Rewritten Me

DIEP Flap Monitoring Explained: What, Why & How

Tue, 24 Jun 2025 20:00:00 GMT

From surgical signs to patient peace of mind, Dr Joe Dusseldorp breaks down what flap monitoring involves and why it matters for your recovery.

For patients who choose flap-based breast reconstruction like DIEP, one of the biggest sources of anxiety is the fear that something could go wrong with the flap after surger and it “fails”.

In this episode of Rewritten Me, I speak with leading reconstructive plastic surgeon Dr Joe Dusseldorp about what flap-based reconstruction involves, how the flap is monitored in the hours and days after surgery and what signs surgical teams watch for to support flap health.

Dr Joe also shares details of a new trial to test a device called T-Stat, which is designed to support flap monitoring. He’s presenting the findings at the 2025 ASPS Plastic Surgery Congress this week.

This episode will help you feel more informed during a time when you might feel out of control. And it's a powerful reminder that understanding what flap-based reconstruction is, what’s involved post-op and what recovery really looks like is all part of informed decision-making - a key aspect of self-advocacy.

Want more tools and conversations to help you advocate for the surgery and health care that's right for you? Check out my new podcast, Regarding Me, or visit luanlawriewoods.com.au to learn more.

Where you can find Luan:

Where you can find Dr Joe:

If you’ve found any of the content upsetting, please reach out and get help. Breast Cancer Network Australia has a free confidential helpline – 1800 500 258. Beyond Blue has a range of free resources online, or you can call them 24/7 on 1300 224 636.

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon or equally qualified surgeon in your country.

Hosted on Acast. See acast.com/privacy for more information.

What’s Next for Rewritten Me? And Why You’ll Love Regarding Me

Sun, 22 Jun 2025 20:00:00 GMT

This isn’t a usual episode - it’s an important update.

Rewritten Me has always been about more than reconstruction. It’s about agency, questions, courage - and the quiet (or loud) moments of self-advocacy that shape our healthcare experiences.

In this special episode, Luan shares what’s next for Rewritten Me, how self-advocacy has always been at the heart of the podcast, and why she launched Regarding Me to continue the story.

If you’ve loved Rewritten Me, you’ll love Regarding Me. It has the same heart just with a wider lens to help you get the healthcare that’s right for you, so you can make choices that fit your life, not just your diagnosis.

Because making decisions about breast cancer surgery is hard enough. Getting the right care shouldn’t be.

🎧 Plus: What to expect going forward, and how you can help keep this resource alive.

🔗 Listen to Regarding Me on your fave podcast platform.

🌐 Learn more or get in touch:www.luanlawriewoods.com.au

💙 Want to support or help fund future Rewritten Me episodes? I’d love to hear from you—DM me or head to the website to get in touch.

Hosted on Acast. See acast.com/privacy for more information.

LEAP into lymphoedema: signs & intervention

Thu, 24 Oct 2024 19:00:42 GMT

Breast cancer treatment or surgery can have long-term or late effects that can affect your quality of life - for life.

One of those is breast cancer-related lymphoedema, a condition that causes abnormal swelling due to damage to the lymphatic system.

Early monitory, detection and intervention can make all the difference! This is a crucial conversation for anyone affected by breast cancer and at risk of lymphoedema.

I sit down with Sandy Templeton, Lymphoedema Therapist and Occupational Therapist to talk about:

What lymphoedema is and why it occurs in breast cancer patients
How treatments and surgeries can increase the risk of lymphoedema
Other factors that increase the risk of lymphoedema
Recommended prospective assessment and monitoring
How to recognise the early signs of lymphoedema
Practical advice on preventing and managing lymphoedema
Guidance on medical procedures (bloods, BP cuffs) involving the affected arm(s)
Why lifelong vigilance and self-care are essential for those at risk of lymphoedema

Don’t miss out on Sandy’s expert advice on how to stay ahead of lymphoedema and maintain your well-being!

Whether you're a patient, caregiver, or healthcare professional, this episode provides invaluable insights into monitoring this condition effectively.

Links for this episode

Cancer Council lymphoedema resource
Australasian Lymphology Association recommendations for patient education & prospective monitoring
Information about IV, cannulation or blood pressure cuffs for ‘at risk’ arm(s)
Gillian’s episode about post-surgery bras

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

OWise: be informed & regain control

Mon, 07 Oct 2024 05:00:03 GMT

As cancer treatment becomes more personalised and complex, staying informed to advocate for yourself can feel overwhelming. In today’s digital world, finding trustworthy, evidence-based information is often challenging.

For Breast Cancer Awareness Month, I'm excited to share my conversation with Dr Anne Bruinvels, who was inspired by a friend's traumatic breast cancer experience to create OWise—a free app providing personalised support for breast cancer patients.

Tune in to discover how this accredited app can help you navigate the complexities of diagnosis, treatment, and breast cancer surgeries like mastectomy and reconstruction, inlcuding:

Mapping your treatment path
Recording appointments
Saving photographs
Tracking symptoms, side effects & feelings

Take part in BRA-va Art when you exercise and support people who have breast surgery - no fundraising, just fun raising!

Links for this episode

Get the app (web version)
OWise on Instagram

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Nipple-sparing mastectomy & DIEP: what, why, when and how

Wed, 25 Sep 2024 20:00:13 GMT

Join me as I sit down with Dr Joe Dusseldorp, Reconstructive Plastic Surgeon, to talk in detail about nipple-sparing mastectomy with DIEP flap reconstruction after breast cancer surgery.

We talk about:

What the procedure is
How it's done
Why it may be appropriate for a patient
When it can be done – immediate or delayed?
What can impact results
If it increases risk of DIEP flap failure
Nipple sensation

And Dr Joe kindly answers questions that our breast cancer community asked me to put to him about nipple-sparing options after a mastectomy!

To help you understand this procedure fully, Dr Joe refers to other topics that we've talked about on the podcast in more detail - I’ve linked to previous episodes about those topics, below.

Take part in BRA-va Art when you exercise and support people who have breast surgery - no fundraising, just fun raising!

Links for this show:

Where you can find Dr Joe:

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Nipple reconstruction: is it worth it?

Sun, 15 Sep 2024 20:29:58 GMT

One of the most frequently asked questions from people who’ve had their nipple removed as part of their mastectomy is: “is nipple reconstruction worth it?”

As with all decisions around reconstruction after breast cancer surgery, this one is highly personal. I speak with Dr Matt Starr, Specialist Plastic Surgeon, to explore this topic further and talk about some of the myths about nipple reconstruction after a skin-sparing mastectomy to help you make an informed decision about whether it’s right for you.

We talk about:

Types of nipple reconstruction
When it can be done
Does it need to be done in hospital?
What affects nipple projection?
Risks of ‘failure’
Medicare funding

Dr Matt also answers questions that our community wanted me to ask him!

Take part in BRA-va Art when you exercise and support people who have breast surgery - no fundraising, just fun raising!

Links for this show:

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Bloom43: a new era in breast surgery prep & prehab

Wed, 28 Aug 2024 20:00:32 GMT

What if there was something you could proactively do before breast surgery to help reduce the risk of complications and support healing? Something that’s drug-free and simple to do at home with minimal effort.

Bloom43 is a wearable device designed to gently warm the skin, which patients can place in their bra the night before surgery.

Developed by reconstructive plastic surgeon, Dr Saahil Mehta, it’s been shown to reduce healing complications, hospital stay, outpatient follow-up and re-operation rates.

I talk to Dr. Saahil and Carly Moosah, the Patient Champion at Bloom43, about the reasons behind the development of the device and the importance of patient input, like Carly's, in the co-design process.

Take part in BRA-va Art when you exercise and support people who have breast surgery - no fundraising, just fun raising!

Links for this show:

Bloom43 website

Carly's Instagram

Research Dr Saahil refers to

Dr Saahil's LinkedIn

Where you can find Luan:

Warning:

Speak to your surgeon about how you can best prepare for your surgery. Do not attempt to replicate the heating effects of Bloom43 before surgery without medical advice or supervision.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

TNBC, BRCA, DIEP - WTF?!

Wed, 07 Aug 2024 20:00:30 GMT

From shock diagnosis to choosing a reconstruction surgeon.

Bec didn’t think for one minute that the lump in her breast was cancer. After the shock of being diagnosed with triple negative breast cancer, she was stunned when genetic testing revealed a mutation (as she has no family history of breast cancer).

That kicked off an intense treatment plan. But the hardest part for Bec was choosing a reconstruction surgeon.

Hear how Bec overcame the challenges of one shock after the next and found a plastic surgeon that was right for her. And how her breast surgeon’s insistence on genetic testing not only saved her life, but also potentially saved her sister’s life.

Take part in BRA-va Art when you exercise and support people who have breast surgery - no fundraising, just fun raising!

Links for this show:

Triple Negative Breast Cancer for Australian and New Zealand Sisters

STAGE 4,Triple Negative Breast Cancer for Australian & New Zealand Sisters

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Link to bRA-va art

Link ot ANZ TNBC group

Hosted on Acast. See acast.com/privacy for more information.

Feedback, complaints & compliments

Wed, 24 Jul 2024 20:00:10 GMT

Are you concerned about your FRACS Surgeon’s behaviour? Here’s how you can give purposeful feedback to help future patients.

Historically, it was accepted that some surgeons had great surgical skills but poor bedside manners. However, research now shows a direct link between poor communication and patient complications.

Luan talks to A/Prof Rhea Liang, General and Breast Surgeon, about the RACS (Royal Australasian College of Surgeons) and its Operate with Respect project, focusing on patient outcomes and rights.

Through RACS, you can provide feedback about a surgeon - whether it's a concern, complaint, or compliment. This anonymous process offers a framework for timely, non-judgmental feedback to surgeons, addressing concerns, encouraging reflection and positive change.

Dr Rhea discusses how studies indicate that this type of feedback is effective in managing behaviour, which crucial for patient outcomes and quality care.

And don’t forget compliments – be sure to feed those back too!

This is part two of Luan's interview with Dr Rhea - check out episode 4 for their talk about MDTs and patient-centred care.

Links for this episode:

Dr Rhea Liang on X (Twitter)
RACS feedback & complaints

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

FREE the prosthetic nipple!

Fri, 12 Jul 2024 05:00:30 GMT

Discover a pioneering post-mastectomy nipple option that you might not know about!

If you've lost your nipple(s) as part of breast cancer surgery and are looking for non-surgical options, this episode is for you.

Niki Crillo from Procosmediq is a pioneer in Australia, a medical tattooist and silicone prosthesis artisan who handmakes custom prosthetic nipples. She molds and colour-matches each piece, providing a realistic alternative to surgical reconstruction.

However, due to their incredibly realistic appearance, these prosthetic nipples are often censored on social media, making them harder to discover!

Luan and Niki talk about:

Niki's unique process of making custom nipples
DIY molds for clients across Australia and overseas
Creative solutions for those without a nipple to mold
The nipple mold 'library'
How you can donate to the 'library'
Fun 'Nip & Sip' events for awareness and support

Don’t miss this enlightening conversation that could transform your post-mastectomy experience.

Where you can find Niki:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Hosted on Acast. See acast.com/privacy for more information.

My version of reconstruction changed my life

Thu, 27 Jun 2024 21:00:22 GMT

Allison Gordon Parry wanted a DIEP flap reconstruction following her mastectomy. After she was diagnosed with metastatic breast cancer, her priorities changed - “time is short, I’ve got other things to do!”.

Still, she grieved for the reconstruction she’d wanted. Her body was a daily reminder of what she’d lost – flat on one side and her natural ‘G’ cup breast on the other.

The breast surgery she eventually had changed her life. Allison felt beautiful and ‘whole’ again – wearing pretty bras, and swimming and dancing in Ibiza without feeling self-conscious.

Allison continued to rinse the joy out of life until she sadly passed away in May 2024.

This is the audio from our Live on Instagram, where Allison is known as @fanny_mcphee, for Breast Reconstruction Awareness Day. She also talks about her diagnosis in the UK, return to Australia and how happy she was to not get the reconstruction she wanted.

You can watch the Live here.

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

How Netflix helped me recover from surgery

Wed, 12 Jun 2024 20:00:22 GMT

Katy Morrison was left with a single 20DD breast that caused her severe back pain after she was denied reconstruction at the time of her mastectomy because she had incurable breast cancer.

Katy advocated for a breast reconstruction*. And in this episode, she shares how her reconstruction and reduction surgery immediately relieved her back pain.

Katy’s recovery from breast surgery was tougher than she expected, and she developed a blood infection. She found herself in a physical and mental "hole" barely recognising herself and relying heavily on strong medication.

Acknowledging she needed a different approach, Katy found inspiration in Netflix sports documentaries!

Listen to how the mindset of athletes helped her re-frame her recovery and put together a team to help her get back on track.

And find out if Katy’s swimming in straight lines again (a podcast ‘in joke’ – check out part one of Katy's story 😉).

Katy epitomises self-advocacy and we’re so very grateful that she came back to share her story with us and you, so that we can all be inspired by her “never take ‘no’ for an answer” outlook!

* You can listen to part one of Katy’s story in our earlier episode.

Links for this episode:

Katy's Instagram

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

DIEP dive: the basics of abdominal-based flap reconstruction

Wed, 29 May 2024 20:00:19 GMT

DIEP flap reconstruction is called the ‘gold standard’ of reconstruction after mastectomy – but is it the gold standard for everyone?

Whether you’re considering DIEP breast reconstruction or have had DIEP breast surgery, this episode is for you. It's for your loved ones too as it'll help them understand how they can support you.

In this episode Luan talks with Dr Beryl Tan, Plastic and Reconstructive Surgeon, who specialise in DIEP.

They talk about the basics of DIEP and what it involves, from pre-op preparation for first phase surgery to phase two/refinement surgery. And not just about breasts/s, but about other areas of the body that are affected too such as the tummy, bellybutton and rib area.

Dr Beryl has a history of breast cancer and has had breast reconstruction herself. She uses easy-to-understand analogies to explain the medical and surgical aspects of this reconstruction procedure.

Dr Beryl also shares the 3 important things that patients need in place before having this surgery. Additionally she provides realistic insights into what recovery and healing are like compared to other procedures, such as implants.

Links for this episode:

Dr Beryl Tan website

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

MDTs and patient-centred care

Wed, 08 May 2024 20:00:14 GMT

What does MDT mean? How do they work for patients? Are there breast reconstruction MDTs?

As a patient, learning medical acronyms can be like learning a new language!

In this episode, Luan talks to A/Prof Rhea Liang ,General and Breast Surgeon, about MDTs (Multidisciplinary Team meetings) and their importance in breast cancer treatment.

An MDT can feel like a mysterious behind-the-scenes meeting where your future is decided without you having a say.

Dr Rhea explains how MDTs bring together various healthcare professionals to create a personalised treatment plan for each patient. Dr Rhea also talks about the potential benefits of having a reconstruction-specific MDT and how patient involvement in MDTs in other countries could provide valuable insights into informed decision-making.

But Dr Rhea talks about more than just MDTs. She explains how doctor training has changed over the years, including incorporating patient discussions about holistic care and recognising the different information needs of patients.

It’s important that patients feel empowered to ask questions and seek clarification about any medical terms or procedures they don't understand when considering their reconstruction options.

We hope this episode helps them to feel confident to do just that!

This is part one of my interview with Dr Rhea - subscribe to hear when part 2 drops.

Links for this episode:

Dr Rhea Liang on X (Twitter)

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Bras & prosthesis after surgery for breast cancer

Tue, 23 Apr 2024 20:00:53 GMT

Find a bra that hugs you!

What bras can you wear after surgery for breast cancer? And when can you wear an underwire bra?

Finding the right bra fit is crucial for post-surgery recovery and can have a positive impact on a person's confidence and well-being. Bras can also help create symmetry after reconstruction, with options such balance shapers and bralettes.

But what should you look for if you don’t have access to a bra fitter?

In this episode, Luan talks to Gillian, who has a history of breast cancer, from Colleen's Lingerie, a store that offers a chest-inclusive range of bras and prosthesis.

Gillian says that the fit of your bra should feel like a hug. The closeness of your ‘bra hug’ will depend on what surgery you’ve had as there are different needs for various types of surgery.

Listen to Luan and Gillian talk about:

The importance of bra fitting for post-surgery
Bra needs for implants and tissue expanders
Bra needs for autologous or ‘own tissue’ reconstruction
Choosing the right bra after surgery
Bras for radiotherapy
When to start wearing longer-term prostheses
Creating symmetry with bras
Transitioning to regular bras
Wearing underwire bras
Signs of a bad fitting bra

The opinions expressed in this episode are not a substitute for and do not constitute medical advice. Speak to your surgeon about your post-surgery bra needs.

Links for this episode:

Where you can find Luan:

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Mastectomy & metastatic breast cancer

Wed, 10 Apr 2024 20:00:55 GMT

This is a story of “balls to the wall” self-advocacy, tiptoeing around surgeons' offices and swimming in circles!

Trigger warning: this podcast contains discussions about metastatic breast cancer, which may be distressing or triggering for some listeners.

In this episode the wonderful Katy Morrison shares with us the shock of her stage four (metastatic) breast cancer diagnosis, and her experience of living with the disease including the challenges she’s faced advocating for herself.

Katy talks about her decision to have a mastectomy after it was initially recommended by her breast surgeon. She tells us how she was refused immediate reconstruction – or removal of her healthy breast – as it was deemed a “waste of resources” because she has incurable breast cancer.

Katy’s single mastectomy resulted in significant asymmetry and severe back pain that negatively impacted her quality of life.

Despite the difficulties she’s encountered, Katy has a positive outlook and emphasises the importance of finding joy and humour in life. And advocating for yourself!

This is part one of Katy’s story, recorded in 2023.

Subscribe to hear the follow-up episode and find out whether Katy had her reconstruction.

Links for this episode:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

What about aesthetic flat closure?

Wed, 27 Mar 2024 19:00:37 GMT

Welcome to season 2!

In the first episode of this new season, Luan talks to Specialist Breast Surgeon, Dr Kylie Snook, about aesthetic flat closure. Also known as optimal flat closure or ‘going flat’, it is a reconstruction option that can be considered alongside implant and autologous/‘own tissue’ reconstruction after mastectomy.

Taken from an Instagram Breast Recon 101 Live Q&A session, Luan and Dr Kylie’s discussion provides valuable insights for women considering aesthetic flat closure, including:

Impact of previous surgeries & treatments
Effect on chest shape & perspective
Recovery time compared to breast reconstruction.
Corrective/revision surgeries
‘Dog ears’ & aesthetic outcomes
Scars & scar placement
Lymphoedema
Breast reconstruction after going flat
Having an open discussion with your surgeon

Send an DM to Luan for a copy of the BCNA research referred to in this episode.

Links for this episode:

Instagram Live video of this episode

Not Putting On a Shirt website

Flat Life Australia Facebook group

Breast SurgANZ website

DM me on Instagram for a link to the BCNA report referenced in this episode.

Where you can find Luan:

Luan Lawrenson-Woods devised the Instagram Breast Recon 101 Live Q&A series and hosted the 2022 series on Pink Hope's Instagram account as a volunteer ambassador.

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Advocating to 'go flat' after implants

Wed, 06 Dec 2023 19:00:30 GMT

Robyn has the BRCA2 variant and had a risk-reducing mastectomy with implant-based reconstruction in 2019. She experienced side effects that impacted her quality of life and made the decision to have the implants removed and ‘go flat’.

When a plastic surgeon told Robyn that she would look “aesthetically unpleasing”, she knew she had to self-advocate.

Robyn's story is one of courage - to challenge and re-think her own initial reconstruction choice and then to stand up for what was right for her and her health.

Luan and Robyn talk about:

Hereditary cancer risk
Robyn’s decision to have a mastectomy
Why she had implants
Her decision to remove them
Finding the right surgeon
Reconstruction framing bias
The Australian flat community
'Flat' research with Flinders University

Resources for this episode:

Informed consent
Breast Recon 101 Live Q&A video: aesthetic flat closure with Dr Kylie Snook
Flat Life Australia Facebook group
Flinders research
Not Putting On A Shirt
Not Just a Linear Closure: Aesthetic Flat Closure after Mastectomy

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

BRA-va art and Foobs & Fitness

Tue, 03 Oct 2023 19:00:25 GMT

BRA-va art is a first-of-its-kind global Instagram campaign that uses exercise to promote BRA Day (Breast Reconstruction Awareness Day). Luan launched the campaign in 2022 and Rori Zura picked up the BRA-va art baton when she ran around New York in a pink striped ‘where’s Waldo’ top as she made BRA-va art!

Rori has always been a fitness enthusiast. When she was diagnosed with triple negative breast cancer during COVID, exercise was a key concern and topic of discussion with her surgeon. They encouraged Rori to keep moving to support her treatment. This advice was surprising to Rori – why didn’t everyone know of the benefits of exercise for cancer patients?

Rori is now a certified Cancer Exercise Specialist and founder of Foobs and Fitness, which encourages people to live a more active lifestyle before, during, and after diagnosis. Rori’s passion is to ensure that no one faces breast cancer alone, and with her they don't. She has unwavering enthusiasm, creativity and joyful outlook. And she's an awesome battle buddy!

In this episode Rori shares her story of her treatment and implant reconstruction, and how her diagnosis set her off on a new career path. And she talks about the BRA-va art challenges she’s created so that you can have even more fun taking part this year!

Luan and Rori also talk about tips for making BRA-va art and how you can be help put BRA Day on the map on 18th October.

Listen in and then join them for #BRADay2023!

Links for this episode:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

The good & bad of social media

Tue, 19 Sep 2023 20:00:59 GMT

There's lots of free information about breast cancer and reconstruction on Instagram. But how do you know it’s factually correct?

Dr Liz O’Riordan is known as the breast surgeon who has breast cancer. Liz talks about why she uses Instagram to create evidence-based content about breast cancer and how you can check the accuracy of online information. And she talks about how even she found it difficult to ask her doctor about a information she'd seen on social media.

If you’re a patient, advocate or medical professional who uses social media – or is thinking of using it – this episode for you!

Luan and Liz cover a lot, including:

Online community
Doctors using social media
The CRAP test
AI & Chat GPT
Digital literacy
Equity of representation
Responsibilities of advocacy

And Liz talks about her new book, ‘Under the Knife: Life Lessons from the Operating Theatre’, and how its publication was community-funded through her Instagram account.

Links for this episode:

Listen to Dr Minas Chrysopoulo talk about the Breast Advocate® app.

Donna Ashworth ‘Loss’ book

PF Tick

Since this recording, Liz has had a second local recurrence. As she goes through treatment, she’s putting her breast cancer vlog on her YouTube Channel, where you can find all her breast cancer videos.

You can also find Liz:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Having a baby after implant reconstruction

Wed, 23 Aug 2023 23:46:14 GMT

Natasha Cauchi was 29 when she was diagnosed with triple negative breast cancer. As part of her treatment she had a double mastectomy with implant reconstruction. Three years later Tash and her husband decided to try for a baby.

Chemotherapy can affect fertility and Tash was in early menopause. She had IVF, which was unsuccessful. Then she became pregnant naturally!

While the arrival of baby Oliver is joyous, Tash shares how she feels grief and sadness that she can’t breastfeed. Tash also talks about how she needed to advocate, especially when a nurse in hospital told her to ‘put him on the boob’ to breastfeed.

Tash also shares her story of:

Treatment and fertility preservation
Ovarian tissue freezing
Trying for a baby after breast cancer
What IVF was like
Oliver’s dramatic arrival!
The pressure to breastfeed in hospital
Using donated breast milk

Thank you, Tash, for sharing your story with us. And welcome to this wonderful world, Oliver AJ, it’s so much more wonderful knowing that you’re in it!

Links for this podcast:

Where you can find Luan:

Subscribe to be notified when new Rewritten Me episodes are published.

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Medicare and private health cover

Tue, 08 Aug 2023 00:22:00 GMT

What does Medicare cover for breast reconstruction? What do you need to consider if you choose to be treated privately?

The two different systems in Australia – public and private – can be confusing, and potential financial costs of reconstruction can cause anxiety. It can also be an awkward discussion to have with your team.

In this episode Luan talks to Specialist Breast Surgeon and President of BreastSurgANZ, Dr Melanie Walker, about how to navigate finances.

Luan and Dr Melanie talk about whether Medicare covers:

All types of reconstruction
Elective mastectomy
Revision surgery
Delayed reconstruction
Liposuction and fat grafting
Nipple reconstruction

Luan and Dr Melanie also talk in general about private cover, including:

What to ask your specialist’s team
What might not be covered
What your quote may include
Negotiating costs

Links for this podcast:

AMA Guide for patients
BreastSurgANZ
Cancer Council resource

Where you can find Luan:

Subscribe to be notified when new Rewritten Me episodes are published.

Note: this podcast talks about what is covered by Medicare. What you have access to and what resources and services are available to you, including waiting times, can differ depending on where you live. And things change. This information was correct at the time of recording (3rd July 2023).

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Why consult both a breast & plastic surgeon?

Wed, 26 Jul 2023 23:05:12 GMT

It isn't vain to want your breast/s reconstructed after a mastectomy. Some women choose not to reconstruct because they think it's cosmetic. And some women aren't given the option to reconstruct.

Reconstructive Plastic Surgeon, Dr Kirstin Miteff, talks about consulting both a breast surgeon and a reconstructive plastic surgeon when you research your reconstruction options.

Dr Kirstin also talks about how a referral to a plastic surgeon at the time of a breast cancer diagnosis may reduce the reconstruction timeline for some patients.

Luan and Dr Kirstin also talk about:

What a reconstructive plastic surgeon does
The role of plastic surgeons & breast surgeons
And how they work alongside each other
What to consider when choosing your reconstruction
Telehealth consults for regional/rural patients
What to ask a reconstructive plastic surgeon
The training path of reconstructive plastic surgeons
How some women haven't been offered recon

You might also want to:

Listen to Dr Joe Dusseldorp talk about DIEP 'flap' strategies
Listen to Dr Bish Soliman talk about other 'flap' options
Subscribe to be notified when the episode about public & private health drops!

Links for this podcast:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Under & over the muscle implants

Mon, 10 Jul 2023 19:00:21 GMT

When it comes to implant-based reconstruction, you might hear the terms UTM and OTM. But what do they mean and why might you choose one over the other?

Luan talks to one of Australia’s leading consultant breast surgeons, Associate Professor Sanjay Warrier, about under and over the muscle implants, including:

What’s involved for UTM & OTM
What might dictate your decision
The benefits of each
Acellular dermal matrix
UTM dual plane technique
OTM two staged approach with expanders
Exercise after UTM/OTM
What happens if you have a port?
What about radiotherapy?
Potential complications of each
How these can be addressed (eg rippling)
Surveillance imaging after UTM/OTM

You might also want to:

Listen to Dr Kylie Snook talk about mastectomy and expanders
Subscribe to be notified when the episode about public & private health drops!

Links for this podcast:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Breast Advocate decision-making app

Tue, 27 Jun 2023 19:00:00 GMT

In Rewritten Me’s first ever ‘extra’ episode, Luan talks to Dr Minas Chrysopoulo who devised the Breast Advocate® app.

Breast Advocate® is the world's first shared decision-making app for breast cancer surgery and breast reconstruction. It's the app that helped Dr Sandy Minck when she was researching her risk reduction surgery (episode 8).

Dr C, as he’s known, is an American-based board-certified surgeon and micro surgeon who co-created the Breast Advocate® with patient advocates and leading specialists.

Listen in to find out how the app’s easy-to-use wizard can be a useful decision-making tool, even for those who live outside of the States. And hear Dr C share how the process of partnering with patient advocates to create the app has helped him become a better clinician.

Links for this podcast:

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Informed risk reduction decision-making

Mon, 19 Jun 2023 19:00:19 GMT

The results from a routine mammogram in 2022 led to a whirlwind of investigative tests for Dr Sandy Minck. Sandy was diagnosed with lobular carcinoma in situ (LCIS) and found out she carries the CHEK2 genetic variant. She also had dense breast tissue. This all contributed to an increased risk of breast cancer.

Sandy’s mother died of breast cancer. When Sandy researched what options she had to minimise her own risk, she was aware that her decision-making was very emotive. She sought evidence-based opinions but, even as a non-practicing GP with a high level of health literacy, Sandy found the process overwhelming.

Sandy wanted a ‘one and done’ bilateral risk-reducing mastectomy and direct to implant (DTI) reconstruction.

So, how did she decide what was right for her? And is she ‘one and done’ or will she have more surgery?

Luan and Sandy talk about:

How Sandy assessed her risk of breast cancer
Why she decided to have a risk reduction mastectomy
Why Sandy chose implants for reconstruction
Whether she’ll have revision surgery
Reconstruction decision-making tools that helped
Breast density and other breast cancer risk factors
Her advocacy work

Links for this podcast:

Sandy Minck LinkedIn
BCNA Breconda
Breast Advocate app
Pink Hope, Australian genetic risk charity
EVIQ

Where you can find Luan:

In this podcast Luan and Sandy talk about Sandy’s personal experience. They don’t recommend any surgeon, practice and/or procedure or treatment. The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

From implants to DIEP flap

Mon, 05 Jun 2023 19:00:07 GMT

It’s important to decide what reconstruction is right for you at the time. However, over time things can change, such as life priorities, work commitments and childcare responsibilities. So too can the results of your reconstruction.

Kylie Lynch had multiple surgeries to achieve a bilateral implant-based reconstruction following her diagnosis of invasive mucinous and ductal carcinoma with extensive lymphovascular invasion. Seven years later Kylie had an autologous ‘flap’ reconstruction because the long-term effects of radiotherapy had caused capsular contracture around one of her implants.

Luan talks to Kylie about why she chose DIEP, what she took into consideration when choosing a plastic surgeon and how she got over the ‘DIEP blues’.

Luan and Kylie also talk about:

· Why Kylie chose implants initially

· What tissue expanders felt like

· Being ‘triggered’ by her DIEP

· Her recovery from DIEP

· Plans for revision surgery

· The bonding power of support groups

· Kylie’s advocacy work

Links for this podcast:

· Kylie’s website

· YPink, is at Mater, Sydney

· Read about DIEP*

*You can also read about TRAM, which is the surgery Kylie refers to when she talks about muscle and mesh being used in other types of 'flap' procedures.

Where you can find Luan:

In this podcast Luan and Kylie talk about their personal experiences. They don’t recommend any surgeon, practice and/or procedure or treatment. The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Owning your worth

Wed, 24 May 2023 19:00:05 GMT

What does it mean to be a patient advocate and to ‘own your worth’?

When Terri Coutee received her second diagnosis for breast cancer she was mistakenly diagnosed with incurable metastatic disease. This prompted her to blog about her experience and advocate for others.

Luan and Terri talk about how Terri went on to set up not-for-profit DIEPC Foundation, and create a 24/7 library of educational resources to help those affected by breast cancer make an informed decision about reconstruction after a mastectomy.

Be sure to listen out for the poem Terri melodiously reads that so beautifully sums up the work of patient advocates #WorkIsLoveMadeVisible

Luan and Terri also talk about:

The role of a patient advocate
Keeping calm when things go wrong!
Importance of open dialogue
How we can all learn from each other
Responsibilities of patient advocacy
Improving patient outcomes
Tips for navigating conferences as an advocate

Links for this pod:

DIEPC Foundation website
DIEPC Journey private Facebook group
DIEPC Instagram

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Feeling & sensation after breast reconstruction

Mon, 08 May 2023 19:30:46 GMT

Hear about new techniques being used to try to preserve and restore feeling and sensation in the breast after reconstruction.

“That [extra] 20 minutes is this woman’s entire lifetime of [breast] sensation,” A/Prof Cindy Mak.

Loss of feeling after a mastectomy and reconstruction is a concern for many women.

Luan talks to A/Prof Cindy Mak & Dr Joe Dusseldorp about techniques they’re using to preserve and reconstruct nerves.

They also share the results of these surgeries: listen out for my "wow” jaw-drop when Dr Cindy tells us that they’ve observed that temperature sensation is developing after reconstruction.

And Dr Joe also tells us – hot off the press! – how he’s using the same nerve reconstruction techniques developed for the breast to help optimise the sensation in the tummy area after DIEP flap surgery.

We talk about:

Breast sensory nerve preservation:
For DIEP, TUG & implant
Can it be used for delayed recon?
‘Spare part’ nerve grafting
Breast sensory nerve reconstruction
Abdominal nerve preservation:
Sensory and motor (core muscle strength)
Things to consider about these techniques
How can patients find out more about them

Links for this pod:

Dr Cindy Mak’s website
Dr Cindy’s Instagram
Dr Joe Dusseldorp’s website
Dr Joe’s Instagram

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Alternative 'flap' options

Wed, 26 Apr 2023 19:30:43 GMT

What other options are available if you want an ‘own tissue’ reconstruction, but you aren’t a candidate for DIEP flap?

Some women may not have enough tummy tissue for a DIEP. Others may have previously had abdominoplasty, or a DIEP reconstruction that didn’t work out.

Dr Bish Soliman is an internationally trained Specialist Plastic and Reconstructive Surgeon who specialises in complex microsurgical reconstruction, such as ‘own tissue’ or ‘flap’ reconstructions.

Luan talks to Dr Bish about the alternatives to DIEP, including the LAP flap, which is a relatively new procedure that may be a second-line option for women who’ve had abdominal surgery previously, such as a tummy-tuck or DIEP.

Luan and Dr Bish also talk about:

What is a ‘flap’?
Difference between a ‘free’ and pedicle ‘flap’
LAP/TUG/PAP/GAP/Lat Dorsi flaps
What’s involved in each
Benefits & downsides of each

What to know more about DIEP? Check out episode one in the series.

Links for this pod:

Dr Bish Soliman’s website
DIEP information sheet

Where you can fin Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Hosted on Acast. See acast.com/privacy for more information.

Types of mastectomy

Mon, 10 Apr 2023 19:00:29 GMT

Did you know there were different kinds of mastectomies?

In this pod Luan talks to Specialist Breast Surgeon, Dr Kylie Snook, about what a mastectomy is and why someone might have one.

Luan and Dr Kylie talk about:

Is all breast tissue removed?
Nipple-sparing & skin-sparing mastectomies
Mastectomy incisions
Tissue expanders
Preventative/risk reduction mastectomy
Bilateral & contralateral mastectomy
Lymph node biopsy

Links for this pod:

Dr Kylie is VP of BreastSurgANZ
Watch the IG Live ‘what to ask in your first appointment’ with Dr Kylie

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

Foods that can help you heal after surgery

Mon, 27 Mar 2023 23:28:45 GMT

What can you eat to help you heal well after reconstruction surgery?

In this pod Luan talks to nutritionist, Associate Professor Teresa Mitchell-Paterson, about what food choices you can make to help support your recovery from surgery.

Luan and Teresa talk about

· Foods that may support wound healing

· How you can hydrate after surgery

· Foods to help with constipation

· Can you have coffee?

· What about chocolate?!

· How to ease back into eating after your op

Links for this pod

· Where to find Teresa

· By Rosie Instagram account

· Eat Well Guide

· My Fitness Pal app

· Cancer Council counselling

· Box breathing

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical or health advice you should seek a consult with an appropriately qualified health or medical professional, or a FRACS qualified surgeon. Check with your healthcare team and a healthcare professional before taking any herbs, vitamins, and other dietary supplements.

Post-production ‘shine’ by Paddy @ Goosing Sounds Ltd (UK)

Hosted on Acast. See acast.com/privacy for more information.

What’s strategy got to do with DIEP?

Mon, 06 Mar 2023 19:00:35 GMT

Talking to your surgeon about what’s meaningful to you and what approaches, or strategies, they can take to help you achieve an optimal reconstruction is all part of shared decision-making.

In the first episode of season one, Luan talks to reconstructive plastic surgeon, Dr Joe Dusseldorp, about the strategies he considers for DIEP flap reconstruction in relation to form and function of the breast/s and abdomen.

Luan and Dr Joe talk about:

- Nipple preservation

- Desired breast size

- Feeling in the breast and the tummy

- Preserving core muscle function

- Strengthening muscle (after pregnancy)

- How CT scans help inform DIEP strategies

There are other strategies for reconstruction that Luan will be talking to other surgeons about in future pods – subscribe for updates!

And check out the pre-launch pods where we talk about other types of reconstruction.

Links for this pod:

Dr Joe Dusseldorp’s website and Instagram page

IG Live about Robotic Assisted DIEP

More about DIEP flap reconstruction

Some information about TRAM

BRA-va Art social media campaign to promote BRA Day

Where you can find Luan:

The information in this podcast does not constitute medical advice. For personalised medical advice you should seek a consult with a FRACS qualified surgeon, or an equally qualified surgeon in your country.

Hosted on Acast. See acast.com/privacy for more information.

BRA Day interview

Thu, 22 Dec 2022 19:56:25 GMT

The 3rd Wednesday in October is Breast Reconstruction Awareness Day, or BRA Day as it's known!

For BRA Day 2022 I sat down with reconstructive plastic surgeon, Dr Joe Dusseldorp (FRACS). Dr Joe specialises in breast reconstruction, particularly ‘own tissue’ reconstruction like DIEP flap reconstruction. He’s a medical innovator and personalised medicine advocate, and he led the first team in Australia and New Zealand to perform a robotic-assisted DIEP.

In our chat we talk about:

The difference between reconstructive plastic surgeons and breast surgeons;
What breast reconstruction is;
The main types of mastectomy;
Different types of reconstruction options;
And why women might choose them.

Huge thanks to Pink Hope who made the audio (and video) recording happen!

Links:

Video of Luan and Dr Joe’s interview, hosted by Pink Hope

Dr Joe Dusseldorp’s website and Instagram page

AHPRA where you can look up a surgeon’s speciality

BRA-va Art social media campaign to promote BRA Day

The preventative health hub Pink Hope

Find Luan:

The Rewritten Me podcast is produced on the Traditional Lands of the Cammeraygal people of the Guringai tribe of the Eora Nation.

Hosted on Acast. See acast.com/privacy for more information.

From Unwritten to Rewritten Me

Sun, 18 Dec 2022 07:53:53 GMT

In this first episode, I share how devastating it was to be told I needed a mastectomy and how I’ve gone from being the star of the Unwritten Me Sh!tshow to hosting the Rewritten Me podcast.

I talk about my breast cancer diagnosis, treatment and surgeries, as well some of the little talked about side effects of my DIEP reconstruction, like the ‘Ken Doll’ (oh, and my labi@ also gets an honourable mention!).

Listen in to hear how on Rewritten Me I’ll be talking to healthcare professionals along with women from the breast cancer community so that you can learn more about breast reconstruction in Australia. And not just the surgical side of things, but the physical, emotional and practical things too.

Rewritten Me is here to help you choose how you re-write your story.

Links:

BreastScreen Australia

Breast Recon 101 Live Q&As on Instagram

Live Chats on Instagram

Pink Hope, the preventative health charity

Lobular Breast Cancer Alliance (note: American site)

Where you can find Luan:

Instagram

Website

The Rewritten Me podcast is recorded and produced on the Traditional Lands of the Cammeraygal people of the Guringai tribe of the Eora Nation.

Hosted on Acast. See acast.com/privacy for more information.