable, and genuinely safe (without being told “you can’t” as the default).


If you’ve ever wondered, Can I still do the thing? — this one’s for you.


Learn more about 1in26 Athlete here: oneand26athlete.org


Be sure to follow @whattheefpodcast on Insta, YouTube, and TikTok for more on the good, the bad, and the hilarious parts of living with epilepsy.

Learn more here: whattheefpodcast.com


THANK YOU to these folks for keeping the podcast kicking! Sponsors SK life science & Neurelis and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> This week I’m joined by Spenser Jaye—a former D1 and professional soccer player who’s been navigating epilepsy since she was 13. We get into what it really looks like to chase big goals when your nervous system has its own agenda: the decision points, the fear, the disclosure question, the stuff people don’t see… and the ways support can change everything.


We also talk about why Spenser built 1in26 Athlete Foundation—a space for athletes and active people with epilepsy to feel included, capable, and genuinely safe (without being told “you can’t” as the default).


If you’ve ever wondered, Can I still do the thing? — this one’s for you.


Learn more about 1in26 Athlete here: oneand26athlete.org


Be sure to follow @whattheefpodcast on Insta, YouTube, and TikTok for more on the good, the bad, and the hilarious parts of living with epilepsy.

Learn more here: whattheefpodcast.com


THANK YOU to these folks for keeping the podcast kicking! Sponsors SK life science & Neurelis and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> 5 Tips in 5 Minutes on Surviving the Holidays! 5 Tips in 5 Minutes on Surviving the Holidays! Tue, 16 Dec 2025 18:00:00 GMT 5:46 69418c5e443ad989139bcfa8 false https://shows.acast.com/what-the-ef/episodes/5-tips-in-5-minutes-on-surviving-the-holidays 69418c5e443ad989139bcfa8 685d870247311de1b6040723 5-tips-in-5-minutes-on-surviving-the-holidays full 9 9 Every year, my brain has a fun holiday tradition of doling out seizures. Like my epilepsy is Santa but with a very dark sense of humor.


So this year I came up with 5 strategies to (hopefully) mitigate the holiday seizen. From bathrooms to booze to holiday blues--I'm hoping these tips help!


Tune into this 5-minute What the Elf?! episode and let me know if any of these work for you!


But above all, remember no matter how many strategies we put in place, seizures are not our fault. They happen when we do everything "right." So please be kind to yourself. I promise you are not alone in this.


Thank to you the amazing support we had in 2025 from sponsors Neurelis & SK life science and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> Every year, my brain has a fun holiday tradition of doling out seizures. Like my epilepsy is Santa but with a very dark sense of humor.


So this year I came up with 5 strategies to (hopefully) mitigate the holiday seizen. From bathrooms to booze to holiday blues--I'm hoping these tips help!


Tune into this 5-minute What the Elf?! episode and let me know if any of these work for you!


But above all, remember no matter how many strategies we put in place, seizures are not our fault. They happen when we do everything "right." So please be kind to yourself. I promise you are not alone in this.


Thank to you the amazing support we had in 2025 from sponsors Neurelis & SK life science and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

]]> I Didn’t Know I Could Ask My Doctor That with Dr. Claude Steriade I Didn’t Know I Could Ask My Doctor That with Dr. Claude Steriade Tue, 28 Oct 2025 09:30:00 GMT 48:02 68ffd3db4bfd27f82dd070c5 false https://shows.acast.com/what-the-ef/episodes/i-didnt-know-i-could-ask-my-doctor-that-with-dr-claude-steri 68ffd3db4bfd27f82dd070c5 685d870247311de1b6040723 i-didnt-know-i-could-ask-my-doctor-that-with-dr-claude-steri full 9 8 Ever sit in your doctor’s office like, “Wait… what did you just say?” Dr. Claude Steriade, an epileptologist at NYU, is here to translate the medical jargon and hand over her playbook for better communication with your doc.


She shares the *one magical thought* she wishes every patient could have, explains autoimmune epilepsy (the sneaky diagnosis that hides in plain sight), and shows how to ask for the right tests.


Oh, and don’t miss her 3 game-changing tips for making conversations with your doctor way less awkward.


Follow on YouTube, Instagram and TikTok for extra clips and community convos!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, Epilepsy Alliance of American AND our sponsors Neurelis and SK life science! Thanks for helping bridge the communication gap in the epilepsy world!

Hosted on Acast. See acast.com/privacy for more information.

]]> Ever sit in your doctor’s office like, “Wait… what did you just say?” Dr. Claude Steriade, an epileptologist at NYU, is here to translate the medical jargon and hand over her playbook for better communication with your doc.


She shares the *one magical thought* she wishes every patient could have, explains autoimmune epilepsy (the sneaky diagnosis that hides in plain sight), and shows how to ask for the right tests.


Oh, and don’t miss her 3 game-changing tips for making conversations with your doctor way less awkward.


Follow on YouTube, Instagram and TikTok for extra clips and community convos!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, Epilepsy Alliance of American AND our sponsors Neurelis and SK life science! Thanks for helping bridge the communication gap in the epilepsy world!

Hosted on Acast. See acast.com/privacy for more information.

]]> I Woke Up To A Boot Kicking In My Windshield with Brian Garcia de Leon I Woke Up To A Boot Kicking In My Windshield with Brian Garcia de Leon Tue, 21 Oct 2025 09:00:00 GMT 33:24 68f6940e80f266774087f485 false https://shows.acast.com/what-the-ef/episodes/i-woke-up-to-a-boot-kicking-in-my-windshield-with-brian-garc 68f6940e80f266774087f485 685d870247311de1b6040723 i-woke-up-to-a-boot-kicking-in-my-windshield-with-brian-garc full 9 7 The first thing Brian remembers after his first seizure is a boot smashing through his semi-truck windshield—strangers pulling him from the wreckage as his world changed forever. After a misdiagnosis, years of drug-resistant epilepsy, and 30 seizures a month, Brian found the strength to keep fighting. With cutting edge brain technology—and with the steady support of his loved ones—he’s celebrating seven months seizure-free and a brand-new chapter.


Follow on socials for more convos and clips!

YouTube:  @WhatTheEfPodcast 

Insta: @whattheefpodcast

TikTok: @what.the.ef.podcast


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation & Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Thank you for keeping this community going!


Learn more about Legacy Bridges Foundation that helped Brian through recovery: https://www.legacybridgesfoundation.org/

Hosted on Acast. See acast.com/privacy for more information.

]]> The first thing Brian remembers after his first seizure is a boot smashing through his semi-truck windshield—strangers pulling him from the wreckage as his world changed forever. After a misdiagnosis, years of drug-resistant epilepsy, and 30 seizures a month, Brian found the strength to keep fighting. With cutting edge brain technology—and with the steady support of his loved ones—he’s celebrating seven months seizure-free and a brand-new chapter.


Follow on socials for more convos and clips!

YouTube:  @WhatTheEfPodcast 

Insta: @whattheefpodcast

TikTok: @what.the.ef.podcast


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation & Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Thank you for keeping this community going!


Learn more about Legacy Bridges Foundation that helped Brian through recovery: https://www.legacybridgesfoundation.org/

Hosted on Acast. See acast.com/privacy for more information.

]]> *LIVE* from Lisbon! Backstage Pass to the International Epilepsy Congress *LIVE* from Lisbon! Backstage Pass to the International Epilepsy Congress Tue, 14 Oct 2025 09:00:00 GMT 42:42 68ed55bdf30b8c4f91ef350c false https://shows.acast.com/what-the-ef/episodes/live-from-lisbon-backstage-pass-to-the-international-epileps 68ed55bdf30b8c4f91ef350c 685d870247311de1b6040723 live-from-lisbon-backstage-pass-to-the-international-epileps full 9 6 What happens when thousands of epilepsy nerds take over Lisbon? Tune in for chats with people from all over the world–Argentina, UK, Australia, Colombia, Kenya and more! Convos about the ethics of AI in epilepsy treatment, the move from pediatric to adult care, to how gut health affects seizures.


Turns out, the biggest conference in the world isn’t just about science—it’s about connection, curiosity, and a whole lot of hope. 🌍💜


Subscribe YouTube, follow Instagram and TikTok for extra clips and community convos!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Thank you for supporting the epilepsy sphere!

Hosted on Acast. See acast.com/privacy for more information.

]]> What happens when thousands of epilepsy nerds take over Lisbon? Tune in for chats with people from all over the world–Argentina, UK, Australia, Colombia, Kenya and more! Convos about the ethics of AI in epilepsy treatment, the move from pediatric to adult care, to how gut health affects seizures.


Turns out, the biggest conference in the world isn’t just about science—it’s about connection, curiosity, and a whole lot of hope. 🌍💜


Subscribe YouTube, follow Instagram and TikTok for extra clips and community convos!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Thank you for supporting the epilepsy sphere!

Hosted on Acast. See acast.com/privacy for more information.

]]> Why Does This Research Feel Like a Hug? with Dr. Sandi Sam Why Does This Research Feel Like a Hug? with Dr. Sandi Sam Wed, 08 Oct 2025 16:19:12 GMT 49:03 68e41caa1601518de06aa70d false https://shows.acast.com/what-the-ef/episodes/why-does-this-research-feel-like-a-hug-with-dr-sandi-sam 68e41caa1601518de06aa70d 685d870247311de1b6040723 why-does-this-research-feel-like-a-hug-with-dr-sandi-sam full 9 5 Ever feel like you keep shouting, "Epilepsy is more than seizures!" but no one’s listening? Medical rockstar Dr. Sandi Lam certainly hears you, which is why she’s spearheading a massive, groundbreaking study focused on Lennox-Gastaut Syndrome (LGS) that aims to change healthcare forever. 


Dr. Lam shares how she's trying to measure the "unmeasurable," like how treatment affects behavior, communication, and overall quality of life. (It sure does!) She’s also addressing caregiver burden and family support needs.


Tune in to hear why this patient-led science is so revolutionary, and how this study is transforming the future of epilepsy care.


Follow the podcast on YouTube, Instagram and TikTok for extra clips and community convos!


Learn more about Dr. Lam's research here: www.lgsresearch.org


Thanks for ALL the hugs from our community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science!

Hosted on Acast. See acast.com/privacy for more information.

]]> Ever feel like you keep shouting, "Epilepsy is more than seizures!" but no one’s listening? Medical rockstar Dr. Sandi Lam certainly hears you, which is why she’s spearheading a massive, groundbreaking study focused on Lennox-Gastaut Syndrome (LGS) that aims to change healthcare forever. 


Dr. Lam shares how she's trying to measure the "unmeasurable," like how treatment affects behavior, communication, and overall quality of life. (It sure does!) She’s also addressing caregiver burden and family support needs.


Tune in to hear why this patient-led science is so revolutionary, and how this study is transforming the future of epilepsy care.


Follow the podcast on YouTube, Instagram and TikTok for extra clips and community convos!


Learn more about Dr. Lam's research here: www.lgsresearch.org


Thanks for ALL the hugs from our community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science!

Hosted on Acast. See acast.com/privacy for more information.

]]> When Your Memory Ghosts You...And You Still Write a Memoir with Stacia Kalinoski When Your Memory Ghosts You...And You Still Write a Memoir with Stacia Kalinoski Tue, 30 Sep 2025 09:00:00 GMT 38:36 68daa78a744bd23441e7283e false https://www.whattheefpodcast.com/ 68daa78a744bd23441e7283e 685d870247311de1b6040723 when-your-memory-ghosts-youand-you-still-write-a-memoir-with full 9 4 Stacia Kalinoski has worn many hats—news reporter, marathon runner, author, filmmaker, and substitute teacher—but epilepsy changed the course of her life in ways she never expected. In this episode, Stacia gets real about the uphill battle that inspired her memoir Racing Uphill: the denial, the career shifts, and the moment she said yes to brain surgery. We talk about what friendship looks like when someone literally has to email your mom, why memory feels like treasure, and how creativity helped her piece together the story epilepsy tried to erase.


Follow the podcast on YouTube, Instagram and TikTok for extra clips and community convos!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! We get to stay in the race because of y’all! 

Hosted on Acast. See acast.com/privacy for more information.

]]> Stacia Kalinoski has worn many hats—news reporter, marathon runner, author, filmmaker, and substitute teacher—but epilepsy changed the course of her life in ways she never expected. In this episode, Stacia gets real about the uphill battle that inspired her memoir Racing Uphill: the denial, the career shifts, and the moment she said yes to brain surgery. We talk about what friendship looks like when someone literally has to email your mom, why memory feels like treasure, and how creativity helped her piece together the story epilepsy tried to erase.


Follow the podcast on YouTube, Instagram and TikTok for extra clips and community convos!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! We get to stay in the race because of y’all! 

Hosted on Acast. See acast.com/privacy for more information.

]]> Introducing What the EF Introducing What the EF Mon, 29 Sep 2025 19:16:29 GMT 0:32 68dadb0d6d92c33f9cee20a9 false https://shows.acast.com/what-the-ef/episodes/introducing-what-the-ef 68dadb0d6d92c33f9cee20a9 685d870247311de1b6040723 introducing-what-the-ef trailer Welcome to What the EF. I’m Landis Wiedner and this show is all about the “what the…?” moments that come with living with epilepsy. We share the stories that are usually whispered about or brushed aside, and we do it with honesty, humour, and heart.


This podcast is for anyone who has epilepsy, loves someone who does, or just wants to understand what it’s really like. You’ll hear from people living with seizures, their families, doctors, researchers, and advocates. Sometimes it gets heavy, sometimes it gets ridiculous, and most of the time it’s a mix of both.


We’ve worked hard to make What the EF feel like a place where people belong... whether you’re here for comfort, for laughs, or just to feel a little less alone.

Hosted on Acast. See acast.com/privacy for more information.

]]> Welcome to What the EF. I’m Landis Wiedner and this show is all about the “what the…?” moments that come with living with epilepsy. We share the stories that are usually whispered about or brushed aside, and we do it with honesty, humour, and heart.


This podcast is for anyone who has epilepsy, loves someone who does, or just wants to understand what it’s really like. You’ll hear from people living with seizures, their families, doctors, researchers, and advocates. Sometimes it gets heavy, sometimes it gets ridiculous, and most of the time it’s a mix of both.


We’ve worked hard to make What the EF feel like a place where people belong... whether you’re here for comfort, for laughs, or just to feel a little less alone.

Hosted on Acast. See acast.com/privacy for more information.

]]> Changing the Game in Health Equity with Ayesha Akhtar Changing the Game in Health Equity with Ayesha Akhtar Tue, 23 Sep 2025 09:30:00 GMT 40:37 68d16a681215b9b4f6b89fea false https://www.whattheefpodcast.com/ 68d16a681215b9b4f6b89fea 685d870247311de1b6040723 changing-the-game-in-health-equity-with-ayesha-akhtar full 9 3 This week’s episode is one you’ll want to take notes on. Ayesha Akhtar, VP of Health Equity at the Epilepsy Foundation of Greater Chicago, isn’t just talking about change—she’s handing out the blueprint.

If you’ve ever wondered, “What can I actually do to make a difference for people with epilepsy?”—Ayesha’s got answers (and a few challenges you just might want to take on). Find out how education, advocacy, and community power can close the gaps—and how you can be part of it.


📲 Don’t forget to subscribe & follow on YouTube, Instagram and TikTok  for extra clips and community convos!


Big thanks to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND sponsors Neurelis and SK life science for keeping this community going strong.

Hosted on Acast. See acast.com/privacy for more information.

]]> This week’s episode is one you’ll want to take notes on. Ayesha Akhtar, VP of Health Equity at the Epilepsy Foundation of Greater Chicago, isn’t just talking about change—she’s handing out the blueprint.

If you’ve ever wondered, “What can I actually do to make a difference for people with epilepsy?”—Ayesha’s got answers (and a few challenges you just might want to take on). Find out how education, advocacy, and community power can close the gaps—and how you can be part of it.


📲 Don’t forget to subscribe & follow on YouTube, Instagram and TikTok  for extra clips and community convos!


Big thanks to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND sponsors Neurelis and SK life science for keeping this community going strong.

Hosted on Acast. See acast.com/privacy for more information.

]]> *LIVE* The Otherside Lounge -- Making Space for Epilepsy, Literally *LIVE* The Otherside Lounge -- Making Space for Epilepsy, Literally Tue, 16 Sep 2025 10:00:00 GMT 44:40 68c8958a666ba430d6ee6d19 false https://www.whattheefpodcast.com/ 68c8958a666ba430d6ee6d19 685d870247311de1b6040723 live-the-otherside-lounge-making-space-for-epilepsy-literall full 9 2 Coming in LIVE from the launch of the Otherside Lounge! 🎉 The Lounge is a brand-new space created for people with epilepsy to connect, decompress, and feel at home—whether at conferences or beyond. In this special episode, you’ll hear stories from the Lounge floor: why this space matters, what it feels like to finally have a spot designed with our community in mind, and how it’s already sparking conversations we didn’t know we needed. Think comfy couches, real talk, and zero judgment.


The Otherside Lounge is more than a hangout—it’s proof that when people with epilepsy come together, voices get louder, walls come down, and real change starts.


And don’t forget to follow the podcast on Instagram, YouTube, and TikTok for clips, behind-the-scenes, and more.


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, & Epilepsy Alliance AND our sponsors Neurelis and SK life science! Thank you for believing in this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> Coming in LIVE from the launch of the Otherside Lounge! 🎉 The Lounge is a brand-new space created for people with epilepsy to connect, decompress, and feel at home—whether at conferences or beyond. In this special episode, you’ll hear stories from the Lounge floor: why this space matters, what it feels like to finally have a spot designed with our community in mind, and how it’s already sparking conversations we didn’t know we needed. Think comfy couches, real talk, and zero judgment.


The Otherside Lounge is more than a hangout—it’s proof that when people with epilepsy come together, voices get louder, walls come down, and real change starts.


And don’t forget to follow the podcast on Instagram, YouTube, and TikTok for clips, behind-the-scenes, and more.


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, & Epilepsy Alliance AND our sponsors Neurelis and SK life science! Thank you for believing in this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> The Unofficial HR Guide to Epilepsy with Chynise Cunningham The Unofficial HR Guide to Epilepsy with Chynise Cunningham Tue, 09 Sep 2025 11:00:00 GMT 44:05 68befacbf7970b080f3b044b false https://www.whattheefpodcast.com/ 68befacbf7970b080f3b044b 685d870247311de1b6040723 the-unofficial-hr-guide-to-epilepsy-with-chynise-cunningham full 9 1 Chynise may be a Senior VP of HR, but don’t expect corporate jargon here. Instead, she’s dishing on what it’s like to juggle seizures, side effects, and the fine art of pretending you didn’t have a seizure while giving a presentation. We get into the messy reality of finding the right meds (think: speed dating, but with more brain fog), the awkwardness of telling people you have epilepsy (spoiler: it’s not in the employee handbook), and that friendship might just be the best health benefit out there. Plus, Chynise shares insider tips on what HR can actually do to support employees with medical conditions.


Follow @whattheefpodcast on Instagram for more epilepsy content!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Appreciate you for believing in this podcast! 

Hosted on Acast. See acast.com/privacy for more information.

]]> Chynise may be a Senior VP of HR, but don’t expect corporate jargon here. Instead, she’s dishing on what it’s like to juggle seizures, side effects, and the fine art of pretending you didn’t have a seizure while giving a presentation. We get into the messy reality of finding the right meds (think: speed dating, but with more brain fog), the awkwardness of telling people you have epilepsy (spoiler: it’s not in the employee handbook), and that friendship might just be the best health benefit out there. Plus, Chynise shares insider tips on what HR can actually do to support employees with medical conditions.


Follow @whattheefpodcast on Instagram for more epilepsy content!


Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Appreciate you for believing in this podcast! 

Hosted on Acast. See acast.com/privacy for more information.

]]> Come to the Lounge, Stay for the Community Come to the Lounge, Stay for the Community Tue, 17 Jun 2025 08:32:00 GMT 22:36 40e8c597-c670-4953-933d-66475005ba26 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Come-to-the-Lounge--Stay-for-the-Community-e34aop1 685d870a7cd58072a5f95f61 685d870247311de1b6040723 full 8 7 What if a neuro conference had a space that centered around people with epilepsy—not just as patients, but as creators, leaders, and connectors? Enter the Otherside Lounge, a first-of-its-kind experience launching this September at the New England Epilepsy Conference (NEEC) in Boston.

Part café, part gallery, part community hub, the Lounge is designed *by* people with epilepsy *for* people with epilepsy. It’s where music plays, conversations flow, and connection takes the spotlight. No pity. No pressure. Just people coming together to relax, recharge, and reimagine what living with epilepsy looks like.

And we want you there.

Whether you live with epilepsy, care for someone who does, or work in the field—you’re invited to join us at the Otherside Lounge, September 4–6, 2025. Let’s make sure our voices are not just heard—but connected.

Shout out to Community Partners Epilepsy Foundation of America & Danny Did Foundation and sponsors SK life science & Neurelis for making convos like this possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> What if a neuro conference had a space that centered around people with epilepsy—not just as patients, but as creators, leaders, and connectors? Enter the Otherside Lounge, a first-of-its-kind experience launching this September at the New England Epilepsy Conference (NEEC) in Boston.

Part café, part gallery, part community hub, the Lounge is designed *by* people with epilepsy *for* people with epilepsy. It’s where music plays, conversations flow, and connection takes the spotlight. No pity. No pressure. Just people coming together to relax, recharge, and reimagine what living with epilepsy looks like.

And we want you there.

Whether you live with epilepsy, care for someone who does, or work in the field—you’re invited to join us at the Otherside Lounge, September 4–6, 2025. Let’s make sure our voices are not just heard—but connected.

Shout out to Community Partners Epilepsy Foundation of America & Danny Did Foundation and sponsors SK life science & Neurelis for making convos like this possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> The Fight to Save a Potential Cure for Epilepsy with Dr. Avtar Roopra and Anne Morgan Giroux The Fight to Save a Potential Cure for Epilepsy with Dr. Avtar Roopra and Anne Morgan Giroux Tue, 10 Jun 2025 10:00:00 GMT 46:06 0f06156d-086c-476a-98cf-c56fa75dc261 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/The-Fight-to-Save-a-Potential-Cure-for-Epilepsy-with-Dr--Avtar-Roopra-and-Anne-Morgan-Giroux-e3410g5 685d871347311de1b6040d79 685d870247311de1b6040723 full 8 6 Dr. Avtar Roopra couldn’t believe what he was seeing: a medication that *stopped seizures* in mice—even AFTER they stopped taking it. No seizures. No meds. And even better? It restored cognitive function. Skeptical? So was Roopra and other scientists—until they repeated the results twice with the same outcome.

Even more shocking? This drug is already FDA-approved for other chronic conditions. So why isn’t this a breakthrough epilepsy treatment? Because NIH funding cuts have brought this promising research to a halt—and put its future in jeopardy.

Anne Morgan Giroux, founder of Lily’s Fund, which provided the seed funding for this research, joins us to explain why this matters and what you can do to help.

Donate to Lily's Fund: https://lilysfund.org/give/

Ask your reps to restore NIH funding: https://5calls.org/issue/nih-nsf-funding-cuts/

Shout out to Community Partners Epilepsy Foundation of America & the Danny Did Foundation and sponsors Neurelis & SK life science for making convos like this possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> Dr. Avtar Roopra couldn’t believe what he was seeing: a medication that *stopped seizures* in mice—even AFTER they stopped taking it. No seizures. No meds. And even better? It restored cognitive function. Skeptical? So was Roopra and other scientists—until they repeated the results twice with the same outcome.

Even more shocking? This drug is already FDA-approved for other chronic conditions. So why isn’t this a breakthrough epilepsy treatment? Because NIH funding cuts have brought this promising research to a halt—and put its future in jeopardy.

Anne Morgan Giroux, founder of Lily’s Fund, which provided the seed funding for this research, joins us to explain why this matters and what you can do to help.

Donate to Lily's Fund: https://lilysfund.org/give/

Ask your reps to restore NIH funding: https://5calls.org/issue/nih-nsf-funding-cuts/

Shout out to Community Partners Epilepsy Foundation of America & the Danny Did Foundation and sponsors Neurelis & SK life science for making convos like this possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Guess Who's Back at the News Desk with Sarah Carlson]]> Tue, 03 Jun 2025 09:00:00 GMT 33:28 3db7a82a-26bf-4c94-9851-d37035d11e26 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Guess-Whos-Back-at-the-News-Desk-with-Sarah-Carlson-e33mou6 685d871447311de1b6040dc2 685d870247311de1b6040723 full 8 5 She left her job as a newscaster because of epilepsy—and now she’s back at the same anchor desk. In this episode, Sarah Carlson talks about pretending she didn’t miss the job (she did), how she seized the opportunity to get back in, and the joy of being four years seizure free...while knowing her brain is still unpredictable.

We also get into survivor’s guilt, pressure to be perfect with sleep, and whether she’d be anchoring if she were still seizing.

Big thanks to our community partners Epilepsy Foundation of America and the Danny Did Foundation as well as sponsors Neurelis and SK life science!

The Faces of Medicaid - a story by Sarah Carlson: https://www.channel3000.com/video/the-faces-of-medicaid/video_411e072c-ecd8-57c0-ae07-e3838913f8df.html

Athletic support for people with disabilities: https://www.achillesinternational.org/



Hosted on Acast. See acast.com/privacy for more information.

]]> She left her job as a newscaster because of epilepsy—and now she’s back at the same anchor desk. In this episode, Sarah Carlson talks about pretending she didn’t miss the job (she did), how she seized the opportunity to get back in, and the joy of being four years seizure free...while knowing her brain is still unpredictable.

We also get into survivor’s guilt, pressure to be perfect with sleep, and whether she’d be anchoring if she were still seizing.

Big thanks to our community partners Epilepsy Foundation of America and the Danny Did Foundation as well as sponsors Neurelis and SK life science!

The Faces of Medicaid - a story by Sarah Carlson: https://www.channel3000.com/video/the-faces-of-medicaid/video_411e072c-ecd8-57c0-ae07-e3838913f8df.html

Athletic support for people with disabilities: https://www.achillesinternational.org/



Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[What's Your Blast Radius? with Captain Jack Somers]]> Tue, 27 May 2025 15:23:33 GMT 59:37 c088a7df-cda2-4269-b581-1b7d2a63edf7 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Whats-Your-Blast-Radius--with-Captain-Jack-Somers-e33ckqr 685d87127cd58072a5f961b5 685d870247311de1b6040723 full 8 4 Former Marine Jack lives with post-traumatic epilepsy—and calls it a “blast radius” of its own. From memory struggles to mindset shifts, he shares how he stopped apologizing for what epilepsy changed and started treating himself with compassion. Oh, and he also announced the introduction of the National Plan for Epilepsy to Congress. No big deal.

Shout out to the folks who support us in our blast radius! Community partners Epilepsy Foundation of America & Danny Did Foundation and sponsors Neurelis & SK life science

Hosted on Acast. See acast.com/privacy for more information.

]]> Former Marine Jack lives with post-traumatic epilepsy—and calls it a “blast radius” of its own. From memory struggles to mindset shifts, he shares how he stopped apologizing for what epilepsy changed and started treating himself with compassion. Oh, and he also announced the introduction of the National Plan for Epilepsy to Congress. No big deal.

Shout out to the folks who support us in our blast radius! Community partners Epilepsy Foundation of America & Danny Did Foundation and sponsors Neurelis & SK life science

Hosted on Acast. See acast.com/privacy for more information.

]]> Just Keep Swimming (literally) with Tommy Mitchell Just Keep Swimming (literally) with Tommy Mitchell Tue, 20 May 2025 08:36:00 GMT 34:50 ddffbde0-9eb8-4af9-9daa-93ed88ab7136 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Just-Keep-Swimming-literally-with-Tommy-Mitchell-e3329ob 685d87157cd58072a5f9627c 685d870247311de1b6040723 full 8 3 Tommy had his first seizure (and dislocated shoulder 😬) senior year of high school—but kept chasing his dream of swimming at University of South Carolina. After the 2024 SECs, another seizure and shoulder pop (double ouch) changed everything. Still, he refused to let epilepsy take the water from him.

Big shout out to these folks for keeping the podcast afloat!

Community partners Epilepsy Foundation of America and Danny Did Foundation and sponsors Neurelis and SK life science

Hosted on Acast. See acast.com/privacy for more information.

]]> Tommy had his first seizure (and dislocated shoulder 😬) senior year of high school—but kept chasing his dream of swimming at University of South Carolina. After the 2024 SECs, another seizure and shoulder pop (double ouch) changed everything. Still, he refused to let epilepsy take the water from him.

Big shout out to these folks for keeping the podcast afloat!

Community partners Epilepsy Foundation of America and Danny Did Foundation and sponsors Neurelis and SK life science

Hosted on Acast. See acast.com/privacy for more information.

]]> Reclaiming your sense of self with Paige Wade Reclaiming your sense of self with Paige Wade Tue, 13 May 2025 08:22:00 GMT 34:29 4b674780-21c0-40cd-a8d2-6afed1369712 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Reclaiming-your-sense-of-self-with-Paige-Wade-e32iskd 685d870b0904b52e46e24007 685d870247311de1b6040723 full 8 2 Diagnosed at just six days old, kinda makes Paige Wade the OG of epilepsy. As an adult, her seizures subsided until two popped up, taking away her driver's license. Paige teaches second grade, and her students weren't the only ones getting dropped off by their moms. (Awkward.)

Paige opens up about how losing her independence led to depression—and how she slowly climbed her way back. Now a thriving content creator, she shares the mindset shifts and daily habits that helped her heal, including her focus on nutrition, movement, and mental health. Tune in for three powerful strategies Paige used to reclaim her life and her sense of self.

Check out Paige's Insa: @changewithpaige

Shout out to these folks for making convos like this possible!

Community partners Epilepsy Foundation of America and ⁨the Danny Did Foundation⁩ and sponsors Neurelis and SK life science

Hosted on Acast. See acast.com/privacy for more information.

]]> Diagnosed at just six days old, kinda makes Paige Wade the OG of epilepsy. As an adult, her seizures subsided until two popped up, taking away her driver's license. Paige teaches second grade, and her students weren't the only ones getting dropped off by their moms. (Awkward.)

Paige opens up about how losing her independence led to depression—and how she slowly climbed her way back. Now a thriving content creator, she shares the mindset shifts and daily habits that helped her heal, including her focus on nutrition, movement, and mental health. Tune in for three powerful strategies Paige used to reclaim her life and her sense of self.

Check out Paige's Insa: @changewithpaige

Shout out to these folks for making convos like this possible!

Community partners Epilepsy Foundation of America and ⁨the Danny Did Foundation⁩ and sponsors Neurelis and SK life science

Hosted on Acast. See acast.com/privacy for more information.

]]> Two Generations, One Turning Point with Pree Bhuntani and Sarabjeet Bhutani Two Generations, One Turning Point with Pree Bhuntani and Sarabjeet Bhutani Tue, 06 May 2025 07:18:00 GMT 1:06:38 024cfe93-4665-410b-b69b-c7e43a6e9150 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Two-Generations--One-Turning-Point-with-Pree-Bhuntani-and-Sarabjeet-Bhutani-e32e167 685d870e4a2d8b8b517f6c8b 685d870247311de1b6040723 full 8 1 ​​When Sarabjeet Bhutani was diagnosed with epilepsy as a child, she understood the secrecy that came with it. The cultural stigma in her community ran so deep, that for decades Sarabjeet stayed silent. And when her daughter was also diagnosed at age 10, the cycle continued. (If only they were born in Gen Z!)

But that all changed when Pree had a seizure in front of her school. (Can’t hide that, right?) From then on, Pree would dedicate her life to talking openly about it. Becoming an advocate, speaking at congressional hearings, and lobbying for seizure first aid legislation.

In this episode we talk about the blurred lines between privacy and shame. And how one daughter’s courage inspired her mother to help break a generational silence.

Shout out to Community Partners Epilepsy Foundation of America and the Danny Did Foundation as well as sponsors SK life science and Neurelis!

Hosted on Acast. See acast.com/privacy for more information.

]]> ​​When Sarabjeet Bhutani was diagnosed with epilepsy as a child, she understood the secrecy that came with it. The cultural stigma in her community ran so deep, that for decades Sarabjeet stayed silent. And when her daughter was also diagnosed at age 10, the cycle continued. (If only they were born in Gen Z!)

But that all changed when Pree had a seizure in front of her school. (Can’t hide that, right?) From then on, Pree would dedicate her life to talking openly about it. Becoming an advocate, speaking at congressional hearings, and lobbying for seizure first aid legislation.

In this episode we talk about the blurred lines between privacy and shame. And how one daughter’s courage inspired her mother to help break a generational silence.

Shout out to Community Partners Epilepsy Foundation of America and the Danny Did Foundation as well as sponsors SK life science and Neurelis!

Hosted on Acast. See acast.com/privacy for more information.

]]> *LIVE* What Do You Wish People Knew About Epilepsy? *LIVE* What Do You Wish People Knew About Epilepsy? Wed, 19 Mar 2025 07:31:00 GMT 23:39 22f5a632-de16-4059-9e78-9739ee0c23f9 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/LIVE-What-Do-You-Wish-People-Knew-About-Epilepsy-e30c01g 685d870a47311de1b6040a35 685d870247311de1b6040723 full 7 8 Neurelis and SK life science for making convos like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Neurelis and SK life science for making convos like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Fatherhood, Seizures, and Letting Go with JP Severin Fatherhood, Seizures, and Letting Go with JP Severin Tue, 11 Mar 2025 07:49:00 GMT 41:16 cdbb925c-adcf-427c-b96c-9036402481b6 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Fatherhood--Seizures--and-Letting-Go-with-JP-Severin-e2vvgn2 685d870e47311de1b6040b7d 685d870247311de1b6040723 full 7 7 JP Severin thought his epilepsy was controlled—until his seizures decided to make a comeback right in the middle of his career and dad life. JP shares what it’s like when your kids witness your seizures, the emotional aftermath, and the challenge of accepting what’s beyond his control.

With humor and heart, JP dives into the weird wisdom seizuresbring, and how life’s unpredictability can reshape perspective on gratitude and empathy.

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> JP Severin thought his epilepsy was controlled—until his seizures decided to make a comeback right in the middle of his career and dad life. JP shares what it’s like when your kids witness your seizures, the emotional aftermath, and the challenge of accepting what’s beyond his control.

With humor and heart, JP dives into the weird wisdom seizuresbring, and how life’s unpredictability can reshape perspective on gratitude and empathy.

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Creating Peace in Your Chaos with Nancy Iida Creating Peace in Your Chaos with Nancy Iida Tue, 04 Mar 2025 09:00:00 GMT 47:26 c41207f3-4310-4a77-a5d9-79f73d716982 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Creating-Peace-in-Your-Chaos-with-Nancy-Iida-e2vlovu 685d8711e36cea9c1621ac1e 685d870247311de1b6040723 full 7 6 When Nancy Iida’s son went off to college, she had to face a hard truth: she couldn’t control his seizures. That lesson deepened when her daughter was diagnosed with cancer and she herself battled Lyme disease.

Through it all, Nancy turned to art as a way to create peace in a life filled with uncertainty. In this episode, she shares how she’s learned to let go, find balance, and embrace the practice of resilience and laughter.

Check out Henry's Heroes Foundation: https://henrysheroesfoundation.org/

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for supporting peace in the epilepsy world!

Hosted on Acast. See acast.com/privacy for more information.

]]> When Nancy Iida’s son went off to college, she had to face a hard truth: she couldn’t control his seizures. That lesson deepened when her daughter was diagnosed with cancer and she herself battled Lyme disease.

Through it all, Nancy turned to art as a way to create peace in a life filled with uncertainty. In this episode, she shares how she’s learned to let go, find balance, and embrace the practice of resilience and laughter.

Check out Henry's Heroes Foundation: https://henrysheroesfoundation.org/

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for supporting peace in the epilepsy world!

Hosted on Acast. See acast.com/privacy for more information.

]]> Marrying Into Epilepsy with Steve Paluck (aka the Butler) Marrying Into Epilepsy with Steve Paluck (aka the Butler) Tue, 25 Feb 2025 07:37:00 GMT 1:09:22 690ccf53-7053-442d-b614-c11a5eb1a22e true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Marrying-Into-Epilepsy-with-Steve-Paluck-aka-the-Butler-e2v8vu5 685d87157cd58072a5f96282 685d870247311de1b6040723 full 7 5 So, what's it like being married to someone with epilepsy? Steve and I get real about our relationship—how we met, the challenges we’ve faced, and the moments that make it all worth it. From seizure depression to the Kid Decision (to have kids or not?), and yes, even who gets the last French fry, we’re sharing it all.


Appreciate these folks giving this podcast their "I do's": Epilepsy Foundation of America, Neurelis, and SK life science.

Hosted on Acast. See acast.com/privacy for more information.

]]> So, what's it like being married to someone with epilepsy? Steve and I get real about our relationship—how we met, the challenges we’ve faced, and the moments that make it all worth it. From seizure depression to the Kid Decision (to have kids or not?), and yes, even who gets the last French fry, we’re sharing it all.


Appreciate these folks giving this podcast their "I do's": Epilepsy Foundation of America, Neurelis, and SK life science.

Hosted on Acast. See acast.com/privacy for more information.

]]> What’s medication toxicity? (And how to avoid it!) with Mere Davis What’s medication toxicity? (And how to avoid it!) with Mere Davis Tue, 11 Feb 2025 09:35:00 GMT 48:48 e84f13bd-7822-4ad7-b57f-5254c9731a2f true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Whats-medication-toxicity--And-how-to-avoid-it--with-Mere-Davis-e2ul25v 685d87137cd58072a5f9620e 685d870247311de1b6040723 full 7 4 What happens when your epilepsy meds turn against you? Mere Davis found out the hard (and very painful) way. On her way to an epilepsy walk, a bad case of medication toxicity caused her to pass out, faceplant on the sidewalk, and start a long journey of medical treatment.

In this episode, Mere shares her story with wit and wisdom, breaking down what medication toxicity is, how to avoid it, and why you should always watch your step (literally).

A big shoutout to our Community Partner the Epilepsy Foundation of America and Sponsors SK life science andNeurelis for keeping the lights on and the mics hot so we can have important convos like this one.

Hosted on Acast. See acast.com/privacy for more information.

]]> What happens when your epilepsy meds turn against you? Mere Davis found out the hard (and very painful) way. On her way to an epilepsy walk, a bad case of medication toxicity caused her to pass out, faceplant on the sidewalk, and start a long journey of medical treatment.

In this episode, Mere shares her story with wit and wisdom, breaking down what medication toxicity is, how to avoid it, and why you should always watch your step (literally).

A big shoutout to our Community Partner the Epilepsy Foundation of America and Sponsors SK life science andNeurelis for keeping the lights on and the mics hot so we can have important convos like this one.

Hosted on Acast. See acast.com/privacy for more information.

]]> Standing up to medical gaslighting with Ilana Jacqueline Standing up to medical gaslighting with Ilana Jacqueline Tue, 04 Feb 2025 10:00:00 GMT 53:40 577c24ca-7965-431d-a0fa-1fe73c30b385 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Standing-up-to-medical-gaslighting-with-Ilana-Jacqueline-e2u83r7 685d871347311de1b6040d92 685d870247311de1b6040723 full 7 3 Ever felt dismissed by a doctor? Author Ilana Jacqueline gets it. In this episode, she shares what medical gaslighting is, how to spot it, and *three game-changing tips* to stand your ground in the doctor’s office. She opens up about her own medical journey and how it led her to become a self-advocacy pro.

If you’ve ever struggled to feel heard in the doc’s office, tune into this convo and order Ilana’s book “Medical Gaslighting” for even more guidance.

Thank you to our Community Partner, Epilepsy Foundation of America, and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Ever felt dismissed by a doctor? Author Ilana Jacqueline gets it. In this episode, she shares what medical gaslighting is, how to spot it, and *three game-changing tips* to stand your ground in the doctor’s office. She opens up about her own medical journey and how it led her to become a self-advocacy pro.

If you’ve ever struggled to feel heard in the doc’s office, tune into this convo and order Ilana’s book “Medical Gaslighting” for even more guidance.

Thank you to our Community Partner, Epilepsy Foundation of America, and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Defying cultural stigma with Dr. Amee Shah Defying cultural stigma with Dr. Amee Shah Tue, 28 Jan 2025 09:25:00 GMT 41:25 a1172935-2967-4e3e-af57-1e306e3ec3bf true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Defying-cultural-stigma-with-Dr--Amee-Shah-e2u2kgv 685d871a0904b52e46e24a45 685d870247311de1b6040723 full 7 2 https://www.dannydid.org/selecting-a-device/Thank you to our Community Partner, the Epilepsy Foundation of America, and Sponsors SK life science and Neurelis for standing up to stigma with us.

Hosted on Acast. See acast.com/privacy for more information.

]]> https://www.dannydid.org/selecting-a-device/Thank you to our Community Partner, the Epilepsy Foundation of America, and Sponsors SK life science and Neurelis for standing up to stigma with us.

Hosted on Acast. See acast.com/privacy for more information.

]]> Make epilepsy your coach with Justice Bartley Make epilepsy your coach with Justice Bartley Tue, 21 Jan 2025 08:00:00 GMT 1:10:37 b6c44b2a-1eac-4427-9262-a240f7e40611 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Make-epilepsy-your-coach-with-Justice-Bartley-e2tjatl 685d87190904b52e46e249b0 685d870247311de1b6040723 full 7 1 How do you turn epilepsy into a motivator for growth and success? Justice Bartley, a former NBA player development coach, takes us courtside to share his journey from high school basketball to the NBA coaching staff—all while navigating life with epilepsy. Hear how Justice found the right support, embraced accountability, and transformed challenges into life lessons.


Plus, a sneak peek at his stealth startup and his mission to empower athletes with epilepsy with the 1in26 Athlete Foundation. 


Thank you to our Community Partner Epilepsy Foundation and Sponsors SK life science and Neurelis for making slam dunk convos like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> How do you turn epilepsy into a motivator for growth and success? Justice Bartley, a former NBA player development coach, takes us courtside to share his journey from high school basketball to the NBA coaching staff—all while navigating life with epilepsy. Hear how Justice found the right support, embraced accountability, and transformed challenges into life lessons.


Plus, a sneak peek at his stealth startup and his mission to empower athletes with epilepsy with the 1in26 Athlete Foundation. 


Thank you to our Community Partner Epilepsy Foundation and Sponsors SK life science and Neurelis for making slam dunk convos like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> What the ELF: Holiday Mocktails with Beverly Dry Goods What the ELF: Holiday Mocktails with Beverly Dry Goods Tue, 10 Dec 2024 10:25:00 GMT 23:57 2491e92c-2c2d-4ff5-bf33-5fbe9f809f48 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/What-the-ELF-Holiday-Mocktails-with-Beverly-Dry-Goods-e2s5it6 685d871a7cd58072a5f9639d 685d870247311de1b6040723 full 6 7 Santa called, and he’s giving the reindeer the night off—because Mary from Beverly Dry Goods is here to sleigh your holiday parties with three ridiculously good mocktail recipes!

Learn how to turn everyday ingredients into holiday magic (without the hangover). Whether you’re naughty, nice, or somewhere in between, these drinks will have you saying, "What the ELF was I drinking before?" Get ready to jingle all the way to flavor town!


Check out Beverly Dry Goods in Chicago!

https://beverlydrygoods.com/


Want a bottle of Ritual Zero Proof? Take this 2-min survey, type your email address, and your entered to win!

https://www.surveymonkey.com/r/WTEF


Gift a Brave Bear this holiday seizen! https://bravebearsclub.com/


Want What the EF merch? Use discount code: WhatTheELF for 25% off!

https://wtefpodcastshop.etsy.com


Hosted on Acast. See acast.com/privacy for more information.

]]> Santa called, and he’s giving the reindeer the night off—because Mary from Beverly Dry Goods is here to sleigh your holiday parties with three ridiculously good mocktail recipes!

Learn how to turn everyday ingredients into holiday magic (without the hangover). Whether you’re naughty, nice, or somewhere in between, these drinks will have you saying, "What the ELF was I drinking before?" Get ready to jingle all the way to flavor town!


Check out Beverly Dry Goods in Chicago!

https://beverlydrygoods.com/


Want a bottle of Ritual Zero Proof? Take this 2-min survey, type your email address, and your entered to win!

https://www.surveymonkey.com/r/WTEF


Gift a Brave Bear this holiday seizen! https://bravebearsclub.com/


Want What the EF merch? Use discount code: WhatTheELF for 25% off!

https://wtefpodcastshop.etsy.com


Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[What's VNS Therapy? with Jenee Leger]]> Tue, 29 Oct 2024 09:08:00 GMT 58:48 2cf90f56-7228-449b-94e6-6cd2c747b0ca true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Whats-VNS-Therapy--with-Jenee-Leger-e2q58ng 685d87130904b52e46e2486f 685d870247311de1b6040723 full 6 9 Ever heard of VNS Therapy but have no idea wtf it really is? You're not alone! Track star turned bodybuilding buff, Jenee Leger faced a major setback when seizures made a comeback in her late 20s. Tune in to learn how VNS Therapy helped control her epilepsy and how she went onto reclaim her fitness, recently becoming a marathoner! Jenee's even channeling her journey into advocacy and created the first epilepsy awareness 5K in her town of Lafayette, Louisiana.Thank you LivaNova for sponsoring! Thanks to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

.

.

.

The VNS Therapy System is indicated foruse as an adjunctive therapy in reducing the frequency of seizures in patients 4 years of age and older with partial onset seizures that are refractory to antiepileptic medications.

Incidence of adverse events followingstimulation (>5%) were voice alteration, increased coughing, hoarseness, shortness of breath, sore throat and nausea. Infection is the most common side effectof the procedure.

See important safety information at VNSTherapy.com/safety

Hosted on Acast. See acast.com/privacy for more information.

]]> Ever heard of VNS Therapy but have no idea wtf it really is? You're not alone! Track star turned bodybuilding buff, Jenee Leger faced a major setback when seizures made a comeback in her late 20s. Tune in to learn how VNS Therapy helped control her epilepsy and how she went onto reclaim her fitness, recently becoming a marathoner! Jenee's even channeling her journey into advocacy and created the first epilepsy awareness 5K in her town of Lafayette, Louisiana.Thank you LivaNova for sponsoring! Thanks to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

.

.

.

The VNS Therapy System is indicated foruse as an adjunctive therapy in reducing the frequency of seizures in patients 4 years of age and older with partial onset seizures that are refractory to antiepileptic medications.

Incidence of adverse events followingstimulation (>5%) were voice alteration, increased coughing, hoarseness, shortness of breath, sore throat and nausea. Infection is the most common side effectof the procedure.

See important safety information at VNSTherapy.com/safety

Hosted on Acast. See acast.com/privacy for more information.

]]> The power of anger in advocacy with Bree (aka @SoCal.Epilpesy) The power of anger in advocacy with Bree (aka @SoCal.Epilpesy) Tue, 22 Oct 2024 09:30:00 GMT 49:25 cbfbcffc-6ae2-4c9f-9880-869f026f1f5c true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/The-power-of-anger-in-advocacy-with-Bree-aka-SoCal-Epilpesy-e2psl7n 685d87140904b52e46e248c4 685d870247311de1b6040723 full 6 8 When Bree began her advocacy journey, it was a doctor’s requirement before brain surgery. But what started as atherapeutic writing exercise quickly evolved into something much bigger—connecting with countless others on their epilepsy journeys.

In this episode, we explore why anger is often dismissed, why acceptance is sometimes seen as the only path, and how embracing both can be the key to sparking real change.

 

Check out Bree's Work!

Insta: @SoCal.Epilepsy

https://www.instagram.com/socal.epilepsy/

Podcast: What's Shakin

https://www.youtube.com/@whatsshakin615

 

Thank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and ⁠Neurelis⁠ for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> When Bree began her advocacy journey, it was a doctor’s requirement before brain surgery. But what started as atherapeutic writing exercise quickly evolved into something much bigger—connecting with countless others on their epilepsy journeys.

In this episode, we explore why anger is often dismissed, why acceptance is sometimes seen as the only path, and how embracing both can be the key to sparking real change.

 

Check out Bree's Work!

Insta: @SoCal.Epilepsy

https://www.instagram.com/socal.epilepsy/

Podcast: What's Shakin

https://www.youtube.com/@whatsshakin615

 

Thank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and ⁠Neurelis⁠ for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Seizure training for first responders with Duane & Jessica Chappell and Steve Paluck]]> Tue, 15 Oct 2024 08:44:00 GMT 1:02:29 147a4c22-63d0-45fd-a49d-3ee05c0aa14c true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Seizure-training-for-first-responders-with-Duane--Jessica-Chappell-and-Steve-Paluck-e2plljo 685d87194a2d8b8b517f6f9f 685d870247311de1b6040723 full 6 7 Gear up for a double date you’ve never seen on Netflix: one police officer, one firefighter, each married to an epilepsy advocate. Illinois State Police Officer, Duane Chappell, and Chicago firefighter/EMT, Steve Paluck, share eye-opening insights about seizures in the field and the necessity of seizure safety training for first responders. Jessica Chappell (Duane’s better half) rejoins the podcast to share her experience as a Law Enforcement Seizure Safety Trainer and how to implement training in your community. Currently, seizure recognition and response training is not mandated for first responders. Let’s make some noise and change this!Seizure training for law enforcement in your community:https://www.epilepsy.com/programs/training-education/law-enforcementAsk your representatives to support the National Plan! Takes 2 minutes!https://www.epilepsiescaucus.org/takection

Learn more about the National Plan here:

https://www.epilepsiesactionnetwork.org/thenationalplan

What happened to Rhyker Earl:

https://www.cnn.com/2024/09/28/us/video/rhyker-earl-handcuffed-by-police-following-medical-emergency-digvid


Jessica's other bad ass episode! Climbing the corporate ladder with Jessica Chappell:

https://youtu.be/JaQfHLCRkJ4?si=AfUPuSEgp-2gHwPkThank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Gear up for a double date you’ve never seen on Netflix: one police officer, one firefighter, each married to an epilepsy advocate. Illinois State Police Officer, Duane Chappell, and Chicago firefighter/EMT, Steve Paluck, share eye-opening insights about seizures in the field and the necessity of seizure safety training for first responders. Jessica Chappell (Duane’s better half) rejoins the podcast to share her experience as a Law Enforcement Seizure Safety Trainer and how to implement training in your community. Currently, seizure recognition and response training is not mandated for first responders. Let’s make some noise and change this!Seizure training for law enforcement in your community:https://www.epilepsy.com/programs/training-education/law-enforcementAsk your representatives to support the National Plan! Takes 2 minutes!https://www.epilepsiescaucus.org/takection

Learn more about the National Plan here:

https://www.epilepsiesactionnetwork.org/thenationalplan

What happened to Rhyker Earl:

https://www.cnn.com/2024/09/28/us/video/rhyker-earl-handcuffed-by-police-following-medical-emergency-digvid


Jessica's other bad ass episode! Climbing the corporate ladder with Jessica Chappell:

https://youtu.be/JaQfHLCRkJ4?si=AfUPuSEgp-2gHwPkThank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> From secrecy to strength with Melanee Stovall From secrecy to strength with Melanee Stovall Tue, 08 Oct 2024 09:01:00 GMT 53:51 e9926fa0-0a58-4108-bdc3-e76326eb19e1 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/From-secrecy-to-strength-with-Melanee-Stovall-e2pbl5m 685d8715e36cea9c1621ad0a 685d870247311de1b6040723 full 6 6 Like many of us, Melanee Stovall felt overwhelmed and isolated after her daughter was diagnosed with epilepsy. Navigating the complexities of healthcare and education, Melanee chose to keep her daughter’s condition a secret, hoping to protect her from stigma. But as she learned more, she discovered her voice and began advocating for fair treatment both in the classroom and in medical care.In this inspiring episode, Melanee shares her journey from silent struggle to fierce advocacy and how it led to the creation of her nonprofit, which now connects families to vital epilepsy resources. Tune in for a dose of hope, humor, and the power of connection. Check out Legacy Bridges Foundation!https://www.legacybridgesfoundation.org/Get yourself a Daijah Hair Bow!https://www.instagram.com/daijahshairbows/Order a copy of "Life Heist: Journey of a Childhood Robbed by the Unknown" on Amazon!


T-shirt giveaway! Take this 90-second survey, enter your email address, and you're entered to win!

https://www.surveymonkey.com/r/WTEFThank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Like many of us, Melanee Stovall felt overwhelmed and isolated after her daughter was diagnosed with epilepsy. Navigating the complexities of healthcare and education, Melanee chose to keep her daughter’s condition a secret, hoping to protect her from stigma. But as she learned more, she discovered her voice and began advocating for fair treatment both in the classroom and in medical care.In this inspiring episode, Melanee shares her journey from silent struggle to fierce advocacy and how it led to the creation of her nonprofit, which now connects families to vital epilepsy resources. Tune in for a dose of hope, humor, and the power of connection. Check out Legacy Bridges Foundation!https://www.legacybridgesfoundation.org/Get yourself a Daijah Hair Bow!https://www.instagram.com/daijahshairbows/Order a copy of "Life Heist: Journey of a Childhood Robbed by the Unknown" on Amazon!


T-shirt giveaway! Take this 90-second survey, enter your email address, and you're entered to win!

https://www.surveymonkey.com/r/WTEFThank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Changing the plan in family planning with Alison Kukla & Preston Reilly]]> Tue, 01 Oct 2024 06:21:00 GMT 1:03:38 e9f1eae3-59e9-4336-9d4f-e1d17afe316d true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Changing-the-plan-in-family-planning-with-Alison-Kukla--Preston-Reilly-e2ourdj 685d871b0904b52e46e24a5e 685d870247311de1b6040723 full 6 5 Ready for the sweetest, most non-traditional love story? Alison Kukla and Preston Reilly share their Meet Cute, Zoom wedding, and when “family planning” doesn’t go as planned. These two should legit have their own Hallmark movie that rewrites the script for happy endings.

Tune in to hear how this powerhouse couple is changing the narrative of managing epilepsy in marriage, careers, and support systems.

Wanna win some funny epilepsy merch? Take this 90-second survey about rescue meds, include your email, and you're entered to win!

https://www.surveymonkey.com/r/WTEF

Thank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Ready for the sweetest, most non-traditional love story? Alison Kukla and Preston Reilly share their Meet Cute, Zoom wedding, and when “family planning” doesn’t go as planned. These two should legit have their own Hallmark movie that rewrites the script for happy endings.

Tune in to hear how this powerhouse couple is changing the narrative of managing epilepsy in marriage, careers, and support systems.

Wanna win some funny epilepsy merch? Take this 90-second survey about rescue meds, include your email, and you're entered to win!

https://www.surveymonkey.com/r/WTEF

Thank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Turning trauma into triumph with JenVon Cherry Turning trauma into triumph with JenVon Cherry Tue, 24 Sep 2024 06:00:00 GMT 44:05 a0991874-b707-4bed-9a11-1643cd6324ab true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Turning-trauma-into-triumph-with-JenVon-Cherry-e2ol9q0 685d871547311de1b6040dd2 685d870247311de1b6040723 full 6 4 In this powerful episode, JenVon opens up about the raw realities of living with epilepsy, from the cognitive challenges and isolation to the struggles with depression, anxiety, and dating. She bravely shares her escape from an abusive relationship, highlighting the critical importance of self-care and a supportive network.

As the founder of Epitome of Epilepsy, JenVon discusses themission of her nonprofit and the power of creating a truly inclusive work environment. Tune in for an unfiltered look at resilience, hope, and the fight for a better life with epilepsy.

Click here to register for the Jewels of Epilepsy Gala on 11/9/24!

https://www.epitomeofepilepsy.org/event-details/jewels-of-epilepsy-gala-1

Available on Spotify, Apple, YouTube, Amazon Music, and Audible!

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> In this powerful episode, JenVon opens up about the raw realities of living with epilepsy, from the cognitive challenges and isolation to the struggles with depression, anxiety, and dating. She bravely shares her escape from an abusive relationship, highlighting the critical importance of self-care and a supportive network.

As the founder of Epitome of Epilepsy, JenVon discusses themission of her nonprofit and the power of creating a truly inclusive work environment. Tune in for an unfiltered look at resilience, hope, and the fight for a better life with epilepsy.

Click here to register for the Jewels of Epilepsy Gala on 11/9/24!

https://www.epitomeofepilepsy.org/event-details/jewels-of-epilepsy-gala-1

Available on Spotify, Apple, YouTube, Amazon Music, and Audible!

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Calling all outsiders with Mark Slater Calling all outsiders with Mark Slater Tue, 17 Sep 2024 06:27:00 GMT 48:54 c76a3427-eb77-4e66-9dda-461dc08362d0 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Calling-all-outsiders-with-Mark-Slater-e2ofirm 685d871c47311de1b6040faa 685d870247311de1b6040723 full 6 3 Ever felt like an outsider, even within your own community? You’re not alone! After Mark Slater hid his epilepsy for years, becoming an advocate didn't erase that feeling. But then came a pivotal moment that changed everything—Mark realized he succeeds because of his epilepsy, not despite it. Now we’re teaming up to create a space where people with epilepsy can truly connect.


Tune in for the exclusive on the Otherside Lounge—a sanctuary for Outsiders like us!


Thank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Ever felt like an outsider, even within your own community? You’re not alone! After Mark Slater hid his epilepsy for years, becoming an advocate didn't erase that feeling. But then came a pivotal moment that changed everything—Mark realized he succeeds because of his epilepsy, not despite it. Now we’re teaming up to create a space where people with epilepsy can truly connect.


Tune in for the exclusive on the Otherside Lounge—a sanctuary for Outsiders like us!


Thank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> What the ef is a rescue med? with Dr. Danielle Becker What the ef is a rescue med? with Dr. Danielle Becker Tue, 10 Sep 2024 06:59:00 GMT 46:36 1651cab3-4651-4977-9550-eaf72946e3f7 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/What-the-ef-is-a-rescue-med--with-Dr--Danielle-Becker-e2o1vg3 685d871c7cd58072a5f96511 685d870247311de1b6040723 full 6 2 Ever heard of a rescue med but not sure wtf it really means? Join Dr. Becker, a top epileptologist at Ohio State’s Comprehensive Epilepsy Center, as she explains rescue meds, how to use them, and how to talk to your doctor about them. And check out how Dr. Becker and her team are revolutionizing epilepsy treatment through cutting-edge research and compassionate care.Take this survey about rescue meds, enter your email, and you'll be entered to win epilepsy merch!

https://www.surveymonkey.com/r/WTEFThank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Ever heard of a rescue med but not sure wtf it really means? Join Dr. Becker, a top epileptologist at Ohio State’s Comprehensive Epilepsy Center, as she explains rescue meds, how to use them, and how to talk to your doctor about them. And check out how Dr. Becker and her team are revolutionizing epilepsy treatment through cutting-edge research and compassionate care.Take this survey about rescue meds, enter your email, and you'll be entered to win epilepsy merch!

https://www.surveymonkey.com/r/WTEFThank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Better Than the Bullies with Anna Rasque Better Than the Bullies with Anna Rasque Tue, 03 Sep 2024 05:00:00 GMT 47:14 1fa3c494-9451-4b6e-a4e9-a592ffc78b35 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Better-Than-the-Bullies-with-Anna-Rasque-e2nsodc 685d87150904b52e46e248cf 685d870247311de1b6040723 full 6 1 Growing up, Anna faced relentless bullying and doubt from both peers and teachers because of her seizures. But instead of letting the stigma define her, she transformed her pain into power. Now a Community Outreach Specialist for her local Epilepsy Foundation of Wisconsin, Anna is a source of inspiration 🌟 and support 🤝, ensuring that no one feels alone on their epilepsy journey.


Tune in to hear how Anna flipped the script, owned her epilepsy, and became a beacon of hope (and hilarity). 💪


Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Growing up, Anna faced relentless bullying and doubt from both peers and teachers because of her seizures. But instead of letting the stigma define her, she transformed her pain into power. Now a Community Outreach Specialist for her local Epilepsy Foundation of Wisconsin, Anna is a source of inspiration 🌟 and support 🤝, ensuring that no one feels alone on their epilepsy journey.


Tune in to hear how Anna flipped the script, owned her epilepsy, and became a beacon of hope (and hilarity). 💪


Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

]]> Climbing the Corporate Ladder: Using stigma as stepping stones with Jessica Chappell Climbing the Corporate Ladder: Using stigma as stepping stones with Jessica Chappell Tue, 18 Jun 2024 06:29:00 GMT 46:45 0a9da181-e15c-4ff0-b9d9-4eeefad1e3d0 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Climbing-the-Corporate-Ladder-Using-stigma-as-stepping-stones-with-Jessica-Chappell-e2kvpt6 685d87197cd58072a5f9637d 685d870247311de1b6040723 full 5 7 Jessica Chappell started as a clerk for a local store and is now a business analyst for that same corporation. Despite facing discrimination for her epilepsy, she used it as fuel to climb higher. Dreams of being a cop were sidelined, and she now trains law enforcement on seizure safety. Tune in and hear how to turn haters into motivation.

 

Available on: YouTube, Spotify, Apple, Amazon Music, & Audible (links in @whattheefpodcast bio)


Thank you SK Life Science and Neurelis for being our stepping stones!


Check out @strobealert for strobe light reviews of movies and TV!

Hosted on Acast. See acast.com/privacy for more information.

]]> Jessica Chappell started as a clerk for a local store and is now a business analyst for that same corporation. Despite facing discrimination for her epilepsy, she used it as fuel to climb higher. Dreams of being a cop were sidelined, and she now trains law enforcement on seizure safety. Tune in and hear how to turn haters into motivation.

 

Available on: YouTube, Spotify, Apple, Amazon Music, & Audible (links in @whattheefpodcast bio)


Thank you SK Life Science and Neurelis for being our stepping stones!


Check out @strobealert for strobe light reviews of movies and TV!

Hosted on Acast. See acast.com/privacy for more information.

]]> How to Train a Service Dog: Turning adopted cuties into legal sidekicks with Matt Bonfiglio How to Train a Service Dog: Turning adopted cuties into legal sidekicks with Matt Bonfiglio Tue, 11 Jun 2024 08:34:00 GMT 45:04 237fa8df-5013-442c-9fd2-2caa3639ff3b true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/How-to-Train-a-Service-Dog-Turning-adopted-cuties-into-legal-sidekicks-with-Matt-Bonfiglio-e2ko1sv 685d871947311de1b6040ef6 685d870247311de1b6040723 full 5 6 Neurelis for being the ulti-mutt supporters of this podcast!American Disabilities Act: Service animal info: https://www.ada.gov/resources/service-animals-2010-requirements/

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]]> Neurelis for being the ulti-mutt supporters of this podcast!American Disabilities Act: Service animal info: https://www.ada.gov/resources/service-animals-2010-requirements/

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Bear Hugs and Brainwaves: What's an infantile spasm? (and how to find support)]]> Tue, 04 Jun 2024 08:30:00 GMT 53:20 dce6c50c-c897-4474-bc0a-a9377ee3e7b9 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Bear-Hugs-and-Brainwaves-Whats-an-infantile-spasm--and-how-to-find-support-e2ken6e 685d871c47311de1b6040fb2 685d870247311de1b6040723 full 5 5 Kate Kostolansky, founder of Char Bear Keeps Dancing, and Dr. Christina Briscoe, pediatric epilepsy fellow, share insights on infantile spasms and epilepsy, emphasizing the importance of advocacy and education. Their conversation highlights the need for more support and resources for affected families. Join the discussion on hope and self-care!

Get a bear and book! Or donate them to a children's hospital!

https://www.charbearkeepsdancing.com/

Resources Kate and Chris mentioned for infantile spasms:

Epilepsy Foundation of America

https://www.epilepsy.com/

Infantile Spasms Action Networkhttps://infantilespasms.org/

Pediatric Epilepsy Research Consortium (PERC)https://pediatricerc.com/


Thank you Neurelis and SK life science for the bear hugs!

What the EF podcast is also available on: YouTube, Spotify, Apple, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Kate Kostolansky, founder of Char Bear Keeps Dancing, and Dr. Christina Briscoe, pediatric epilepsy fellow, share insights on infantile spasms and epilepsy, emphasizing the importance of advocacy and education. Their conversation highlights the need for more support and resources for affected families. Join the discussion on hope and self-care!

Get a bear and book! Or donate them to a children's hospital!

https://www.charbearkeepsdancing.com/

Resources Kate and Chris mentioned for infantile spasms:

Epilepsy Foundation of America

https://www.epilepsy.com/

Infantile Spasms Action Networkhttps://infantilespasms.org/

Pediatric Epilepsy Research Consortium (PERC)https://pediatricerc.com/


Thank you Neurelis and SK life science for the bear hugs!

What the EF podcast is also available on: YouTube, Spotify, Apple, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Rhythm Resilience: Performing onstage with epilepsy with Tiana Goss Rhythm Resilience: Performing onstage with epilepsy with Tiana Goss Tue, 28 May 2024 09:09:00 GMT 42:58 a80874cd-1324-4d1b-8d89-f124f68743e3 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Rhythm-Resilience-Performing-onstage-with-epilepsy-with-Tiana-Goss-e2k61tk 685d871b47311de1b6040f90 685d870247311de1b6040723 full 5 4 Tune in for singer-songwriter Tiana Goss's inspiring journey, as she navigates a new epilepsy diagnosis while chasing her dreams! From dazzling The Voice to lighting up LA stages, her passion and talent always shine bright. As she prepares to grace the stage at the Cam for a Cause Gala this weekend, Tiana is a true testament to turning setbacks into comebacks!

Like, subscribe, and follow  @WhatTheEFPodcast !Thank you SK life science and Neurelis for rocking out with us!

Check out Tiana's music: www.tianagossmusic.com

What the EF is available on: YouTube, Spotify, Apple, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Tune in for singer-songwriter Tiana Goss's inspiring journey, as she navigates a new epilepsy diagnosis while chasing her dreams! From dazzling The Voice to lighting up LA stages, her passion and talent always shine bright. As she prepares to grace the stage at the Cam for a Cause Gala this weekend, Tiana is a true testament to turning setbacks into comebacks!

Like, subscribe, and follow  @WhatTheEFPodcast !Thank you SK life science and Neurelis for rocking out with us!

Check out Tiana's music: www.tianagossmusic.com

What the EF is available on: YouTube, Spotify, Apple, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Health Insurance Hellscape: Navigating new cities, jobs, and seizure injuries with Jeff Baltes Health Insurance Hellscape: Navigating new cities, jobs, and seizure injuries with Jeff Baltes Tue, 21 May 2024 10:00:00 GMT 53:21 22cb5c0f-9469-40ac-bbcb-083c03c2841b true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Health-Insurance-Hellscape-Navigating-new-cities--jobs--and-seizure-injuries-with-Jeff-Baltes-e2jpnft 685d871c7cd58072a5f96506 685d870247311de1b6040723 full 5 3 Meet Jeff Baltes, the epitome of resilience and humor! From relocating for accessible transportation to the horrendous hurdles of health insurance and employment, Jeff's story will have you laughing, crying, and cheering him on! Tune in for a rollercoaster of emotions!Available on: Spotify, Apple, Amazon Music, Audible, and more!Thank you Neurelis and SK life science for battling through this hellscape with us!For the resources Jeff mentioned, check out Epilepsy Foundation of Greater Chicago: https://epilepsychicago.org/(Click on "How Can We Help?" tab)


Check out Jeff's informational (and funny) YouTube page:

https://www.youtube.com/@jeffonthebrain

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]]> Meet Jeff Baltes, the epitome of resilience and humor! From relocating for accessible transportation to the horrendous hurdles of health insurance and employment, Jeff's story will have you laughing, crying, and cheering him on! Tune in for a rollercoaster of emotions!Available on: Spotify, Apple, Amazon Music, Audible, and more!Thank you Neurelis and SK life science for battling through this hellscape with us!For the resources Jeff mentioned, check out Epilepsy Foundation of Greater Chicago: https://epilepsychicago.org/(Click on "How Can We Help?" tab)


Check out Jeff's informational (and funny) YouTube page:

https://www.youtube.com/@jeffonthebrain

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Managing Motherhood: What's it like being a mom with epilepsy? with Meg Busing]]> Tue, 14 May 2024 06:17:00 GMT 1:04:30 718c1194-c9a6-4d9d-9164-0c7fc05e914c true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Managing-Motherhood-Whats-it-like-being-a-mom-with-epilepsy--with-Meg-Busing-e2jjqri 685d871ce36cea9c1621aef0 685d870247311de1b6040723 full 5 2 https://www.midwestyoucan.org/camp-youcan

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]]> https://www.midwestyoucan.org/camp-youcan

Hosted on Acast. See acast.com/privacy for more information.

]]> Educating for Empowerment: Seizure Training in Schools Educating for Empowerment: Seizure Training in Schools Mon, 13 May 2024 05:20:00 GMT 16:52 0651da24-cc3f-4ede-a037-f637335a85e4 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Educating-for-Empowerment-Seizure-Training-in-Schools-e2jf9pv 685d87157cd58072a5f96276 685d870247311de1b6040723 bonus NEW! Epi-Gem Episodes featuring gems in the Epilepsy Community! Starting with the *must-have* seizure training in schools! Meet Collin, our seizure educator extraordinaire, sharing how it transformed his school days. With Sarah, our inclusive education advocate, we dish out practical tips to bring seizure training to YOUR school. Tune in for the scoop on why it's crucial and how to make it happen!


Empowering People’s Independence, Epilepsy Serviceshttps://www.epiny.org/epilepsy/Empowering People’s Independence, Camp EAGRhttps://www.epiny.org/epilepsy/camp-eagr/Epilepsy Alliance America – Seizure First Aid Traininghttps://www.epilepsyallianceamerica.org/seizure-safety/seizure-first-aid-training-for-school-personnel-your-way/Epilepsy Alliance America – Epilepsy Summer Campshttps://www.epilepsyallianceamerica.org/programs-services/camp-programs/

Hosted on Acast. See acast.com/privacy for more information.

]]> NEW! Epi-Gem Episodes featuring gems in the Epilepsy Community! Starting with the *must-have* seizure training in schools! Meet Collin, our seizure educator extraordinaire, sharing how it transformed his school days. With Sarah, our inclusive education advocate, we dish out practical tips to bring seizure training to YOUR school. Tune in for the scoop on why it's crucial and how to make it happen!


Empowering People’s Independence, Epilepsy Serviceshttps://www.epiny.org/epilepsy/Empowering People’s Independence, Camp EAGRhttps://www.epiny.org/epilepsy/camp-eagr/Epilepsy Alliance America – Seizure First Aid Traininghttps://www.epilepsyallianceamerica.org/seizure-safety/seizure-first-aid-training-for-school-personnel-your-way/Epilepsy Alliance America – Epilepsy Summer Campshttps://www.epilepsyallianceamerica.org/programs-services/camp-programs/

Hosted on Acast. See acast.com/privacy for more information.

]]> Blitzing Barriers: Becoming a Division 1 athlete with epilepsy with CJ Harris Blitzing Barriers: Becoming a Division 1 athlete with epilepsy with CJ Harris Tue, 07 May 2024 08:33:00 GMT 51:56 13470536-069b-4cf7-add9-a6ef5134b62f true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Blitzing-Barriers-Becoming-a-Division-1-athlete-with-epilepsy-with-CJ-Harris-e2j7k20 685d871f0904b52e46e24b52 685d870247311de1b6040723 full 5 1 Neurelis for helping us break down barriers!CJ's nonprofit Elevate Above Epilepsy:https://www.elevatingaboveepilepsy.net/The CJ Way - documentary about CJ on YouTube:https://www.youtube.com/watch?app=desktop&fbclid=PAAaYbAWZvH8VtL3ELflaofupudlyU5bn3kqiT_8Wxu8-z6IvsdtfC2XmSmFE&v=nVbGTk4IVKo&feature=youtu.be

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]]> Neurelis for helping us break down barriers!CJ's nonprofit Elevate Above Epilepsy:https://www.elevatingaboveepilepsy.net/The CJ Way - documentary about CJ on YouTube:https://www.youtube.com/watch?app=desktop&fbclid=PAAaYbAWZvH8VtL3ELflaofupudlyU5bn3kqiT_8Wxu8-z6IvsdtfC2XmSmFE&v=nVbGTk4IVKo&feature=youtu.be

Hosted on Acast. See acast.com/privacy for more information.

]]> When cancer crashes the epilepsy party with Jessica Smith When cancer crashes the epilepsy party with Jessica Smith Tue, 20 Feb 2024 07:34:00 GMT 54:00 96edfdfc-c687-46b4-b2dc-c6a9de3e3e6e true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/When-cancer-crashes-the-epilepsy-party-with-Jessica-Smith-e2g06em 685d871a4a2d8b8b517f6fe7 685d870247311de1b6040723 full 4 8 Creator of Living Well With Epilepsy, Jessica Smith, shares what it’s like when cancer meets a chronic illness. Jessica and Landis chat and laugh about their experiences managing epilepsy and tumors; coping mechanisms and community; and why society feels more comfortable showing up for the Big C but not always the Big E.Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & AudibleHelp keep What the EF going by following and subscribing!YouTube:  @WhatTheEFPodcast  Instagram: @whattheefpodcastWebsite: whattheefpodcast.com


Reach out to Jess for epilepsy coaching here:

https://livingwellwithepilepsy.com/epilepsy-health-coach-programs

Submit your epilepsy story to Living Well With Epilepsy here!

https://livingwellwithepilepsy.com/Big thanks to Neurelis and SK Life Science for showing up for the Big E!

Hosted on Acast. See acast.com/privacy for more information.

]]> Creator of Living Well With Epilepsy, Jessica Smith, shares what it’s like when cancer meets a chronic illness. Jessica and Landis chat and laugh about their experiences managing epilepsy and tumors; coping mechanisms and community; and why society feels more comfortable showing up for the Big C but not always the Big E.Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & AudibleHelp keep What the EF going by following and subscribing!YouTube:  @WhatTheEFPodcast  Instagram: @whattheefpodcastWebsite: whattheefpodcast.com


Reach out to Jess for epilepsy coaching here:

https://livingwellwithepilepsy.com/epilepsy-health-coach-programs

Submit your epilepsy story to Living Well With Epilepsy here!

https://livingwellwithepilepsy.com/Big thanks to Neurelis and SK Life Science for showing up for the Big E!

Hosted on Acast. See acast.com/privacy for more information.

]]> When epilepsy meets a power couple with Charles and Dian Ellison When epilepsy meets a power couple with Charles and Dian Ellison Tue, 13 Feb 2024 07:13:00 GMT 1:01:36 11d5b406-64c1-4026-8238-b2a2207ff533 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/When-epilepsy-meets-a-power-couple-with-Charles-and-Dian-Ellison-e2fmutc 685d8715e36cea9c1621ad15 685d870247311de1b6040723 full 4 7 After having a seizure on-air, award-winning activist Charles Ellison was diagnosed with epilepsy and stepped down from his radio show to get a handle on his treatment with the support of his wife, Dian Ellison. This power couple shares with Landis Wiedner how they adjusted—and continue to adjust—with the ever-changing demands of epilepsy.


Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Help keep What the EF going by subscribing on your fave streaming platform!

Sign up for episode updates here:

https://www.whattheefpodcast.com/

Follow on Instagram: @whattheefpodcast

https://www.instagram.com/whattheefpodcast/

Mentioned in episode:B|E Strategy and the B|E Note:

https://thebenote.substack.com/p/aboutbe

WURD radio episode:

https://wurdradio.com/2023/04/06/reality-check-on-health-a-farewell-from-charles-ellison/

Big thanks to Neurelis and SK Life Science for being the power couple of this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> After having a seizure on-air, award-winning activist Charles Ellison was diagnosed with epilepsy and stepped down from his radio show to get a handle on his treatment with the support of his wife, Dian Ellison. This power couple shares with Landis Wiedner how they adjusted—and continue to adjust—with the ever-changing demands of epilepsy.


Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Help keep What the EF going by subscribing on your fave streaming platform!

Sign up for episode updates here:

https://www.whattheefpodcast.com/

Follow on Instagram: @whattheefpodcast

https://www.instagram.com/whattheefpodcast/

Mentioned in episode:B|E Strategy and the B|E Note:

https://thebenote.substack.com/p/aboutbe

WURD radio episode:

https://wurdradio.com/2023/04/06/reality-check-on-health-a-farewell-from-charles-ellison/

Big thanks to Neurelis and SK Life Science for being the power couple of this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> Taking on stigma like a boss with Bee Martin Lee Taking on stigma like a boss with Bee Martin Lee Tue, 06 Feb 2024 06:09:00 GMT 1:12:27 adfa8512-6d68-436b-bbf0-98f76c1bc198 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Taking-on-stigma-like-a-boss-with-Bee-Martin-Lee-e2fd6fv 685d87454a2d8b8b517f812d 685d870247311de1b6040723 full 4 6 CEO of the Epilepsy Foundation of America, Bee Martin Lee, spent most of her life feeling unsafe to disclose her epilepsy because of the stigma she faced in college, career, and family. Bee shares with LandisWiedner the tough conversation shehad with herself to be open about her epilepsy. Now she strives to empower others to do the same and demystify what it means to have epilepsy.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by following andsubscribing!  

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

Thank you SK Life Science and Neurelis for believing in What the EF and making conversations like this possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> CEO of the Epilepsy Foundation of America, Bee Martin Lee, spent most of her life feeling unsafe to disclose her epilepsy because of the stigma she faced in college, career, and family. Bee shares with LandisWiedner the tough conversation shehad with herself to be open about her epilepsy. Now she strives to empower others to do the same and demystify what it means to have epilepsy.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by following andsubscribing!  

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

Thank you SK Life Science and Neurelis for believing in What the EF and making conversations like this possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> Searching for mental health care with Torie Robinson Searching for mental health care with Torie Robinson Tue, 30 Jan 2024 07:10:00 GMT 45:29 74056610-f44b-4b87-a9ea-85ef797fef7b true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Searching-for-mental-health-care-with-Torie-Robinson-e2f3lsc 685d871d7cd58072a5f9652f 685d870247311de1b6040723 full 4 5 Frustrated in your search for mental health care? You’re not alone! Torie Robinson, host of Epilepsy Sparks podcast, and Landis Wiedner chat and laugh about their quests for good therapists and experiences with various types of therapies, like cognitive behavior therapy (CBT).

Armed with her impressively vast knowledge of the epilepsies, Torie explains why mental healthcare goes hand in hand with epilepsy treatment.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by following and subscribing!

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

Check out Epilepsy Sparks!

Big thanks to Neurelis and SK Life Science for supporting What the EF!

Hosted on Acast. See acast.com/privacy for more information.

]]> Frustrated in your search for mental health care? You’re not alone! Torie Robinson, host of Epilepsy Sparks podcast, and Landis Wiedner chat and laugh about their quests for good therapists and experiences with various types of therapies, like cognitive behavior therapy (CBT).

Armed with her impressively vast knowledge of the epilepsies, Torie explains why mental healthcare goes hand in hand with epilepsy treatment.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by following and subscribing!

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

Check out Epilepsy Sparks!

Big thanks to Neurelis and SK Life Science for supporting What the EF!

Hosted on Acast. See acast.com/privacy for more information.

]]> Finding your path for advocacy with Dr. Takijah Heard Finding your path for advocacy with Dr. Takijah Heard Tue, 23 Jan 2024 07:00:00 GMT 27:18 5c366e3e-06eb-44f9-919e-970663f098fa true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Finding-your-path-for-advocacy-with-Dr--Takijah-Heard-e2epfuj 685d87104a2d8b8b517f6d39 685d870247311de1b6040723 full 4 4 Dr. Heard has completed medical missions across the world and won the Mrs. Illinois pageant--all for epilepsy awareness. Listen to Dr. Heard's story of why she chose to be a pediatric epileptologist and her creative approach for epilepsy education. You'll find yourself inspired to find your own form of advocacy.


Available on: ⁠YouTube⁠, ⁠Spotify⁠, ⁠Apple⁠, ⁠Google Podcasts⁠, ⁠Amazon Music⁠, & ⁠Audible⁠


Help keep What the EF going by following and subscribing!

Instagram: ⁠@whattheefpodcast⁠

YouTube: ⁠@WhatTheEFPodcast⁠

Website: ⁠whattheefpodcast.com⁠

 

Big thanks to ⁠SK Life Science⁠ and ⁠Neurelis⁠ for being awesome epilepsy awareness advocates!

Hosted on Acast. See acast.com/privacy for more information.

]]> Dr. Heard has completed medical missions across the world and won the Mrs. Illinois pageant--all for epilepsy awareness. Listen to Dr. Heard's story of why she chose to be a pediatric epileptologist and her creative approach for epilepsy education. You'll find yourself inspired to find your own form of advocacy.


Available on: ⁠YouTube⁠, ⁠Spotify⁠, ⁠Apple⁠, ⁠Google Podcasts⁠, ⁠Amazon Music⁠, & ⁠Audible⁠


Help keep What the EF going by following and subscribing!

Instagram: ⁠@whattheefpodcast⁠

YouTube: ⁠@WhatTheEFPodcast⁠

Website: ⁠whattheefpodcast.com⁠

 

Big thanks to ⁠SK Life Science⁠ and ⁠Neurelis⁠ for being awesome epilepsy awareness advocates!

Hosted on Acast. See acast.com/privacy for more information.

]]> How to heal your whole self with Terra Ann How to heal your whole self with Terra Ann Tue, 16 Jan 2024 07:15:00 GMT 40:06 0733eb14-73a5-4595-a78d-65b8852c7f35 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/How-to-heal-your-whole-self-with-Terra-Ann-e2eg2o2 685d871be36cea9c1621aebe 685d870247311de1b6040723 full 3 3 Wellness coach, Terra Ann, shares practices on how to heal our whole selves. Drawing from her own epilepsy journey, Terra Ann shares her practices of integrating food, lifestyle, and self-care into her every day. Great listen to keep up new year momentum!


Check out Terra Ann's wellness coaching here: https://www.terraann.com/


Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Help keep What the EF going by following and subscribing!

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

 

Big thanks to SK Life Science and Neurelis for believing in What the EF!

Hosted on Acast. See acast.com/privacy for more information.

]]> Wellness coach, Terra Ann, shares practices on how to heal our whole selves. Drawing from her own epilepsy journey, Terra Ann shares her practices of integrating food, lifestyle, and self-care into her every day. Great listen to keep up new year momentum!


Check out Terra Ann's wellness coaching here: https://www.terraann.com/


Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Help keep What the EF going by following and subscribing!

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

 

Big thanks to SK Life Science and Neurelis for believing in What the EF!

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[It's OK not to be OK with Kelly Cervantes]]> Tue, 09 Jan 2024 07:01:00 GMT 33:39 8153fc75-747e-4cd9-b9c5-e4aef01f6b18 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Its-OK-not-to-be-OK-with-Kelly-Cervantes-e2e673l 685d871a7cd58072a5f963e4 685d870247311de1b6040723 full 4 1 Bestselling author of NORMAL BROKEN, Kelly Cervantes, talks about what to do when life feels unsurvivable. She shares her experience and coping mechanisms--including feel like a deranged dancing chicken.


WIN A SIGNED COPY OF NORMAL BROKEN

1. Follow and DM What the EF on Instagram: @whattheefpodcast

2. You're entered to win!


Shop local for NORMAL BROKEN

1. Request a signed copy with purchase at Kelly’s fave shop: words bookstore https://wordsbookstore.com/

2. Purchase a copy from Landis’s fave shop: Semicolon Books https://bookshop.org/shop/Semicolonchi


For more info about CURE Epilepsy, check out their website:https://www.cureepilepsy.org/


Big thanks to Neurelis and SK Life Science for doing the deranged chicken dance with us!

Hosted on Acast. See acast.com/privacy for more information.

]]> Bestselling author of NORMAL BROKEN, Kelly Cervantes, talks about what to do when life feels unsurvivable. She shares her experience and coping mechanisms--including feel like a deranged dancing chicken.


WIN A SIGNED COPY OF NORMAL BROKEN

1. Follow and DM What the EF on Instagram: @whattheefpodcast

2. You're entered to win!


Shop local for NORMAL BROKEN

1. Request a signed copy with purchase at Kelly’s fave shop: words bookstore https://wordsbookstore.com/

2. Purchase a copy from Landis’s fave shop: Semicolon Books https://bookshop.org/shop/Semicolonchi


For more info about CURE Epilepsy, check out their website:https://www.cureepilepsy.org/


Big thanks to Neurelis and SK Life Science for doing the deranged chicken dance with us!

Hosted on Acast. See acast.com/privacy for more information.

]]> Dudes and dating, part 2 with Brendan Wolfe Dudes and dating, part 2 with Brendan Wolfe Tue, 02 Jan 2024 10:40:33 GMT 41:57 551aa216-6716-4bb1-b4cd-62c6b217c4a4 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Dudes-and-dating--part-2-with-Brendan-Wolfe-e2dr07m 685d871de36cea9c1621aef9 685d870247311de1b6040723 full 4 1 @whattheefpodcastYouTube: @WhatTheEFPodcastWebsite: whattheefpodcast.comThank you SK Life Science and Neurelis! You had us at hello. 💜Want a Henry's Heart necklace? All proceeds go to epilepsy causes!Check out Henry's Heroes Foundation and reach out to Nancy!https://henrysheroesfoundation.org/

Hosted on Acast. See acast.com/privacy for more information.

]]> @whattheefpodcastYouTube: @WhatTheEFPodcastWebsite: whattheefpodcast.comThank you SK Life Science and Neurelis! You had us at hello. 💜Want a Henry's Heart necklace? All proceeds go to epilepsy causes!Check out Henry's Heroes Foundation and reach out to Nancy!https://henrysheroesfoundation.org/

Hosted on Acast. See acast.com/privacy for more information.

]]> What the ELF - 5 tips to survive the holidays What the ELF - 5 tips to survive the holidays Thu, 30 Nov 2023 07:40:00 GMT 16:05 eef9ec75-6dbf-4e2f-aa97-5b09147c675a true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/What-the-ELF---5-tips-to-survive-the-holidays-e2cjdrs 685d87150904b52e46e248e0 685d870247311de1b6040723 full 3 9 https://wtefpodcastshop.etsy.com

Hosted on Acast. See acast.com/privacy for more information.

]]> https://wtefpodcastshop.etsy.com

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[What's a non-epileptic seizure? with Dr. Strom and Meagan Watson]]> Tue, 31 Oct 2023 06:27:00 GMT 41:47 6f4b411f-c48f-42f6-a00c-2182adf8b7c7 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Whats-a-non-epileptic-seizure--with-Dr--Strom-and-Meagan-Watson-e2b8r59 685d871c7cd58072a5f9650b 685d870247311de1b6040723 full 3 8 If you’ve never heard of a non-epileptic seizure (NES), neither had we! Dr. Strom and Meagan clear up the confusion for us and explain why docs are reluctant to talk about NES.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

That’s a wrap on Seizen 3! Thank you to all the listeners and Neurelis and SK Life Science for supporting this podcast!

Fave of the Week!

Temporal Tees - funny epilepsy merch :)

Resources mentioned in the episode:

FND Hope

Colorado University NES Clinic

FND Guide

Hosted on Acast. See acast.com/privacy for more information.

]]> If you’ve never heard of a non-epileptic seizure (NES), neither had we! Dr. Strom and Meagan clear up the confusion for us and explain why docs are reluctant to talk about NES.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

That’s a wrap on Seizen 3! Thank you to all the listeners and Neurelis and SK Life Science for supporting this podcast!

Fave of the Week!

Temporal Tees - funny epilepsy merch :)

Resources mentioned in the episode:

FND Hope

Colorado University NES Clinic

FND Guide

Hosted on Acast. See acast.com/privacy for more information.

]]> Spotlighting teens living with epilepsy with Miles Levin Spotlighting teens living with epilepsy with Miles Levin Tue, 24 Oct 2023 06:37:00 GMT 46:18 a7e13fe1-4785-4cac-8285-073cc51cf564 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Spotlighting-teens-living-with-epilepsy-with-Miles-Levin-e2av3ur 685d87134a2d8b8b517f6dfd 685d870247311de1b6040723 full 3 7 Being a teenager is hard enough. Being a teen with epilepsy is what filmmaker Miles Levin seeks to showcase in his short film Under the Lights. Miles shares why he made the film as well as his personal experience with epilepsy in high school and how that compares to adulthood.

Available on: YouTube, Spotify, Apple, Google Podcasts, AmazonMusic, & Audible

Thank you SK Life Science and Neurelis for making these conversations possible!

Support What the EF!

Subscribe to WTEF YouTube channel: @WhatTheEFPodcast Follow onInstagram: @WhatTheEFPodcast Subscribe to the newsletter: https://www.whattheefpodcast.com/

Fave of the Week!

Epilepsy Foundation of Greater Chicago

If you're in Chicagoland, come to...

Consumer Event on 10/28/23!! Register here.

Casino Night on 11/4/23!! :) Buy tix here.

Miles Levin's Work!

Check out Under the Lights short film

Support the feature film: https://www.underthelightsfilm.com/

Living Well With Epilepsy Shop!

Get 15% off with this code - WHATTHEEFPODhttps://www.etsy.com/shop/lwwedesigns

Hosted on Acast. See acast.com/privacy for more information.

]]> Being a teenager is hard enough. Being a teen with epilepsy is what filmmaker Miles Levin seeks to showcase in his short film Under the Lights. Miles shares why he made the film as well as his personal experience with epilepsy in high school and how that compares to adulthood.

Available on: YouTube, Spotify, Apple, Google Podcasts, AmazonMusic, & Audible

Thank you SK Life Science and Neurelis for making these conversations possible!

Support What the EF!

Subscribe to WTEF YouTube channel: @WhatTheEFPodcast Follow onInstagram: @WhatTheEFPodcast Subscribe to the newsletter: https://www.whattheefpodcast.com/

Fave of the Week!

Epilepsy Foundation of Greater Chicago

If you're in Chicagoland, come to...

Consumer Event on 10/28/23!! Register here.

Casino Night on 11/4/23!! :) Buy tix here.

Miles Levin's Work!

Check out Under the Lights short film

Support the feature film: https://www.underthelightsfilm.com/

Living Well With Epilepsy Shop!

Get 15% off with this code - WHATTHEEFPODhttps://www.etsy.com/shop/lwwedesigns

Hosted on Acast. See acast.com/privacy for more information.

]]> How does marriage work with epilepsy? with Tiffany Kairos How does marriage work with epilepsy? with Tiffany Kairos Tue, 17 Oct 2023 06:14:00 GMT 34:52 af5a4ab0-3979-43b7-8d6d-eb90e47f41fd true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/How-does-marriage-work-with-epilepsy--with-Tiffany-Kairos-e2al1ke 685d8719e36cea9c1621ae2e 685d870247311de1b6040723 full 3 6 This week we chat with the queen of epilepsy advocacy, Tiffany Kairos, and ask the questions that can’t be answered in a doc’s office. Like…what does a marriage look like when epilepsy enters after the wedding day?

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow WTEF on Insta! @whattheefpodcast

Subscribe to WTEF YouTube channel! @WhatTheEFPodcast

Stay in touch with WTEF newsletter! whattheefpodcast.com

Big thanks to Neurelis and SK Life Science for puttin’ a ring on it!

Mentioned in the episode:

Fave of the Week!

Christopher's Bakery - 15% off PROMO code: epilepsy15


Tiffany's resources:

Rise Above Epilepsy

The Epilepsy Network

Hosted on Acast. See acast.com/privacy for more information.

]]> This week we chat with the queen of epilepsy advocacy, Tiffany Kairos, and ask the questions that can’t be answered in a doc’s office. Like…what does a marriage look like when epilepsy enters after the wedding day?

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow WTEF on Insta! @whattheefpodcast

Subscribe to WTEF YouTube channel! @WhatTheEFPodcast

Stay in touch with WTEF newsletter! whattheefpodcast.com

Big thanks to Neurelis and SK Life Science for puttin’ a ring on it!

Mentioned in the episode:

Fave of the Week!

Christopher's Bakery - 15% off PROMO code: epilepsy15


Tiffany's resources:

Rise Above Epilepsy

The Epilepsy Network

Hosted on Acast. See acast.com/privacy for more information.

]]> The guy behind the American Disabilities Act with Tony Coelho The guy behind the American Disabilities Act with Tony Coelho Tue, 10 Oct 2023 16:19:25 GMT 44:34 29a3d7e8-8c26-41b5-b1b7-25acbb3aef52 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/The-guy-behind-the-American-Disabilities-Act-with-Tony-Coelho-e2a8nhs 685d871b0904b52e46e24a7f 685d870247311de1b6040723 full 3 5 Here’s something to tell your boss--the primary sponsor of the ADA also has epilepsy! We chat with Tony about his vigorous fight to get it passed and his mind-blowing journey with seizures.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Big thanks to SK Life Science and Neurelis for making these convos possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> Here’s something to tell your boss--the primary sponsor of the ADA also has epilepsy! We chat with Tony about his vigorous fight to get it passed and his mind-blowing journey with seizures.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Big thanks to SK Life Science and Neurelis for making these convos possible!

Hosted on Acast. See acast.com/privacy for more information.

]]> Still surfing: water safety and epilepsy with Jared Muscat Still surfing: water safety and epilepsy with Jared Muscat Tue, 03 Oct 2023 05:00:00 GMT 29:24 4a2e1119-bc13-4de8-acaa-1199ccab2469 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Still-surfing-water-safety-and-epilepsy-with-Jared-Muscat-e29tegq 685d87144a2d8b8b517f6e35 685d870247311de1b6040723 full 3 4 This Tuesday, Landis chats with Jared Muscat about why he wouldn’t let epilepsy stop him from doing his favorite thing: surfing. Water safety is tricky when it comes to seizures, and Jared shares how to stay safe without giving up your passion—no matter what it is.

Shout out to Neurelis and SK Life Science for helping put these important convos out there!

Please subscribe to our YouTube channel:  @WhatTheEFPodcast 

Mentioned in this episode (and NOT paid promos):

Our fave of the week is the amazing organization ⁠Angels of Epilepsy⁠!

Living Well With Epilepsy Shop: Get 15% off with this code - WHATTHEEFPOD

Henry's Heroes Foundation: reach out to Nancy for a heart necklace

Paul's Purple Warriors

ADA service dog requirements


Hosted on Acast. See acast.com/privacy for more information.

]]> This Tuesday, Landis chats with Jared Muscat about why he wouldn’t let epilepsy stop him from doing his favorite thing: surfing. Water safety is tricky when it comes to seizures, and Jared shares how to stay safe without giving up your passion—no matter what it is.

Shout out to Neurelis and SK Life Science for helping put these important convos out there!

Please subscribe to our YouTube channel:  @WhatTheEFPodcast 

Mentioned in this episode (and NOT paid promos):

Our fave of the week is the amazing organization ⁠Angels of Epilepsy⁠!

Living Well With Epilepsy Shop: Get 15% off with this code - WHATTHEEFPOD

Henry's Heroes Foundation: reach out to Nancy for a heart necklace

Paul's Purple Warriors

ADA service dog requirements


Hosted on Acast. See acast.com/privacy for more information.

]]> The breakdown on SUDEP with Dr. Kim Pargeon The breakdown on SUDEP with Dr. Kim Pargeon Tue, 26 Sep 2023 06:00:00 GMT 38:38 695c372b-293a-42a4-8d55-b7720f2db587 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/The-breakdown-on-SUDEP-with-Dr--Kim-Pargeon-e29m9j4 685d8719e36cea9c1621ae3f 685d870247311de1b6040723 full 3 3 In this episode, we tackle an audience-requested topic: SUDEP. There are so many questions, and Dr. Kim Pargeon guides us through all of them.

Available on your fave streaming services!

YouTube, Spotify, Apple, Google Podcasts, Amazon Music, Audible


Faves of the Week are The Cameron Boyce Foundation and The Danny Did Foundation! Thank you for bringing awareness about SUDEP to our community!


Help keep WTEF going!

Follow us on Insta: @whattheefpodcast

Subscribe to our YouTube channel: @WhatTheEFPodcast

Sign up for our newsletters: whattheefpodcast.com

 

Big thanks to SK Life Science and Neurelis for believing in our podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> In this episode, we tackle an audience-requested topic: SUDEP. There are so many questions, and Dr. Kim Pargeon guides us through all of them.

Available on your fave streaming services!

YouTube, Spotify, Apple, Google Podcasts, Amazon Music, Audible


Faves of the Week are The Cameron Boyce Foundation and The Danny Did Foundation! Thank you for bringing awareness about SUDEP to our community!


Help keep WTEF going!

Follow us on Insta: @whattheefpodcast

Subscribe to our YouTube channel: @WhatTheEFPodcast

Sign up for our newsletters: whattheefpodcast.com

 

Big thanks to SK Life Science and Neurelis for believing in our podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Support groups could be your new dating app with Abby & Colin Bodie]]> Tue, 19 Sep 2023 06:00:00 GMT 37:59 d826ff96-8563-4c70-afc8-616e29749e2c true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Support-groups-could-be-your-new-dating-app-with-Abby--Colin-Bodie-e29feod 685d87170904b52e46e24936 685d870247311de1b6040723 full 3 2 This episode has the world’s best meet-cute and what dating with empathy looks like. Calling in from Scotland, Abby and Colin share their love story and how it feels being with someone who truly getsit.

Available on your fave streaming platform: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Help keep What the EF going!

Follow on Instagram: @whattheefpodcast

Subscribe on YouTube: @WhatTheEFPodcast

Get the newsletter: whattheefpodcast.com

 

Big thanks to Neurelis and SK Life Science for helping make dreams come true by supporting What the EF!

Hosted on Acast. See acast.com/privacy for more information.

]]> This episode has the world’s best meet-cute and what dating with empathy looks like. Calling in from Scotland, Abby and Colin share their love story and how it feels being with someone who truly getsit.

Available on your fave streaming platform: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Help keep What the EF going!

Follow on Instagram: @whattheefpodcast

Subscribe on YouTube: @WhatTheEFPodcast

Get the newsletter: whattheefpodcast.com

 

Big thanks to Neurelis and SK Life Science for helping make dreams come true by supporting What the EF!

Hosted on Acast. See acast.com/privacy for more information.

]]> How to have a career and manage epilepsy with Jennifer Reyes How to have a career and manage epilepsy with Jennifer Reyes Tue, 12 Sep 2023 06:00:00 GMT 58:10 cb2e04c2-0ed6-4bd5-9079-d76d9f5b5a36 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/How-to-have-a-career-and-manage-epilepsy-with-Jennifer-Reyes-e293075 685d871d0904b52e46e24acb 685d870247311de1b6040723 full 3 1 We kick off Seizen 3 with Jennifer Reyes on her strategies for the awkward convos at work about seizures or needing accommodations (which are legally required but hard to ask for). Grab a pen because you’ll want to write these tips down!

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Instagram: @whattheefpodcast

Subscribe to our newsletter here: whattheefpodcast.com

Big thanks to SK Life Science and Neurelis for believing in our podcast!

Fave of the week! 1:26 The Art of Epilepsy - Hidden Truths

Upcoming events: 9/30/23 - Boston; 11/11/23 - Newport Beach

Learn more about Lexington Coaching!

Hosted on Acast. See acast.com/privacy for more information.

]]> We kick off Seizen 3 with Jennifer Reyes on her strategies for the awkward convos at work about seizures or needing accommodations (which are legally required but hard to ask for). Grab a pen because you’ll want to write these tips down!

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Instagram: @whattheefpodcast

Subscribe to our newsletter here: whattheefpodcast.com

Big thanks to SK Life Science and Neurelis for believing in our podcast!

Fave of the week! 1:26 The Art of Epilepsy - Hidden Truths

Upcoming events: 9/30/23 - Boston; 11/11/23 - Newport Beach

Learn more about Lexington Coaching!

Hosted on Acast. See acast.com/privacy for more information.

]]> Do you believe in miracles? with Paige Figi Do you believe in miracles? with Paige Figi Tue, 27 Jun 2023 06:03:45 GMT 43:55 95116de8-bd74-4a9c-bdaf-ded341cb86c2 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Do-you-believe-in-miracles--with-Paige-Figi-e267esv 685d87137cd58072a5f961f3 685d870247311de1b6040723 full 2 8 We lowkey fangirled meeting Paige Figi—the legit pioneer of legalizing CBD for medical use. She turned her home into a haven for people trying to get CBD access in Colorado. Nowadays, she’s throwing out the first pitch at a Yankees game and fighting on the Hill for better regulatory practices.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible 

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast

 

That’s a wrap on Seizen 2! Thank you Neurelis and SK Life Science for supporting this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> We lowkey fangirled meeting Paige Figi—the legit pioneer of legalizing CBD for medical use. She turned her home into a haven for people trying to get CBD access in Colorado. Nowadays, she’s throwing out the first pitch at a Yankees game and fighting on the Hill for better regulatory practices.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible 

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast

 

That’s a wrap on Seizen 2! Thank you Neurelis and SK Life Science for supporting this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Coach, I don't think we're in Kansas anymore with Alison Appleby]]> Tue, 20 Jun 2023 06:08:12 GMT 40:36 64e0b278-d75b-4180-bdb6-7cd7078f2228 false https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Coach--I-dont-think-were-in-Kansas-anymore-with-Alison-Appleby-e25m3kr 685d87144a2d8b8b517f6e3c 685d870247311de1b6040723 full 2 7 From pageants to archery, Alison Appleby has refuted the idea of “can’t” over and over again. We chat with Alison about the hurdles and help—especially from her adorable service dog, Brady--she faced with epilepsy and why these inspired her to give back. She’d proving anything is paw-sible!

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast


Thank you SK Life Science and Neurelis, our fur-ever friends!


Learn your rights on service dogs under the American Disabilities here.

Epilepsy Fave of the Week: Milo & Me

Hosted on Acast. See acast.com/privacy for more information.

]]> From pageants to archery, Alison Appleby has refuted the idea of “can’t” over and over again. We chat with Alison about the hurdles and help—especially from her adorable service dog, Brady--she faced with epilepsy and why these inspired her to give back. She’d proving anything is paw-sible!

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast


Thank you SK Life Science and Neurelis, our fur-ever friends!


Learn your rights on service dogs under the American Disabilities here.

Epilepsy Fave of the Week: Milo & Me

Hosted on Acast. See acast.com/privacy for more information.

]]> Like back in the 80s when bad meant good with Elliott DeVore Like back in the 80s when bad meant good with Elliott DeVore Tue, 13 Jun 2023 11:53:08 GMT 41:30 34f5233c-4776-46d0-8bdd-e904b06a2460 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Like-back-in-the-80s-when-bad-meant-good-with-Elliott-DeVore-e25kftk 685d8715e36cea9c1621ad2e 685d870247311de1b6040723 full 2 6 As if moving to a new city isn’t hard enough, Elliott DeVore was diagnosed with epilepsy just months later. Then undiagnosed. Then maybediagnosed? We chat about the mind-numbing questions we all face. Like…do I even have it? Are these seizures or med side effects? Do I tell work or new friends or a date I have epilepsy? What the EF?? 

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast

 

Big thanks to Neurelis and SK Life Science for helping us bring the 80s back!

Hosted on Acast. See acast.com/privacy for more information.

]]> As if moving to a new city isn’t hard enough, Elliott DeVore was diagnosed with epilepsy just months later. Then undiagnosed. Then maybediagnosed? We chat about the mind-numbing questions we all face. Like…do I even have it? Are these seizures or med side effects? Do I tell work or new friends or a date I have epilepsy? What the EF?? 

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast

 

Big thanks to Neurelis and SK Life Science for helping us bring the 80s back!

Hosted on Acast. See acast.com/privacy for more information.

]]> Barbecue sauce with John Bramblitt Barbecue sauce with John Bramblitt Tue, 06 Jun 2023 06:34:29 GMT 53:51 f4478c66-27eb-4c53-8b62-c9bb04c56482 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Barbecue-sauce-with-John-Bramblitt-e25931p 685d871a4a2d8b8b517f6fff 685d870247311de1b6040723 full 2 5 After epilepsy made him go blind in college, John Bramblitt turned his sketching hobby into a painting career. (As one does.) But what surprised the hell out of us even more is John’s perspective on what it’s like living with both invisible and visible disabilities.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

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Big thanks to SK Life Science and Neurelis for putting the B in our BBQ sauce!

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]]> After epilepsy made him go blind in college, John Bramblitt turned his sketching hobby into a painting career. (As one does.) But what surprised the hell out of us even more is John’s perspective on what it’s like living with both invisible and visible disabilities.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast


Big thanks to SK Life Science and Neurelis for putting the B in our BBQ sauce!

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]]> Believe in believe with Trevon Sundiata Ferguson Believe in believe with Trevon Sundiata Ferguson Tue, 30 May 2023 06:45:06 GMT 1:00:03 1e01e101-530e-4780-99a1-a143b5d932ab true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Believe-in-believe-with-Trevon-Sundiata-Ferguson-e24pfkb 685d871347311de1b6040da8 685d870247311de1b6040723 full 2 4 We chat with Trevon Sundiata Ferguson, a combat vet who was diagnosed with epilepsy in his 40s. He shares how he went from a “lightbulb that’s fading out” to the inspiring, motivational speaker—and the phenomenal athlete he is today.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Follow us on Insta! @whattheefpodcast

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Subscribe to our YouTube! @WhatTheEFPodcast


Shout out to Neurelis and SK Life Science for helping us put these important convos out there!

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]]> We chat with Trevon Sundiata Ferguson, a combat vet who was diagnosed with epilepsy in his 40s. He shares how he went from a “lightbulb that’s fading out” to the inspiring, motivational speaker—and the phenomenal athlete he is today.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Follow us on Insta! @whattheefpodcast

Join our email fam! whattheefpodcast.com

Subscribe to our YouTube! @WhatTheEFPodcast


Shout out to Neurelis and SK Life Science for helping us put these important convos out there!

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]]> <![CDATA[I shouldn't bring an umbrella to a brainstorm with Lisa Lindahl]]> Tue, 23 May 2023 05:07:04 GMT 52:22 07b52f4a-39a0-4b96-bac9-117846bb5cde true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/I-shouldnt-bring-an-umbrella-to-a-brainstorm-with-Lisa-Lindahl-e23sroo 685d87160904b52e46e2490d 685d870247311de1b6040723 full 2 3 Lisa Lindahl is the inventor of the sports bra. ‘Nuff said. Lisa’s mom told her that epilepsy meant zero expectations of Lisa accomplishing anything. Instead, Lisa paved the way for female entrepreneurs and people living with epilepsy. We chatted with this icon about how much things have changed—and what still needs changing—in this inspiring episode.


Check out Lisa's books and art! www.lisalindahl.com

Subscribe to our YouTube channel!

Follow us on Insta! @whattheefpodcast Join our email fam! whattheefpodcast.com

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Big thanks to SK Life Science and Neurelis for helping us create change through this podcast!

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]]> Lisa Lindahl is the inventor of the sports bra. ‘Nuff said. Lisa’s mom told her that epilepsy meant zero expectations of Lisa accomplishing anything. Instead, Lisa paved the way for female entrepreneurs and people living with epilepsy. We chatted with this icon about how much things have changed—and what still needs changing—in this inspiring episode.


Check out Lisa's books and art! www.lisalindahl.com

Subscribe to our YouTube channel!

Follow us on Insta! @whattheefpodcast Join our email fam! whattheefpodcast.com

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Big thanks to SK Life Science and Neurelis for helping us create change through this podcast!

Hosted on Acast. See acast.com/privacy for more information.

]]> Be curious, not judgmental with Madeleine Khamnei Be curious, not judgmental with Madeleine Khamnei Tue, 16 May 2023 05:22:36 GMT 1:01:27 457ddc37-a84e-456c-a541-d27601d14cdb true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Be-curious--not-judgmental-with-Madeleine-Khamnei-e232mm1 685d87180904b52e46e24958 685d870247311de1b6040723 full 2 2 Time after time, the word “epilepsy” got in the way of Madeleine Khamnei’s dreams. What did she do about it? She kept getting back up (sometimes literally), creating new goals, and continues to kick ass at them. We unpack it all—the struggle of college, jobs, and dating. Our jaws are pretty much on the floor as Madeleine shares with us her secret to not let seizures determine her lifestyle.


Subscribe to our ⁠YouTube channel⁠!

Follow us on Insta! ⁠@whattheefpodcast⁠ Join our email fam! ⁠whattheefpodcast.com⁠

Available on: ⁠YouTube⁠, ⁠Spotify⁠, ⁠Apple⁠, ⁠Google Podcasts⁠, ⁠Amazon Music⁠, & ⁠Audible⁠

Big thanks to ⁠Neurelis⁠ and SK Life Science for helping make our dreams come true in creating What the EF!


Hosted on Acast. See acast.com/privacy for more information.

]]> Time after time, the word “epilepsy” got in the way of Madeleine Khamnei’s dreams. What did she do about it? She kept getting back up (sometimes literally), creating new goals, and continues to kick ass at them. We unpack it all—the struggle of college, jobs, and dating. Our jaws are pretty much on the floor as Madeleine shares with us her secret to not let seizures determine her lifestyle.


Subscribe to our ⁠YouTube channel⁠!

Follow us on Insta! ⁠@whattheefpodcast⁠ Join our email fam! ⁠whattheefpodcast.com⁠

Available on: ⁠YouTube⁠, ⁠Spotify⁠, ⁠Apple⁠, ⁠Google Podcasts⁠, ⁠Amazon Music⁠, & ⁠Audible⁠

Big thanks to ⁠Neurelis⁠ and SK Life Science for helping make our dreams come true in creating What the EF!


Hosted on Acast. See acast.com/privacy for more information.

]]> Be a goldfish with Jeff Parent Be a goldfish with Jeff Parent Tue, 09 May 2023 05:00:12 GMT 54:53 c2ce7756-dc19-4f07-a84e-db35a2cd49a1 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Be-a-goldfish-with-Jeff-Parent-e232ilu 685d871a47311de1b6040f5f 685d870247311de1b6040723 full 2 1 We kick off Seizen 2 of with professional powerhouse Jeff Parent who’s a president of Toyota AND the Epilepsy Foundation of America Board. (no biggie.) We chat with Jeff about what it’s like when you, your dad, and two of your kids have epilepsy. And maybe grab the tissues—because the reason Jeff became an advocate is pretty beautiful.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Subscribe to our YouTube! ⁠@WhatTheEFPodcast⁠

Follow us on Instagram! @whattheefpodcast

Join our email fam! whattheefpodcast.com


Big thanks to SK Life Science and Neurelis for believing in our podcast!



Hosted on Acast. See acast.com/privacy for more information.

]]> We kick off Seizen 2 of with professional powerhouse Jeff Parent who’s a president of Toyota AND the Epilepsy Foundation of America Board. (no biggie.) We chat with Jeff about what it’s like when you, your dad, and two of your kids have epilepsy. And maybe grab the tissues—because the reason Jeff became an advocate is pretty beautiful.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Subscribe to our YouTube! ⁠@WhatTheEFPodcast⁠

Follow us on Instagram! @whattheefpodcast

Join our email fam! whattheefpodcast.com


Big thanks to SK Life Science and Neurelis for believing in our podcast!



Hosted on Acast. See acast.com/privacy for more information.

]]> How this bad ass owned her epilepsy with Eli Corbett How this bad ass owned her epilepsy with Eli Corbett Tue, 28 Feb 2023 07:00:10 GMT 46:41 b7f2254b-f0fb-4dd7-af89-b85ec1c4e2df true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/How-this-bad-ass-owned-her-epilepsy-with-Eli-Corbett-e1v38ag 685d871ae36cea9c1621ae8a 685d870247311de1b6040723 full 1 8 Diagnosed with epilepsy as a teen, Eli did what many of us have done: hid it from everyone and pretended it’s not there. Years later as a practicing attorney, a higher up told her that if she wanted to be successful, she needed to keep her diagnosis to herself. Instead, she chose to tell everyone. 

By owning her story, Eli shares how it helped her go farther and opened doors she never even imagined.

Thank you to our Seizen 1 sponsors Neurelis and SK life science!

Join our What the EF fam and subscribe to our newsletter to get news about Seizen 2!

Use the code WTEF20 to get 20% Neureka sleep monitoring

Hosted on Acast. See acast.com/privacy for more information.

]]> Diagnosed with epilepsy as a teen, Eli did what many of us have done: hid it from everyone and pretended it’s not there. Years later as a practicing attorney, a higher up told her that if she wanted to be successful, she needed to keep her diagnosis to herself. Instead, she chose to tell everyone. 

By owning her story, Eli shares how it helped her go farther and opened doors she never even imagined.

Thank you to our Seizen 1 sponsors Neurelis and SK life science!

Join our What the EF fam and subscribe to our newsletter to get news about Seizen 2!

Use the code WTEF20 to get 20% Neureka sleep monitoring

Hosted on Acast. See acast.com/privacy for more information.

]]> The epilepsy elephant in the room with Natalie Beavers The epilepsy elephant in the room with Natalie Beavers Tue, 21 Feb 2023 07:01:38 GMT 50:28 71f9bbaf-d90e-4943-a2fd-13bcaa75ce75 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/The-epilepsy-elephant-in-the-room-with-Natalie-Beavers-e1uva59 685d871b47311de1b6040f76 685d870247311de1b6040723 full 1 7 Diagnosed at age 5, Natalie Beavers addresses the giant learning curve that ensued for her and her family. She shares how self-advocacy ultimately led to creating a safe environment for herself and the epilepsy community. We’re super grateful for Natalie addressing the epilepsy elephant in the room: depression.

Natalie talks about her experiences, attempting to take her own life, and how she moved forward from that moment to create an empire that would ultimately serve others and give her purpose to get up every day.

If you're having suicidal thoughts, you can call 988 for help or check out 988 Lifeline resources here: https://988lifeline.org/

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter here! whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Diagnosed at age 5, Natalie Beavers addresses the giant learning curve that ensued for her and her family. She shares how self-advocacy ultimately led to creating a safe environment for herself and the epilepsy community. We’re super grateful for Natalie addressing the epilepsy elephant in the room: depression.

Natalie talks about her experiences, attempting to take her own life, and how she moved forward from that moment to create an empire that would ultimately serve others and give her purpose to get up every day.

If you're having suicidal thoughts, you can call 988 for help or check out 988 Lifeline resources here: https://988lifeline.org/

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter here! whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Dudes and dating with Dr. Brad Ingram Dudes and dating with Dr. Brad Ingram Tue, 14 Feb 2023 07:00:16 GMT 55:37 cc10b4fd-1fa7-4da4-855a-8ca34e489ad6 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Dudes-and-dating-with-Dr--Brad-Ingram-e1uc8gh 685d871b0904b52e46e24a89 685d870247311de1b6040723 full 1 6 Perfect Valentine’s Day episode! As a pediatric epileptologist living with epilepsy, Dr. Ingram has a unique perspective—and one that doesn’t get a lot of attention: being a male living with epilepsy. He shares struggles he faced that never occurred to us, like being a teenager and unable to pick up a date from her house…because he can’t legally drive. 

Dr. Ingram addresses societal expectations that men face (like being the tough guy), how these are heightened when dealing with a chronic illness, and how to show true strength by rejecting those standards.

Thank you to our Seizen 1 sponsors Neurelis and SK life science!

Subscribe to our newsletter here! whattheefpodcast.com

Feb. 13-20 is Seizure Action Plan Awareness Week!

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

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]]> Perfect Valentine’s Day episode! As a pediatric epileptologist living with epilepsy, Dr. Ingram has a unique perspective—and one that doesn’t get a lot of attention: being a male living with epilepsy. He shares struggles he faced that never occurred to us, like being a teenager and unable to pick up a date from her house…because he can’t legally drive. 

Dr. Ingram addresses societal expectations that men face (like being the tough guy), how these are heightened when dealing with a chronic illness, and how to show true strength by rejecting those standards.

Thank you to our Seizen 1 sponsors Neurelis and SK life science!

Subscribe to our newsletter here! whattheefpodcast.com

Feb. 13-20 is Seizure Action Plan Awareness Week!

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> So...can I have kids? with Dr. Alexa King So...can I have kids? with Dr. Alexa King Tue, 07 Feb 2023 13:20:23 GMT 35:21 6c4360b8-22ff-407a-b220-c1cb22f0dd60 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/So---can-I-have-kids--with-Dr--Alexa-King-e1ujla1 685d871947311de1b6040ed5 685d870247311de1b6040723 full 1 5 Dr. King educates us on that burning question that many of us female epileptics have...can I have kids, and if so, what is that going to look like for me?

An epileptologist who specializes in women’s health, Dr. King shares her vast knowledge on birth control, med changes/adjustments, and how to work with your own doctor during this journey.

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Use the code WTEF20 to get 20% off Neureka sleep monitoring!

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Subscribe to our newsletter here! whattheefpodcast.com

Hosted on Acast. See acast.com/privacy for more information.

]]> Dr. King educates us on that burning question that many of us female epileptics have...can I have kids, and if so, what is that going to look like for me?

An epileptologist who specializes in women’s health, Dr. King shares her vast knowledge on birth control, med changes/adjustments, and how to work with your own doctor during this journey.

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Use the code WTEF20 to get 20% off Neureka sleep monitoring!

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Subscribe to our newsletter here! whattheefpodcast.com

Hosted on Acast. See acast.com/privacy for more information.

]]> Caretaking is sometimes letting go with Mary Laura Philpott Caretaking is sometimes letting go with Mary Laura Philpott Tue, 31 Jan 2023 07:31:46 GMT 33:20 4cb51f49-9e52-4365-804e-94222bee6341 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Caretaking-is-sometimes-letting-go-with-Mary-Laura-Philpott-e1t4nhg 685d871a4a2d8b8b517f6fdf 685d870247311de1b6040723 full 1 4 Bestselling author Mary Laura Philpott walks us through the moment that her and her family’s life was changed forever: her teenage son’s first seizure. She shares how she came to differentiate her experience as a mother and her son’s experience as the person living with epilepsy. 

Mary Laura also brings to light the excruciating battle of having to let her child “spread his wings.” Like so many parents who want to wrap their children in bubble wrap, Mary Laura understands the importance of letting hers experience life.

Thank you to our Seizen 1 sponsors Neurelis and SK life science!

Subscribe to our newsletter here! whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Hosted on Acast. See acast.com/privacy for more information.

]]> Bestselling author Mary Laura Philpott walks us through the moment that her and her family’s life was changed forever: her teenage son’s first seizure. She shares how she came to differentiate her experience as a mother and her son’s experience as the person living with epilepsy. 

Mary Laura also brings to light the excruciating battle of having to let her child “spread his wings.” Like so many parents who want to wrap their children in bubble wrap, Mary Laura understands the importance of letting hers experience life.

Thank you to our Seizen 1 sponsors Neurelis and SK life science!

Subscribe to our newsletter here! whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Hosted on Acast. See acast.com/privacy for more information.

]]> <![CDATA[Ef, I have epilepsy. Now what? with Kenzie O'Connell]]> Tue, 24 Jan 2023 07:33:05 GMT 30:33 9a965dae-41dd-41cf-9f9b-fc2e71e4e935 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Ef--I-have-epilepsy--Now-what--with-Kenzie-OConnell-e1t4n1i 685d87190904b52e46e249aa 685d870247311de1b6040723 full 1 3 Struggling to find a neurologist? You’re not alone. Kenzie O’Connell tells us about trying to find a doc that was the best fit for her and the stressors that surface going into any neuro appointment like: “Is this my fault? Did I cause a seizure? What am I doing wrong?” We also chat about what to do when we feel like a burden to our loved ones and how each of us was able to accept our epilepsy.

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter! Go to: whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Hosted on Acast. See acast.com/privacy for more information.

]]> Struggling to find a neurologist? You’re not alone. Kenzie O’Connell tells us about trying to find a doc that was the best fit for her and the stressors that surface going into any neuro appointment like: “Is this my fault? Did I cause a seizure? What am I doing wrong?” We also chat about what to do when we feel like a burden to our loved ones and how each of us was able to accept our epilepsy.

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter! Go to: whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible


Hosted on Acast. See acast.com/privacy for more information.

]]> Lights, Camera, Seizure! with Sarah Carlson Lights, Camera, Seizure! with Sarah Carlson Tue, 17 Jan 2023 11:00:16 GMT 38:34 33474c44-dd3a-4e12-a804-b9cbcbfe11e8 true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Lights--Camera--Seizure--with-Sarah-Carlson-e1st8s6 685d871a0904b52e46e24a2e 685d870247311de1b6040723 full 1 2 Sarah has a unique experience of how her epilepsy diagnosis came to light…literally. A former news anchor, Sarah had a seizure while on air, which ended up costing her job. During her two-year search for a diagnosis, Sarah also lost her license, kids, and marriage. She shares with us how she got to where she is today: working at a job she loves, running marathons, and—most importantly—being a mother to her children.

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter! Go to: whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

(Here's the article about Sarah mentioned in this episode.)

Hosted on Acast. See acast.com/privacy for more information.

]]> Sarah has a unique experience of how her epilepsy diagnosis came to light…literally. A former news anchor, Sarah had a seizure while on air, which ended up costing her job. During her two-year search for a diagnosis, Sarah also lost her license, kids, and marriage. She shares with us how she got to where she is today: working at a job she loves, running marathons, and—most importantly—being a mother to her children.

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter! Go to: whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

(Here's the article about Sarah mentioned in this episode.)

Hosted on Acast. See acast.com/privacy for more information.

]]> Epilepsy is a superpower?! with DJ HAPA Epilepsy is a superpower?! with DJ HAPA Tue, 10 Jan 2023 11:00:32 GMT 41:31 2750d7ba-348f-4c49-901c-549d90008ede true https://podcasters.spotify.com/pod/show/wtefpodcast/episodes/Epilepsy-is-a-superpower---with-DJ-HAPA-e1t4c2v 685d871be36cea9c1621aecc 685d870247311de1b6040723 full 1 1 Wanna stay motivated to keep those New Year’s resolutions? Just take a listen to this heart-to-heart with DJ HAPA. The DJ-advocate-educator-podcaster breaks down how epilepsy can be a gift that shapes who we are and how we approach the world every day.

In this incredibly inspiring episode, Hapa discusses why it’s important to be an epilepsy advocate, regardless of seizure frequency or how many TikTok followers you have. He tells us how being vulnerable about his condition led to opportunities (and love!).

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter! Go to: whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]> Wanna stay motivated to keep those New Year’s resolutions? Just take a listen to this heart-to-heart with DJ HAPA. The DJ-advocate-educator-podcaster breaks down how epilepsy can be a gift that shapes who we are and how we approach the world every day.

In this incredibly inspiring episode, Hapa discusses why it’s important to be an epilepsy advocate, regardless of seizure frequency or how many TikTok followers you have. He tells us how being vulnerable about his condition led to opportunities (and love!).

Thank you to our Seizen 1 sponsors SK life science and Neurelis!

Subscribe to our newsletter! Go to: whattheefpodcast.com

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

]]>