Firstly, I want to say a huge sorry for leaving you all in the lurch here on the That’s So Chronic podcast feed! Like I explain in this update episode, I really did not anticipate this big of a break between new episodes, hence why I didn’t let you know ahead of time! 

In this episode I try to explain where the heck I’ve been and how I’ve been feeling, a little bit more of an insight into the different parts of my identity, the exciting things I’ve been working away on, and the plan for That’s So Chronic moving forward! 

Really looking forward to being back in your ears again in early 2025, but for now, I would love to connect over on IG, Tiktok or Substack: @thatssochronic 

I really miss bringing you these stories every Tuesday morning, so I feel really sad to be taking such a big break! But, I hope you will all understand. Thank you so much for supporting That’s So Chronic!

@thatssochronic | @jessssbrien | #thatssochronic

Sing up to the newsletter: thatssochronic.substack.com

Application form to share your story next season: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In Designer $hit, director Saffron Cassaday, who has suffered from ulcerative colitis for nearly a decade, sets off on a journey to determine whether FMT (or fecal microbiota transplant) could potentially cure her of this disease. It's a great mix of patient experiences, scientific information, Saffron's personal experience, and honest reactions from everyone involved.

In this episode, I get the chance to sit down with Saffron and chat all about her experience of not only living with UC and going through FMT for herself, but recording it all at the same time…

Links to click on! 

Official website: https://www.designershitdocumentary.com 

Social media: @designershitdocumentary  

And you can always find me over on Instagram and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com) or a DM on instagram

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Miranda looks back with hindsight and explains where it’s possible her symptoms began, the years of not really knowing what was going on, how she got a diagnosis, what on earth ME even is, her day to day symptoms, how she manages them and her latest creative endeavours.

Some of you might remember Miranda from a previous That’s So episode (That’s So: Unrest documentary) but we didn’t get to chat too much about her story then, so I’m really excited to be able to bring you this episode with a lot more information today!

Watch Miranda on Penn & Teller: youtube.com/watch?v=CfGGIQbsrrE 

EeZeeGo website: https://www.eezeego.co.uk

Symptom tracking app Visible: www.makevisible.com

And don’t forget to connect over on IG and Tiktok, I’m @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Markus explains how it it felt for him going through stroke number one and then stroke number two ten years later, what happens after you arrive at the hospital, how he navigates living with 50% eyesight, and the feelings he had when he was told that this is a disability. And then I get to ask Markus all about incorporating his experiences into his stand up comedy, including a little behind the scenes glimpse into what it’s like performing comedy about strokes to millions of people as a semi finalist on Britian's Got Talent!

Follow Markus on Instagram: @markusbirdman

And watch him on Britain’s Got Talent! www.youtube.com/watch?v=RirB3Z1K58s 

To book tickets to Markus’ show PLATNUM, or find out more about his upcoming gigs, check out markusbirdmantour.com 

Thanks for listening! Don’t forget to rate, review and press follow! You’re the best!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today, we’re chatting about The Surgeons’ Hall Museums and the Blood & Guts: The Twists and Turns of Edinburgh’s Medical History Walking Tour that I was able to check out while I was in Edinburgh, Scotland during August. 

Here are all of the links…

MedCrimes podcast episode: S1Ep24: Burke and Hare

Blood & Guts walking tour tickets  

Surgeons’ Hall Museums website: museum.rcsed.ac.uk and social media: @surgeonshall

And you can always find me over on Instagram and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com) or a DM on instagram

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Jo talks us through her breast cancer diagnosis and what happened next. We chat about the amount of decisions you have to make after a diagnosis, the stark differences between public vs private health care here in New Zealand, and I have a revelation about life insurance. We also discuss how she incorporates her cancer journey into her stand up comedy, and all about her latest book titled When Life Sucks - a first-aid manual for supporting your teen’s mental health.

To find about more about When Life Sucks, head to: drjoprendergast.com

Follow Dr Jo on Instagram: @drjoprendergast.whenlifesucks and for all of her comedy information, follow @joghastly

For more information about Jo’s comedy show “Cancer and Cartwheels” check out her comedy website: joghastly.com

Cold capping information: hairtodayandtomorrow.co.nz

And you can always find me over in Instagram and Tiktok: @thatssochronic 

Thanks for listening and supporting! You’re my fave! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Dr Saimun shares her story of working for years in rheumatology and then going through her own rheumatoid arthritis diagnosis process. We chat about how she felt suddenly becoming a patient of her own expertise, how she manages her symptoms, the art of saying no, and how she navigates working as a doctor, running her own clinic, being a mum and living with RA.

Find out more about Dr Saimun’s clinic Rheum To Grow: www.rheumtogrowtx.com

Follow on Instagram: @rheum.to.grow.tx  

And if you need a reminder… Those three C’s were CATCH, CHALLENGE & CHANGE. You’re welcome! 

If you have any questions, or just want to connect, you can find me on IG and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

The D*List is an online culture magazine that creates space for disabled people to tell their own stories through features, columns and news reporting. It’s quickly becoming one of my favourite places on the internet… so I was very excited to chat to Olivia! 

In this episode, Olivia explains what it is that an editor does, what inspired the creation of The D*List, what the reception has been like since launching the website, why this space is important, and how people can reach out if they would like to contribute. 

Check out the website now: https://thedlist.co.nz

And don’t forget to follow on Instagram @thedlistnz and over on substack: https://thedlist.substack.com 

Thanks for listening! Sorry it was a couple of days late this week! 

Feel free to reach out on Instagram or Tiktok: @thatssochronic, and subscribe to the free monthly newsletter: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #ThatsSoChronic

These That's So: episodes are released on the final Tuesday of every month. They are a chance to showcase a piece of content (books, films, interviews, literally anything and everything!) that is in the That's So Chronic world. If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com) or send a DM on instagram.

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage his condition (one of these being the overcoming MS lifestyle). Nick then explains the adventure he eventually embarks on in the Himalayas, which inspires the creation of Mastering Mountains - a charitable trust helping others achieve their adventure dreams and connect with community.

But, of course, as you have probably realised, his story doesn’t end there. Several years later Nick realises he has been misdiagnosed, and suddenly finds himself navigating the world of living with FND…

Follow Nick on Instagram: @nick_allen 

And check out Mastering Mountains: masteringmountains.org.nz

Find That’s So Chronic on IG and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Audrey opens up about how in denial she was when she first heard that her symptoms might be MS, and then the journey it took for her to make the decision to begin treatment. She also talks us through the practice of sophrology - a mind body practice that is extremely popular in France and other European countries - and how finding this practice has benefited her symptoms of living with MS. 

Step Into Sophrology: www.stepintosophrology.co.uk

The UK Centre of Excellence in Sophrology: www.sophroacademy.co.uk

Connect with Audrey on Facebook and Instagram: @stepintosophrology

Aaaaand you can always find me over on IG and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Sophie explains the process of discovering that she had a thick hymen, which involves several people telling her “she wasn’t ready” for sex, a gut feeling that wasn’t initially followed through, and a gynaecologist drawing a picture. This diagnosis resulted in a hymenectomy, a surgery that removes a part of the hymen. But, Sophie’s story doesn’t just end there. While going through this process she made a decision to share her story publicly, and she tells us exactly how that went down. 

Feel free to connect over on IG or Tiktok, I’m @thatssochronic 

Thanks for listening! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Dr Kara shares her diagnosis story, as well as the symptoms that - with hindsight - are also pieces of the Sjogren's puzzle. She explains what Sjogren’s is (spoiler: it isn’t the name of a table at IKEA), her symptoms, and how she manages them. This leads us nicely into chatting more about her work as an allergist, immunologist, and lifestyle medicine physician, as well as what “Become Immune Confident” means to her. 

Oh! And she also gives me all the details about Dr America - a pageant for Doctors. This (as well as Sjogren’s actually!) was something that I know not a lot about so I was really excited to learn more! 

Find out more about Dr Kara on her website: www.drkarawada.com

And follow on social media: @crunchyallergist  

Dr World: www.drworldproductions.com

And find out more about That’s So Chronic at thatssochronic.com and on instagram and tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Hayley chats about the pain research work that she is working on, her PhD, what excites her about the future of pain research, and of course, we chat about how she was able to incorporate her knowledge in pain science to play (and ultimately win!) Survivor Australia. 

Follow Hayley on Instagram or Twitter: @hayleyleake_ 

And don’t forget to check out The Chronic Pain Project on Instagram: @chronic_pain_project 

For behind the scenes content about That’s So Chronic, head to IG and Tiktok: @thatssochronic 

If you have a company, product, or exciting venture you would like to talk about on That’s So Chronic, send an email to hello@jessbrien.com

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Elizabeth shares the diagnosis process that eventuated after a bout of optic neuritis, how she felt when her symptoms had a name, her management plan including diet and Natalizumab/Tysabri infusions, and why she felt inspired to share her story today. 

This episode feels extra special, because what you will soon learn throughout the interview is that Elizabeth doesn’t really talk about her diagnosis a lot, but she wanted to share her story with all of you today. People choosing me and That’s So Chronic to help share their stories is something that I never take for granted! 

If you want to see more, feel free to connect over on IG and Tiktok: @thatssochronic 

And sign up to the monthly newsletter here: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #thatssochronic

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today’s episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder). 

In this episode, Ruby starts by sharing her story of her ME/CFS diagnosis, and takes us through how she got a diagnosis amongst lockdowns, she describes her symptoms and how she manages them, as well as explaining how she navigated going to university at the same time. We then discuss her diagnosis of endometriosis, which - probably comes as no surprise to a lot of listeners - came with a bit of a negative experience of the healthcare system. And then, of course, we chat about all things ADHD and how this diagnosis fits into her life.

Feel free to connect over on IG and Tiktok, I’m @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Welcome back! Today’s episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. 

In this episode, Allie takes us all the way back to the beginning and explains the countless surgeries that she went through up until the age of 19. She then talks us through how even though she swore that she would never step foot in a hospital as a patient ever again, she ended up spending months there after suddenly becoming unwell at the end of 2021. Allie explains the diagnosis process of CIDP, how she manages her symptoms, and how life is looking for her now. 

Side note: big apologies for the knocking on the microphone throughout the episode! Allie’s story is so captivating, I’m hoping you will hardly notice :) 

Follow Allie on Tiktok: @alex__sharples

And connect with me on IG or Tiktok: @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

You can expect new patient stories every Tuesday, and on the final Tuesday of the month, we chat about anything and everything that's in our That's So Chronic world. Whether that be a That's So episode focusing on a book, film, or another type of content, or a Spotlight On episode where we deep dive into a person or an organisation making waves in the chronic illness and disability space.

Follow on IG and Tiktok: @thatssochronic

Sign up to the free monthly newsletter on Substack: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

And feel free to reach out over at www.thatssochronic.com or send me an email: hello@jessbrien.com

Episodes featured in the trailer (in order of appearance):

• Emily Spink & Crohn's Disease

• Abbie Madden & Congenital Glaucoma

• Oliva Odey & Complex Regional Pain Syndrome (CRPS) and Neural Sensitisation Syndrome

• Joshua Phillips & Obsessive Compulsive Disorder (OCD)

• Lee Weir & Type 2 Diabetes

• Hayley Sproull & Polycystic Ovarian Syndrome (PCOS)

• Sam Smith & Relapsing Remitting Multiple Sclerosis (RRMS)

• Tatjana & Attention Deficit Hyperactivity Disorder (ADHD)

• Carlyn Reed & Hodgkin's Lymphoma

• That's So: The Uncertainty Myth by Dr Toni Lindsay

• Spotlight On: Get Well Circus

• Spotlight On: Exsurgo

• That's So: Why Does It Still Hurt? by Dr Paul Biegler

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Throughout the book Paul begins to unpack the reasons behind why it might still be hurting, using his own chronic pain journey, as well as other patients’ stories, and interviews with some of the top pain researchers, scientists and doctors in the world.

In this episode, I sit down with Paul, and we talk about his process of creating the book, some examples of the studies, and why he made the transition from emergency medicine to journalism. 

Find out more about Paul: paulbiegler.com

Why Does It Still Hurt is available in stores and online, or at your local library. 

Don’t forget to connect over on Instagram or Tiktok, @thatssochronic. I always love hearing from you all! 

Sign up to the monthly newsletter: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

In this episode Annie shares the accident that subsequently changed the course of her career, the diagnosis process, her definition of CRPS, how she manages her symptoms, the inspiration behind her latest single Falling Into Nashville and I learn about an amazing therapy technique with a mirror. 

Also, a fun behind the scenes fact... I uploaded this episode using inflight wifi while I was on my way back to NZ from Australia. Wifi in the air will never not get old for me!!

Find Annie on Facebook facebook.com/AnnieVanderMusic and on Instagram: @annie_vander

And search ‘Annie Vander’ wherever you stream your music! 

Don’t forget to connect with That’s So Chronic on Instagram and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Natasha explains what it was like receiving a diagnosis when she was 10 years old, the effects university had on her health, the ups and downs of moving overseas and exploring the world on immunosuppressants (which side note does involve shingles, strep throat, a parasite, and dengue fever), the impact holistic health practices has had on her journey, and of course the big one… what it’s like having a double hip replacement at age 32. 

You can connect with Natasha on instagram @natashagodetz or on her website natashagodetz.com

And don’t forget to follow That’s So Chronic on instagram and tiktok! @thatssochronic 

Thanks for listening! See you next week!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today’s episode is with Shana Pereira, and we are discussing her heart and kidney transplant, and honestly, at times you will think it is actually the plot of a movie... But more on that towards the end of the episode!

In this episode Shana talks us through her story that starts on Christmas eve 2015, how she felt when she discovered that her kidneys were failing, how the organ transplant process works, and the series of events that led to a Christmas miracle in 2020. Shana also chats about the importance of faith, holding on to hope, and being the COO of your medical team. 

*content warning* Shana does discuss her near death experience, which may be uncomfortable for some listeners, so please take care while listening!

Connect with Shana here: shanapereira.com

And don’t forget to follow That’s So Chronic on Instagram and Tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

I thought why not lean into the end of year vibes, and share 22 moments that have made up my (and the pod’s!) 2022. These are mostly highlights and achievements that feel fun to celebrate, with some challenging aspects thrown in too.

If you would like to support the work I do here at That’s So Chronic by “shouting a coffee” you can do that here: www.jessbrien.com/shoutacoffee 

But another way to support the pod (and it REALLY helps!!!) is to press follow wherever you’re listening from today. 

In the meantime, while you’re waiting for new episodes in the New Year, don’t forget to follow That’s So Chronic on Instagram and Tiktok as well @thatssochronic 

And sign up to the newsletter on Substack right here: thatssochronic.substack.com 

THANK YOU SO MUCH for being here listening! As always it is a pleasure to be in your ears every week. 

See you next year!

@thatssochronic | @jessssbrien | #thatssochronic

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

…and I have got a lot of fun facts to share with you all!!!

The Good Nurse is directed by Tobias Lindholm and stars Jessica Chastain and Eddie Redmayne. “Nurse Amy Loughren is shocked when Charlie Cullen, one of her colleagues, is found responsible for the murder of dozens of patients over a period of sixteen years, across two states and nine hospitals, without being charged.”

Capturing The Killer Nurse is a documentary film directed by Tim Travers Hawkins and “reveals how investigators proved ICU nurse Charles Cullen was killing patients — and how close he came to getting away with murder.”

All the links!

Amy Loughren’s website: amythegoodnurse.com and socials @amythegoodnurse

The Atlantic article by Shirley Li

New York Times article by Dave Itzkoff

Two interesting interviews with Tobias Lindholm in WhyNow and Deadline

Jessica Chastain’s interview with IndieWire  

Find That’s So Chronic on IG and Tiktok: @thatssochronic and don’t forget to sign up to the newsletter: thatssochronic.substack.com 

Thanks for listening! Love ya!

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

In this episode Olivia talks us through her symptoms that started about a year ago, how her medical team arrived at the diagnosis of ME/CFS, how she feels when she gets told she isn’t “bad enough” to warrant further testing, how she manages university study including the importance of lecture recordings, and we learn about her love for grocery shopping!

As always, feel free to reach out over on Instagram or Tiktok, I’m @thatssochronic

And thanks for listening! You’re the best!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Monica shares her diagnosis journey, the ups and downs that came with countless tests from various different medical professionals, the decision to go through with brain surgery for the tumours on her pituitary gland, an expensive medication, travelling to different places for these treatments, and how she’s feeling after bilateral adrenalectomy surgery.

Thanks for listening! Feel free to reach out over on instagram or tiktok, I’m @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

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Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

** We had a couple of technical difficulties getting this video call to work, so thanks in advance for being understanding about the sound quality! **

In this episode, we basically talk about everything! Natalie and Dr Laurie take us through Natalie’s diagnosis of rheumatoid arthritis when she was a freshman in high school, the eventual diagnosis of pericarditis and lupus, what it was like growing up being the one who always puked on family car trips, the challenges that come with chronic illness, and why it’s important to advocate for yourself or for your child.

Aaaaand of course, Dr Laurie also shares some funny moments of Natalie’s childhood with all of us as well! 

Natalie is the first to recognise that not everyone has the privilege of having a doctor for a mum, but her mum has been there through her health journey, so we thought why not share and celebrate this part of her story today!

Don’t forget to connect with That’s So Chronic over on Instagram or Tiktok: @thatssochronic 

And sign up for the free monthly newsletter: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #thatssochronic

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Chelsea shares her experiences of seeking a diagnosis which includes flying to a different city for an appointment, how each of these conditions affect her, the importance of talking about periods, and how validating it can be talking to someone who understands.

Connect with Chelsea and see her embroidery creations on IG: @sewnearyetsewfar

And as always, feel free to reach out and connect over on IG or Tiktok, I’m @thatssochronic

Thank you for listening and supporting! You're the best!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode I’m chatting to co-founder and executive director Dan Rubins, as well as music director Sofía Campoamor. They share the story behind Hear Your Song, what a session entails, and what they’ve learnt along the way. Annie, Piper, Zippy, and Elliot explain what they love about being a part of this project, and we also hear about Hear Your Song’s recent concert at 54 Below in NYC, where Broadway performers collaborated with the kids to perform their songs! 

Oh, and we get to listen to some of the songs!

Find out more and support the work at Hear Your Song: www.hearyoursong.org

Follow HYS on social media @hearyoursonghys

And listen to all of the songs on their youtube channel: youtube.com/channel/UCcn-79DuKg3Rx0RD6gcfkvA 

If you’ve got something you would like That’s So Chronic to shine a spotlight on, feel free to reach out on Instagram @thatssochronic, or send me an email hello@jessbrien.com 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Finn explains the journey to get to a diagnosis (which is still continuing!), what on earth EDS is, and how medicinal cannabis has helped her symptoms. Finn also takes us through the amount of advocacy work, research, and time they have had to do in order to get to where they are now, and the plans for the future support.

Please note we do talk about some elements of the NZ health system that may be different now due to the reform, or not applicable to where you are based. 

Connect with Finn over on IG: @violetyouareturningviolet  

And you can find me on IG & Tiktok: @thatssochronic 

I would also really appreciate a rating or a review wherever you’re listening to this pod! That really helps TSC reach more ears around the world - so thank you! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

I really enjoyed getting to chat to Ben all about my gluten intolerance diagnosis. It’s something that I haven’t really talked about before on mic, so I thought what a great opportunity to share a little bit more of my health story with all of you!

In this episode I talk about the symptoms I was experiencing when I was 15 that eventually led to a gluten intolerance diagnosis, I express my love for the gluten free foods in Australia, a recap on my MS diagnosis (for all of you OG listeners), and a little bit of advice for anyone on their chronic illness journey.

Big thanks to Ben for facilitating and sharing this interview with me!

You can listen to Ben over on A Gluten Free Podcast wherever you listen to your pods, and connect over on instagram @a.gffamily and on tiktok @aglutenfreefamily 

And you can find me behind @thatssochronic on IG and Tiktok!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

** a content warning: while we share a lot of laughs, we do touch on the subject of death, so please take care while listening **

Dr Toni Lindsay is a clinical and health psychologist who has been working with both adults and adolescents for over 10 years. Currently she is working at Chris O'Brien Lifehouse in the oncology service and is a specialist in the care of adolescents and young adults with cancer. 

In her third book The Certainty Myth, she shares her knowledge as well as stories from her patients, to help give readers the tools to help manage the anxiety around uncertainty. It’s not full of jargon (which I loved!) and has a relaxed and friendly tone. I can be a bit of a brat, but I immediately jumped on board, and I got a lot out of it!

In our interview, Dr Toni talks about her work, the inspiration behind writing the book, her love of metaphors, and what she hopes readers will take away from reading The Certainty Myth.

Find out more about Dr Toni: tonilindsay.com.au

And grab a copy of The Certainty Myth: exislepublishing.com/product/the-certainty-myth

Sign up to the free monthly newsletter: thatssochronic.substack.com

Big thanks to @exislepublishing for the advanced copy of this book. 

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Maria shares the journey of her ADHD diagnosis, from a diagnosis in Hawai’i that she was convinced was a misdiagnosis to an eventual diagnosis at age 32. She also shares her symptoms and how she manages them, her frustrations in why it took so long, and leaves us all with some advice.

Maria also talks about why she’s so passionate about spreading awareness, and gives us a bit of an insight into her upcoming comedy shows!

GET YOUR TICKETS FOR ‘ANXIETY: THE MUSICAL’ IN WELLINGTON 15-19 NOV: bats.co.nz/whats-on/anxiety-the-musical/

And follow Maria on twitter @mariawilliamsnz for updates on her next show ADHD: The Musical.

As always, feel free to connect over on instagram and tiktok, I’m @thatssochronic. 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Caitlyn shares her diagnosis story, the symptoms she experiences, the decision to go through with surgery to her oesophagus and stomach, how she managed uni and her mental health throughout all of this, and why she was inspired to share her story with me today.

If you too have been diagnosed with achalasia, I am sure Caitlyn would love to hear from you! Feel free to send me an email or a message over on IG (@thatssochronic) and I’ll connect you! 

Thank you for supporting That’s So Chronic. Without all of your reviews, ratings, follows and shares this podcast literally wouldn’t exist! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

The Chronic Pain Couple is a book for all of those living with chronic pain who wants to have a remarkable relationship. Australian health entrepreneur Karra Eloff has drawn on academic research and her own pursuit of joy in spite of suffering to develop this trailblazing, compassionate, low-energy and practical path to a remarkable new normal, delivering much-needed solutions to couples living with one partner’s chronic pain.

In this episode I share some of my thoughts, and Karra explains what it is she does, a bit about her diagnosis of spondyloarthritis (and why I found that so important when reading this book!), the process of writing (and rewriting as was the case for the mental health chapter!) and why she’s dedicated to helping people live remarkable lives.

You can find more about Karra on her website: www.chronicpaincouple.com or on social media: @chronicpaincouple 

Grab your copy online, or where all good books are sold!

A big thanks to Exisle Publishing for my copy of The Chronic Pain Couple and supporting That’s So Chronic. They’ve given me some copies to giveaway, so head to @thatsschronic on instagram to be in to win! 

Also, heads up, there is a bit of a sound issue in some of the audio during the interview. Thanks for being understanding! 

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Sean talks us through the moment when he fell off a balcony, the recovery process, as well as how recovery looks when you’re a student, how he managed to complete a goal by being able to ski again, and why he wants to share his story. 

Sean is also a co-founder of the Otago Disabled Students’ Association (@otagodsa on instagram, and facebook) so of course we chat about that too.

But just a heads up, there is little issue with the sound quality in this episode compared to other episodes. I hope you don’t mind! 

SIGN UP TO THE FREE THAT’S SO CHRONIC NEWSLETTER: thatssochronic.substack.com (Sorry for shouting, I'm just excited!)

And as always, you can find TSC over on instagram and tiktok: @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Rosie takes us through her coeliac diagnosis (as well the important questions like what her final meal would be if suddenly the world ended in the next five minutes) before getting to the big one: when she started experiencing symptoms of MS, the four day hospital stay that resulted in a diagnosis, her treatment plan, what she has had to change, and the pressure that comes with being a teacher.

Rosie offers a unique perspective, as she hasn’t been living with her diagnosis of MS for very long, and I really appreciated her willingness to share her story while she was still coming to terms with it herself.

You can find Rosie on instagram: @cynicalcoeliac

And as always, you can find me over on instagram & tiktok: @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Amber talks us through her diagnosis of UC, the effects not having insurance had on her level of care, the decision to go through with J-pouch surgery, why she does the work that she does, and some excellent advice for anyone out there who has just been diagnosed with a chronic illness. 

If you want more of Amber (don’t blame ya!) make sure you check out her podcast AboutIBD, her website aboutibd.com and over on social media (instagram @about_IBD, and facebook & twitter @aboutIBD)

The link to find out more about IBD Moms is here: ibdmoms.org

And don't be afraid to reach out - you can find me over on instagram and tiktok: @thatssochronic 

Thank you for listening. If you enjoyed this episode, why not share it with someone who you think would enjoy it as well! 

Have a great week!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Ben runs us through his journey to a diagnosis, what coeliac disease even is, the somewhat silver lining of being diagnosed in the middle of a global pandemic, what he’s found the most difficult, and the importance of finding a community.

You can listen to Ben over on A Gluten Free Podcast wherever you listen to your pods, and connect with him over on instagram @a.gffamily and on tiktok @aglutenfreefamily 

And you can find me on instagram and tiktok: @thatssochronic. I love hearing from you so don't be afraid to reach out.

Thanks for listening and supporting! Don’t forget to press follow and leave a review. You’re the best! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode we’re talking about what inspired Richard to begin working in this space, his definition of chronic pain, what the latest piece of technology Axon is all about, and some advice for anyone out there with an idea to make a change in the medical industry.

Don’t forget to head to their website www.exsurgo.com for more information, and keep an eye on their social media (instagram, facebook, twitter and linkedin) @exsurgoneuro.

The Spinoff article I mentioned at the beginning of the episode: thespinoff.co.nz/partner/25-08-2021/fighting-chronic-pain-by-controlling-brain-waves

If you have a company, product, or exciting venture you would like to talk about on That’s So Chronic, send me an email: hello@jessbrien.com

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Cheyenne explains what EDS is, the 10 year journey to her getting a diagnosis, the life changing decision to go through ileostomy surgery, the toll this has had an her mental health, and why she’s dedicated to sharing her story. 

If you would like to find out more about Cheyenne, you can head to her instagram: @cheyber_space

And you can find me on instagram and tiktok: @thatssochronic 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Megan talks us through her diagnosis story, what it was like being a part of the PIPI programme at Burwood Hospital, the importance of finding a good GP, her experience navigating the private v public aspect of the NZ health system, and everything in between! 

Megan shares her story so openly, and I’m grateful that I could help her share her story with all of you.

If you’re a new listener - Hi! Welcome! I would love you to hit that follow button (and maybe even a cheeky 5 star review?!) wherever you’re listening. Love you the most!

You can find That’s So Chronic on instagram and tiktok: @thatssochronic

See you next week! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Logan talks about his diagnosis, the decisions he made in regards to treatment, how wildly different specialists’ opinions can be, why he poured so much time and energy into becoming an expert on his own condition, and what motivated him to keep trying even though a lot of people were saying it wouldn’t be possible. 

You can find Logan on instagram: @_kiwidad  

You can also join the testosterone replacement New Zealand facebook group here: https://www.facebook.com/groups/730371087688492

And if you're interested in hearing more about Logan and Charlie's birth story, listen to his interview over on Kiwi Birth Tales

Make sure you're following That’s So Chronic on instagram and tiktok: @thatssochronic, and don’t forget to press follow on Spotify or Apple pods if you’re new around here! 

PS… Thanks for being patient while I took a little breather, it’s so good to be back! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

But, this reminds me… Here’s the application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Don’t forget to sign up to the free monthly newsletter: thatssochronic.substack.com

Aaaaand follow That’s So Chronic on instagram & tiktok: @thatssochronic

Miss you already! See you soon xx

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

The Invisible Kingdom - Reimagining Chronic Illness, blends New York Times best seller Meghan O’Rourke’s own experiences of searching for answers/a diagnosis, as well as interviews between health professionals, patients, researchers, and public health experts, to unpack “invisible” illnesses. 

In this episode we get to hear from Meghan to learn about what goes into writing a book, what the response has been, and similarities between the New Zealand and American health system (sorry, but WHY are we still using FAX MACHINES?!) This book took me on a ride, and I can’t wait to share my thoughts with you all!  

“The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.”

“Remarkable.” – The New York Times

Follow Meghan O’Rourke on twitter and instagram: @meghanor, and over on facebook. You can also find out more at: meghanorourke.com

Add The Invisible Kingdom to your GoodReads, and purchase your copy online, on Google Books or Kindle, or borrow from your local library.

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Sarah explains what chronic migraine is (spoiler alert… it’s not *just* a headache!), what inspired her to start sharing her story on her blog www.migrainedownunder.com, how she manages migraine attacks, what treatments are out there (and whether they’re available in New Zealand…) and then we get to hear all about the work she’s doing starting a not-for-profit incorporate society for people living with migraine.

For more information: migrainefoundation.org.nz

Sarah’s blog: migrainedownunder.com 

And don’t forget to follow the Migraine Foundation Aotearoa New Zealand on Facebook and Instagram 

Aaaaand of course, make sure you’ve pressed follow wherever you’re listening from and leave a 5 star review! Thank you! Love you the most!

You can find me over on instagram and tiktok, I'm @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Christina talks us through getting a diagnosis, how she managed her symptoms while studying in a double PhD programme, the challenges moving states has had on her treatment plan, and of course the story of how AEPIOS came to be. 

If you would like to know more about AEPIOS, check out their website: www.aepios.com

And if you would like to know about That’s So Chronic, you can find us on Instagram and Tiktok: @thatssochronic 

Don’t forget to press follow, and leave a 5 star review! That REALLY helps and I will love you forever for it! 

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Dr Payne talks about the journey of finally getting a diagnosis (and a name!) for his symptoms, how he manages these symptoms, what has inspired his work at yourlifelivedwell.co (including writing his book), he teaches me some new information about stress, and then we get to the big one… How and why he became a pro skydiver.

…I KNOW! I told you you were in for a treat!

For more information about Dr Payne and the work he does, check out yourlifelivedwell.co, find him on instagram at @yourllwell and @drkjpayne, or listen to his podcast (just search “Your Life Lived Well”)

And if you’re after that embarrassing bungy jump video… you’ll have to come and find me on Instagram or Tiktok, I’m @thatssochronic

As always, it’s a pleasure to be in your ears! See you next week!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Emma shares the road to getting these diagnoses, how sometimes implementing an immediate management strategy like a FODMAP diet is just a little bit unsustainable, what it’s like living, performing and working with multiple chronic illnesses, and some advice for pre diagnosis Emma. 

Find Emma on instagram @em_ma_maguire and on twitter @eph__em__era 

If you have any thoughts or feels don’t be afraid to reach out! I’m @thatssochronic on instagram and tiktok!

(Also, if you made it to the end and did that special favour, thank you SO much!!!)

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Unrest was created by Jennifer Brae who is an independent documentary filmmaker based in LA. Jennifer was studying towards her PhD at Harvard, when suddenly a mysterious illness left her bedridden. She decided to turn the camera on herself, and document the process. What unfolded over the next few years was an eventual diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome. 

Stream Unrest now: https://unrest.film or on Netflix  

And as promised, here is Miranda’s appearance on Penn & Teller’s Fool Us: https://www.youtube.com/watch?v=CfGGIQbsrrE ... I TOLD YOU you had to see it to believe it!!

Let’s keep the convo going over on Instagram and Tiktok, I’m @thatssochronic

I actually love making these That’s So episodes! So thank you for listening!

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Rosie talks about how these diagnoses can to be, as well as how they have shaped their creative practice, what inspires them to be so open about chronic illness and disability, and whether that surgeon was right… Would Rosie ever be a dancer again?

You can find Rosie on instagram and facebook: @rosieroulette 

As well as their chronic illness cabaret: @chroniccabaret

And of course, you can find me on instagram and tiktok: @thatssochronic 

Rosie was the year above me at drama school and being able to chat to them now about their journey was a great check in for me to remember that we really have no idea what’s going on behind the scenes for people, even people that we might see every single day. 

PS there are some weird tech issues throughout this episode, so it’s not your headphones breaking! Sorry! Xoxo

@thatssochronic | @jessssbrien | #thatssochronic

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Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Eh-den is living with a diagnosis of the rare autoimmune condition scleroderma, which affects the connective tissues in the body, so aka, almost everything.

In this episode Eh-den takes us through the journey of actually getting a diagnosis, how scleroderma affects her and how she has had to accommodate, she also gives us a run down of the 12 specialists (!!!) she sees regularly, and to be honest she just really gives us an insight into what it’s like living with a chronic illness. 

As scleroderma is a rare condition, if you’re listening and you too have scleroderma and you feel comfortable reaching out, we would love to hear from you! 

For more info on SheNYC Arts: shenycarts.org

And for more info on this podcast you can find That’s So Chronic on instagram & tiktok: @thatssochronic 

Aaaaaaand click here to share your story!! https://forms.gle/csebLkwfwAjiLApK9

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Laura explains how her MS diagnosis came to be, how she navigated traveling around South East Asia so soon after that diagnosis, her experience changing to different treatments, and the big one: moving to NZ from Ireland and having to manage visas, doctors, insurance, as well as her MS. 

You might recognise Laura from her previous That's So: episode where we discussed Adam Kay’s book This Is Going To Hurt!

Don’t forget to head to @thatssochronic on instagram and tiktok to see some BTS goodies!

@thatssochronic | @jessssbrien | #thatssochronic

Free monthly newsletter: thatssochronic.substack.com

Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Tori talks us through her open heart surgeries (her first being when she was just 4 days old!) the basketball game where she was whisked off in an ambulance, her tips and tricks to exercising with a CHD, what inspires her to share her story so openly, and the funny moments she finds herself in when doctors discover she doesn’t have part of her subclavian artery in her left arm.

You can find Tori on instagram @torijoygeiger, as well as over on her website torijoygeiger.com

And if you’re interested in finding out more about her book From Vulnerable To Victorious, you can order your copy here: www.amazon.com/dp/B09J43644Q

If you have any thoughts, you want to reach out or you would like to see a little more behind the scenes snippets of That’s So Chronic, head to @thatssochronic on instagram and tiktok!

@thatssochronic | @jessssbrien | #thatssochronic

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Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Pop in your headphones and get ready!

In this episode Hannah shares so openly her experience of being diagnosed Type 1 in her twenties, the grieving process that comes along with that, how she felt starting insulin injections, how it works when you’re pregnant with type 1 diabetes, the importance of a support group, and Hannah talks us through the birth of her adorable baby that didn’t quite go to plan.

I feel so honoured that Hannah chose me and That’s So Chronic to share her story with today, and I’m so grateful our mutual friend was able to connect us! 

If you have any thoughts, you want to reach out or you would like to see a little more behind the scenes snippets of That’s So Chronic, head to @thatssochronic on instagram and tiktok!

@thatssochronic | @jessssbrien | #thatssochronic

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Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Olivia shares with us the lead up of events that resulted in the doctors finding a blood clot in her lungs, how she manages studying as well as her symptoms, what being diagnosed with CTEPH has taught her about life, and the dilemma of being at risk of developing severe illness with the cov, while being medically exempt from wearing a mask.

Just a note, this episode was recorded in October 2021.

As always, I love hearing from you! So don’t be afraid to reach out over on instagram or tiktok, I’m @thatssochronic.

All additional information is below… And I’ll see you next week! 

@thatssochronic | @jessssbrien | #thatssochronic

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Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

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Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today’s episode - Spotlight On: Beijing 2022 Paralympics Winter Games - is an explainer episode so you get to know the ins and outs of the Paralympics before tuning into the opening ceremony this evening and watching the events unfold over the next nine days. I also let you know when New Zealand is competing and let you in on a bit of drama I’ve been watching play out online...

More information on Paralympics NZ: https://paralympics.org.nz 

NZ coverage: www.tvnz.co.nz/shows/pyeongchang-2018-paralympic-winter-games/winter-paralympic-sports  

More information on the classifications: https://www.paralympic.org/classification 

Follow Cecile Hernandez @cecilehernandezathlete and Brenna Huckaby @bren_hucks on instagram (I also recommend following Brenna on tiktok @brennahuckaby) 

You can also keep up to date over on @thatssochronic on instagram and tiktok. I would love to hear your thoughts so don’t be afraid to reach out! 

And sign up to the FREE monthly newsletter here: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Living with a chronic condition - especially one that involves pain - can feel incredibly isolating, so I really loved being able to connect with Ally!

In this episode Ally talks us through the journey of finally getting a name for what had been going on for her, how she manages her symptoms, her definition of pain, the importance of connecting with others and why she created a chronic pain support group.

If you’re interested in finding out more about her chronic pain support group, send an email to: UCchronicpain@gmail.com 

As always, thank you for being here and supporting the pod!

You can find That’s So Chronic on instagram and tiktok @thatssochronic. Don’t be afraid to reach out! It makes my day hearing from you all! 

@thatssochronic | @jessssbrien | #thatssochronic

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Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Ideas for That’s So episodes: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Get Well Circus - a new circus collective creating and celebrating art for the chronic pain and illness community currently based in Australia. 

In today’s episode we hear from performers Abbie and Emily, and creative producer Sam, as they explain what makes Get Well Circus tick, the inspiration behind starting the company, the development of their show Get Well Soon, and they give us an insight into their future ideas.

You can stay up to date with Get Well Circus over on instagram @getwellcircus and on their website www.getwellcircus.com

Please note: this episode was recorded in September 2021, and some information may have changed. 

If you’re new around here (hiiii!) don’t forget to press follow, and leave a review. That really makes my day! You can also find me on instagram and tiktok @thatssochronic and I always love to hear from you so don’t be afraid to reach out! 

@thatssochronic | @jessssbrien | #thatssochronic

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Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 

Ideas for That’s So episodes: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today’s episode is with Corianne Holmes, who you might recognise from @southislandtinyhouse, and we are chatting about all things thyroid.

In this episode Cori explains the process of receiving a diagnosis of hyperthyroidism back in the United States when she was just 10 years old, and how that eventually turned into a diagnosis of hypothyroidism, why she opted for the partial thyroidectomy surgery, and she also talks us through the process of moving her medical care from the states to New Zealand, and I nerd out a little bit over that. 

Even though cov got in the way of us meeting and chatting in person like we had originally planned, I was excited to chat to Cori on take 2 and I just know you’re going to enjoy this episode too.

You can find out more about Cori, find links to her book and learn more about the South Island Tiny House on instagram: @coririanne

If you enjoyed this episode don’t forget to press follow and leave a review! You can also find me on Instagram and Tiktok @thatssochronic. You are my faves!

@thatssochronic | @jessssbrien | #ThatsSoChronic 

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Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode I let you know all about my existential crisis, what I’ve been up to, and I have a BIG ANNOUNCEMENT! Like, it’s big.

Anyway… NEW EPISODES TUESDAY 15 FEBRUARY!

Don’t forget to press follow wherever you’re listening so you never miss an episode. And if you fancy… Why not leave a 5 star review?

That’s So Chronic is officially on tiktok! Make sure you’re following @thatssochronic for all of the behind-the-scenes goodness, as well as following along on instagram (same username! Too easy!)

Still want more?! Gah. You’re my favourite.

You can sign up to the free monthly newsletter right here: thatssochronic.substack.com

@thatssochronic | @jessssbrien | #thatssochronic

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

You can expect to hear about a variety of different topics, including the important, amazing and difficult things, while not forgetting to have a laugh along the way! You can also expect more That’s So… and Spotlight On episodes, where we chat about everything and anything that’s in our That’s So Chronic world.

Don’t forget to press follow wherever you’re listening from, so you never miss an episode!

Make sure you’re following over on Instagram & Tiktok for all of the up to date information, I’m @thatssochronic, and you can sign up for the free monthly newsletter right here: thatssochronic.substack.com

NEW EPISODES FROM TUESDAY 15 FEBRUARY!

@thatssochronic | @jessssbrien | #thatssochronic

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Spoiler alert: we loved it!

Dandelion Heart is a collection of essays and poetry which grapples with disability in an identity-driven world. Exploring powerful themes ranging from body image and self-esteem to sex, relationships, and mental health, author and disability rights advocate, Kelly Vincent, draws on her own experiences as an autistic and physically disabled person.

In this episode we talk about identity, discuss our favourite moments, Diana reveals their love of poetry and I reveal my lack of poetry experience, and we agree that the book is like a nice warm hug.

Get your copy of Dandelion Heart by Kelly Vincent right here: debutbooks.com.au/bookstore/p/dandelion-heart-by-kelly-vincent 

I read this book on Kindle, and the link for that is here: amazon.com/dp/B09DFBSLKW/ref=cm_sw_em_r_mt_dp_SV0YFFFPZ10JMK4THE2M 

If you’re interested in hearing more about Diana Divine’s story, make sure you listen to their interview episode right here on That’s So Chronic, and you can find them on Instagram: @dianadivineburlesque  

If you're not already, come and join the conversation over on Instagram! Follow @thatssochronic for all of the latest That’s So Chronic goings on, and if you’re new around here (hi! I see you!) hit that big subscribe or follow button, and if you fancy, please leave a review.

@thatssochronic | @jessssbrien | #ThatsSoChronic

If you have something that you would like discussed on an upcoming That’s So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Hayley explains what that first year uni life was like post diagnosis, the years of remission she experienced soon after, the next big flare which lead her to being in hospital over New Years and having a subtotal colectomy, which eventually lead to her living life with one less major organ and an ileostomy. 

Hayley also speaks about how being diagnosed and having many surgeries has affected her mentally which I personally really resonated with and I’m sure most of you will too! 

Make sure you’re following Hayley on Instagram: @hayleygreer (I particularly love her reels!) 

And if you want to reach out, you can find me on Instagram: @thatssochronic

Little did we know but we actually recorded this episode on World Ostomy Day! Which feels very fitting. I can’t wait for you to listen, and as always, let me know what you think!

@thatssochronic | @jessssbrien | #thatssochronic

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Holly talks us through the 15 or so years of constantly wondering what was happening to her, how she imagined receiving a diagnosis would look like… and then the reality of actually getting that diagnosis, what Beçhet’s is, the treatment plan moving forward, and how chronic illness has inspired her art.

I felt like I had known Holly forever and I loved getting to learn more about her story. I think you’re really going to enjoy this episode too. 

You can find Holly on instagram: @hollydoesntfeelwell

And to stay up to date with Touch Compass and when Holly’s art installation Thread Count as part of /rītaha/ will be, you can check out their website: touchcompass.org.nz or follow them on social media @touchcompass 

For more information about Rare Disorders NZ: raredisorders.org.nz

That “show must go on” post that we mention can be found on @offstage.equilibrium ‘s instagram: instagram.com/p/CT40X0rLkPG/

And if you want to reach out, tell me something fun that’s happening for you, or just connect, feel free to send me a DM or follow along with the adventures over on Instagram, I’m @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

*This episode is not intended to be a substitute for professional medical advice. Please talk to a member of your medical team if you have any questions and before making any decisions for yourself or for others.*

This episode is a little different to anything I've created before as I'm literally just talking into my phone for most of the episode. But I really hope you enjoy a more laid back style, and get an insight into how my brain works (aka how impatient I truly am lol)

The zoom call about the Pfizer vaccine & people living with MS: youtube.com/watch?v=8k0-PV97DJE as well as more information here: msnz.org.nz/covid-vaccine-update-for-people-with-ms/ 

If you’re in NZ and you would like to book your vaccine, or you want to know more, head to: bookmyvaccine.nz 

The inspiration to document this (kinda huge!) moment for public health came from Morgan (@howtocoeliac) and her vlog: youtube.com/watch?v=gzAmQgV9OaA&t=5s

RNZ's article: 'Google it': Ill man horrified by vaccine advice: rnz.co.nz/news/national/450856/google-it-ill-man-horrified-by-vaccine-advice

Spotlight On is a regular (ish!) series here at That’s So Chronic where we get the opportunity to shine a light and chat a bit more in depth about something that’s in our That’s So Chronic world. If you enjoyed this episode, you might also enjoy a previous episode, Spotlight On: medicinal cannabis. 

If you have an idea for an upcoming Spotlight On episode, or you just want to let me know what you thought of this episode, you can send me a DM on instagram, I’m @thatssochronic 

Thanks again for all of your support! If you want to “shout That’s So Chronic a coffee!” you can find the info right here: https://www.jessbrien.com/shoutacoffee (um, thank you! You’re the actual best!!!)

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Evie talks us through the years of their symptoms being dismissed, an eventful few months with an ear nose and throat specialist, how they finally got a diagnosis (and the side effects that came with that surgery!), why they had to pull out of circus school, and Evie gives an insight in to being non binary and navigating the health system. 

You can find Evie on instagram: @hey.heyevie 

And you can also read Evie’s blog posts over on getwellcircus.com/journal/categories/evie (I highly recommend you have a read!!)

If you would like to connect further, you can find That’s So Chronic on instagram: @thatssochronic. I truly love hearing from you and seeing where you’re listening to the pod, so don’t be afraid to reach out! 

If you enjoyed this episode, make sure you’ve pressed subscribe or follow, and left a review! That helps more people find TSC from around the world, and that, to be frank, would be really cool! 

@thatssochronic | @jessssbrien | #thatssochronic

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode we learn about the moment my life took a random unexpected turn in September 2019, the moment the idea for That’s So Chronic happened, the journey of actually making the podcast, and where on earth we go from here! 

There is NO way this podcast would be happening if it wasn’t for all of YOU. Because of you guys listening at home, at work, on your walks, or wherever you may be listening from, means that I can keep connecting with people all around the world and share their stories. So from the bottom of my heart, thank you thank you thank you.

If you want to support the podcast, the best way you can do this is by pressing that big ol' subscribe or follow button, by leaving a review, and sharing the episodes with people who might enjoy them as well! Or, if you fancy, you could even “shout us a coffee” at jessbrien.com/shoutacoffee to help keep the work here at That’s So Chronic going, and keep these episodes completely free and accessible for everyone. We also hear from a few people who sent in birthday voice notes! I get a bit emotional! It's been a day!

As always, my DMs are always open over on Instagram, so make sure you’re following @thatssochronic

If you’re new around here (HI!) or if you’ve been here since the beginning (Hello!) you are the absolute best and I love you so much. Thank you! Have a lovely week!

Mentioned in this episode:

Trinity MRI

Kris Hallenga's (@howtoglitteraturd) episode on the Get The Scoop pod

Molly’s Pink Creative @mollyspink.creative 

Lola Berry’s podcast Fearlessly Failing

Shameless Media Co. 

SquadCast (psst, you can sign up using my affiliate link here: squadcast.fm/?ref=jessbrien)

Diagnosis on Netflix

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Tatjana’s diagnosis is still super fresh, so after meeting for coffee and discussing how this episode could go, we decided this is a perfect opportunity to share the diagnosis process within the mental health system here in New Zealand.

In this episode we really explore the process from the moment she thought "hey that could be me" in 2019, to seeing multiple tiktoks in 2021 thinking "hey that could still be me", to then securing a psychologist appointment, receiving her diagnosis, and starting on medication.

The graphic that Tatjana mentions is by an artist who goes by @adhd_alien on instagram, and facebook.com/adhdalien on Facebook

If you’d like to know more about Tatjana, you can find her on instagram: @tatjanat.performer 

Thanks for listening to this interview of That’s So Chronic! Don’t forget to press subscribe on Apple Podcasts or follow on Spotify, leave a review if you fancy, and as always, feel free to reach out over on instagram, I’m @thatssochronic.

@thatssochronic | @jessssbrien | #thatssochronic

Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode. Perhaps a book, film, podcast, article that discusses something in our TSC world? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

I got to sit down with Alex Brocklehurst (she even made us a platter of goodies!) to chat about her diagnosis of cluster headaches - known to be one of the most painful types of headaches a person can endure.

In this episode Alex talks us through her diagnosis, she explains how the cluster headaches feel for her, how her medication works, and leaves us with an important message.

Content warning: there is a brief mention of suicide in this episode, and there is a trigger warning from Alex before that moment in the episode. 

If you’re new around here (hello!) make sure you’ve pressed that subscribe or follow button so you never miss an episode, and as always, feel free to reach out over on instagram, I'm @thatssochronic.

@thatssochronic | @jessssbrien | #thatssochronic

Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

*Please note: This episode was recorded in July, before the nationwide lockdown in New Zealand, so no bubbles were burst in the making of this episode.*

Hosted on Acast. See acast.com/privacy for more information.

In this episode we pick up where we left off last Sunday and debrief the week that was for our NZ Paralympians. Of course there’s some fun facts that I’ve learnt along the way including the role of the guides in para sport, as well checking back in with Otago WheelLander and friend of the pod Lauren Dewhirst. I also have some burning questions about the Paralympic medals, and I thought who better to ask than Paralympic bronze medalist Rory McSweeney himself.

**Please note: due to the fast paced nature of piecing this episode together, there are a couple of sound issues that pop up... Please accept my apologies! But I thought you guys are so awesome you would be pretty forgiving!**

You can watch The Invisible Bond documentary for free right here: olympics.com/en/films/watch/the-invisible-bond-documentary 

Make sure you head to Paralympics NZ on Instagram @paralympicsNZ or Facebook facebook.com/paralympicsnewzealand to get the most up to date information

And that little favour I asked at the end of the episode… If you enjoyed these Paralympics episodes or learnt something about the Paralympics, I would really appreciate a message either on Instagram @thatssochronic, Facebook facebook.com/thatssochronic or email hello@jessbrien.com with a short testimonial. I’m officially starting my campaign to get a media pass at the Paris 2024 Paralympic Games you see, and every little piece of feedback is super helpful in trying to make that happen! 

See you on Tuesday as we start back with our regular Tuesday interviews!

Thanks for listening, you really are the best!! <3

"No one knows what you are capable of other than you. Don't listen to them. They don't know what you can do." - Nicole Murray

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Rising Phoenix is a documentary directed by Ian Bonhôte and Pete Ettedjui, which follows 9 Paralympians and various other insiders as they reflect on the Paralympic Games and movement, including the success of London 2012 and the funding dramas during Rio 2016. 

In this episode we learn more about the thoughts behind the filmmakers’ vision, what you can expect throughout the doco, your thoughts after watching, and I get to ask New Zealand Paralympian Rory McSweeney how he felt in the lead up to the Rio 2016 Paralympic Games. I also attempt to speak French lol.

You can watch Rising Phoenix for FREE until September 5 on youtube: youtube.com/watch?v=-Wa0Ta1pqu4 

And on Netflix: netflix.com/title/81122408 

Don’t forget to come back on Sunday as we bring you another Tokyo 2020 Highlight & Hype episode recapping the week that was at the Tokyo 2020 Paralympics! 

Make sure you’re following @thatssochronic over on instagram for all of the latest That’s So Chronic goings on, and if you’re new around here (hi! I see you!) hit that big subscribe or follow button, and if you fancy, please leave a review.

If you want to share a thought about this episode or an upcoming episode topic, send in a voice note! jessbrien.com/hotline 

Have a suggestion, or want to be involved in the That’s So: series? Fill out this google form: https://forms.gle/4RZbCiHARjV5gmcWA 

@thatssochronic | @jessssbrien | #ThatsSoChronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

It’s day 5 at the Tokyo 2020 Paralympic Games today and I am excited to bring you this Highlights & Hype episode recapping the first week at the Games for Team NZ (and also for people who live with MS because apparently I’m also extremely biased like that haha…) as well as letting you know what you don’t want to miss.

In this episode I got to sit down with Paralympic bronze medalist Rory McSweeney to get an insight into what goes on behind the scenes to represent New Zealand on the world stage, and friend of the podcast and Otago WheelLander Lauren Dewhirst to learn the ins and outs of wheelchair rugby. And then you hear from me, because I desperately need to chat about the opening ceremony with someone!

** Apologies for not mentioning the Wheelblacks' final game on Saturday against Denmark! It was amazing watch, with the final score NZ: 53 | DEN: 56 **

A huge thank you to Paralympics NZ (@ParalympicsNZ) for helping make this episode possible.

Join us here at That’s So Chronic on Tuesday for a special Paralympics That’s So episode, as well as next Sunday 5 September for a recap of the final week. 

The response has been incredible and I'm loving chatting to you all about the Paralympics, so as always you can always reach me over on instagram @thatssochronic

I would love to hear your thoughts on the Tokyo 2020 Paralympics, so please feel free to send in a VOICE NOTE over on jessbrien.com/hotline - you might just be included in an upcoming episode!

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today’s episode - Spotlight On: Paralympics 101 - is an explainer episode so you can get to know the ins and outs of the Paralympics before tuning into the opening ceremony this evening and watching the events unfold over the next two weeks. 

In this episode we learn about the history, the classification system, the sports, the NZ team, what COVID means for the Games, and where and how you can watch. 

More information on Paralympics NZ: paralympics.org.nz and @paralympicsnz

Download the NZ Team app today! app.olympic.org.nz

NZ coverage: tvnz.co.nz/shows/paralympics 

Around the world coverage: paralympic.org/tokyo-2020/broadcast

The Paralympic Games sports list with fun informational videos: olympics.com/tokyo-2020/en/paralympics/sports

More information on the classifications: paralympic.org/classification as well as a list of classifications by sport: olympics.com/tokyo-2020/en/paralympics/games/classification 

Media releases referenced: paralympic.org/news/joint-statement-ipc-tokyo-2020-organising-committee-tmg-and-government-japan and paralympic.org/news/ipc-explore-classification-opportunities-10-sports-tokyo-2020 

The RNZ article: rnz.co.nz/news/sport/449370/paralympics-nz-increase-safety-protocols-ahead-of-games 

Andrew Parson’s quote, published by @C4Paralympics: twitter.com/C4Paralympics/status/1393951120926597120

Join us here at That’s So Chronic on Sunday 29 August & Sunday 5 September for recap and hype episodes with special guests, and Tuesday 31 August for a special Paralympics That’s So: episode!

I would love to hear your thoughts on the Tokyo 2020 Paralympics, so please feel free to send in a VOICE NOTE over on jessbrien.com/hotline - you might just be included in an upcoming episode!

@thatssochronic | @jessssbrien | #thatssochronic

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Penny talks us through her diagnoses, why she’s passionate about supporting the work of her friends at FACS NZ (Foetal Anti-Convulsant Syndrome New Zealand), the effects of her epilepsy medication (including when PHARMAC changed it) and how she manages her conditions. 

This episode was recorded on: 2 July 2021

** Please note there are a lot of swear words in this episode, for anyone with sensitive ears! **

I’ve known Penny for a while, and although we both live in NZ I seem to only see her when I bump into her in a random corner of the world, so it was wonderful to be in the same room together and chat about everything and anything.

You can find Penny on facebook: facebook.com/hotpinkpennyashton, instagram: @penash as well as on her website: hotpink.co.nz

More information about Foetal Anti-Convulsant Syndrome NZ: facsnz.com

We mention a few other episodes in this episode including:

Hayley & Premature Menopause at 14 (Primary Ovarian Insufficiency)

Emma & Immune Thrombocytopenia (ITP)

Eddy & 3 Brain Surgeries, Epilepsy & Type 1 Diabetes   

Carlyn & Hodgkin’s Lymphoma 

@thatssochronic | @jessssbrien | #thatssochronic

Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Anu talks us through her diagnosis, she discusses the various different MS treatments she has been on - including flying to the USA to receive Ocrevus infusions before it was funded here in NZ - what MS looks like on the day to day for her, and how being diagnosed has inspired her passion for studying physiology and pharmacology.

For more information about MS Auckland head to: msakl.org.nz 

If aHSCT is something you are considering for your MS, or you’re interested in learning more, check out Rachel’s interview episode (just a couple of scrolls back!)

** This episode is dedicated to the lovely Ingrid. ** 

Ingrid was the general manager of MS Auckland, was one of my biggest cheerleaders, and is who connected Anu and I together originally. She was really excited to hear Anu on the podcast and sadly passed away a week before this episode was released. I know she would’ve loved this interview, and I hope you do too. 

As always feel free to reach out on instagram, I’m @thatssochronic. I love hearing from you all and seeing where you’re listening to the podcast, so keep the shares coming! 

@thatssochronic | @jessssbrien | #thatssochronic

Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Laura and I chat about the highs and lows of reading this book, whether it’s just that the NHS is flawed or if it’s a worldwide shit storm (spoiler: it’s a world wide shit storm), whether Laura is a midwife just for all the $$ money $$ she makes (spoiler: definitely not) and we even hear what some That’s So Chronic followers had to say after reading the book.

Read more about This Is Going To Hurt on Goodreads: ​​goodreads.com/book/show/35510008-this-is-going-to-hurt 

I borrowed Adam Kay’s book from my local library, and read it on a tablet with the Libby app: overdrive.com/apps/libby/ but you can purchase the book online, or at a local bookshop.

The This Morning interview that I reference in this episode: youtube.com/watch?v=CuP1_f8Z-xQ 

And you can find Adam over on Instagram and Twitter: @amatueradam and his website is adamkay.co.uk (if you’re in the UK and go to his live show, let me know! I’m so jealous!!)

And just a PS… read the f*cking footnotes!

Make sure you’re following @thatssochronic over on instagram for all of the latest That’s So Chronic goings on, and if you’re new around here (hi! I see you!) hit that big subscribe or follow button, and if you fancy, please leave a review.

If you want to share a thought about this episode or an upcoming episode topic, send in a voice note! jessbrien.com/hotline 

Have a suggestion, or want to be involved in the That’s So: series? Fill out this google form: forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Megan is the founder of Symjo - a symptom tracker journal - which helps record appointments, notes, medications, pain levels, and many more important chronic illness things!

In this episode Megan talks about her unusually quick diagnosis of endo, what it’s like living with a condition that has all of the symptoms of a UTI but no actual infection, the inspiration behind creating Symjo, and she leaves us with an important message that you will want to save to voice notes and pull out whenever you’re feeling down… I know I do!

For more information about Megan and Symjo, head to instagram: @mysymjo or symjo.co.uk 

And here’s the link to Megan’s Etsy shop to purchase your very own copy: etsy.com/shop/Symjo 

As always, I love seeing where you are listening to the podcast from and chatting about the topics that we discuss in each episode. You can find me on instagram @thatssochronic, I’d love to hear from you!

@thatssochronic | @jessssbrien | #thatssochronic

Want to chat even more? SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today I’m chatting to Carlyn Reed, and we are talking about her not one, not two, but five diagnoses of Hodgkin’s Lymphoma.

In this episode Carlyn talks us through her initial diagnosis back when she was just 14 years old, and the subsequent diagnoses that followed. We also discuss the various treatments she has had, including having to find $87,000 at the beginning of 2020 to fund regular infusions on the immunotherapy Keytruda, which Carlyn is currently on. We also chat about hot chips* and have a few laughs along the way!

*hot chips = fries for all of our international listeners!

If you would like more information about Keytruda, head here: medsafe.govt.nz/profs/Datasheet/k/Keytruda.pdf 

Thought I would also let you know that CHOC stands for Children’s Haematology and Oncology Centre in Christchurch

And as always, you can find That’s So Chronic on instagram @thatssochronic. I love hearing your thoughts on each episode, and seeing where you are tuning in from, so please keep reaching out!

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Karishma shares her diagnosis story - including the countless operations before anyone knew it was Crohn’s - how her time in Starship hospital has led her to be a volunteer for Radio Lollipop, her treatment journey (from feeding tubes and alternative treatments to surgeries and medications and everything in between!) and what the future holds. I also learn a bit about pageantry and how Karishma managed to get her infusions over in the UK during a university internship. 

Whether you have Crohn’s yourself or you have never heard about it before, this episode is an excellent insight into what goes on behind the scenes of a somewhat invisible illness.

For more information about IDB Passport: ibdpassport.com

The work Radio Lollipop gets up to: radiolollipop.org

And to learn about Camp Purple, run by Crohn’s and Colitis NZ: crohnsandcolitis.org.nz

Don’t forget to follow That’s So Chronic over on instagram (@thatssochronic) so you can share your thoughts and get all of the behind the scenes intel!

@thatssochronic | @jessssbrien | #thatssochronic

While I will always try to publish correct information, I am still learning, and understand that the world of medicine is constantly changing. If you want to reach out, send me a DM on Instagram @thatssochronic.

SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline. Just head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Or have an idea for an upcoming That's So: episode? Let me know here: https://forms.gle/4RZbCiHARjV5gmcWA

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode I talk about what resonated with me with my own experience of being diagnosed with MS in my twenties, how traumatic lumbar punctures are, the horrendous English boyfriend’s text message, and I get to ask Cory some questions… including whether everything in Love Sick is true or not. 

Read more about Love Sick on Goodreads: goodreads.com/book/show/27157101-love-sick

I bought Love Sick on Amazon to read on Kindle but make sure you check out a local bookstore or library in your area to #SupportLocal. 

Find Cory on Instagram and Facebook: @corymartinwrites or corymartinwrites.com 

Make sure you’re following @thatssochronic over on instagram for all of the latest That’s So Chronic goings on, and if you’re new around here (hi! I see you!) hit that big subscribe or follow button, and if you fancy, please leave a review.

If you want to share a thought about this episode or an upcoming episode topic, send in a voice note! jessbrien.com/hotline 

Have a suggestion, or want to be involved in the That’s So: series? Fill out this google form: https://forms.gle/4RZbCiHARjV5gmcWA 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Chelsea talks about being diagnosed with Hashimoto’s when she was just 9 years old, the importance of having doctors and specialists that you connect with, what happened when celiac disease entered her life, and her thoughts around being a mum with autoimmune diseases.

Like I mentioned in the episode, Chelsea’s website and instagram are super informative. You can check out her website here: chelseatheceliac.com or on instagram at @chelseatheceliac.

Chelsea also appeared on a recent episode, That's So: your superpower, so make sure you check that out wherever you listen to your podcasts.

As always, let me know what you thought of this episode! Send me a DM @thatssochronic on instagram. I also love seeing all of the unique places you find yourself listening to TSC, so make sure you tag me in those photos as well! 

If you haven’t already, make sure you’ve pressed subscribe on Apple Podcasts, follow on Spotify, and if you are enjoying TSC, please leave a review! (Only if you want to of course, but if you do I’ll love you forever!) That helps these important episodes get into more ears around the world, to hopefully spread awareness, and more importantly… hope.

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! Send me a message on the That’s So Chronic hotline! Head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

I’m talking to my friend Emma Cusdin today, and she shares her story of being diagnosed with immune thrombocytopenia (ITP) - a condition where the immune system mistakenly attacks the platelets - the year after she lost her Mum, and started a year long contract touring New Zealand performing in schools.

In this episode Emma talks us through the months of bruising that led to someone saying “hey what’s up with your legs?”,  the moment she realised she wasn’t invincible, her coping strategies, the countless blood tests around the country, and what happens when the show simply can’t go on.

Like I say in the episode, I’d love to know your thoughts on pushing through when serious health things are going on. Send me a message over on instagram, @thatssochronic

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! I’d to know how you feel about continuing to push through when serious health things are going. Send me a message on the That’s So Chronic hotline! Head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Tom talks about his anxiety and obsessions, what it’s like to be in a panic spiral, how medication and psychologists have worked for him, and even throws in a PSA about flippantly using the term OCD. 

I love hearing from you all, and seeing where you’re listening to the podcast, so tag me or message me on instagram, I’m @thatssochronic

If you enjoyed this episode with Tom, you might also enjoy the interview episodes with Joshua Phillips on OCD, and Dearna Doglione on Border Personality Disorder, which are out now and are only a scroll away!

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! If you want to share a thought about this episode or an upcoming episode topic, I’d love for you to leave a message on the That’s So Chronic hotline! Head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode we learn more about the years and years of Ren’s diagnosis journey, the difference between public and private care here in New Zealand, a special type of water that isn’t what the influencers are talking about, and how she continues to be career driven while having a chronic illness.

I also want to quickly note that towards the end of the episode we do briefly talk about suicide and mental health. 

WATCH HER TVNZ ONE INTERVIEW HERE: https://www.tvnz.co.nz/one-news/new-zealand/endometriosis-sufferer-says-public-health-system-dismissed-her-agony-17-years 

And feel free to reach out over on instagram, I’m @thatssochronic. I love hearing from you all.

Make sure you’ve pressed the big purple subscribe on Apple pods, follow on Spotify, and left a review if you’re enjoying these interviews. That really helps TSC get into more ears around the world, to hopefully spread awareness, and more importantly… hope.

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! If you want to share a thought about this episode or an upcoming episode topic, I’d love for you to leave a message on the That’s So Chronic hotline! Head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Like Gina, Chelsea also has a diagnosis of Hashimoto’s, so it was interesting to get her take on the star’s comments. In this episode we also hear your thoughts about celebs coming out as having the same condition as you, and your thoughts are varying!

Video: Beneath The Surface, Season 1, Episode 4 | Jane The Virgin Star Gina Rodriguez Opens Up About Hashimoto’s Disease And Her Superpower: https://www.self.com/video/watch/gina-rodriguez-opens-up-about-hashimoto-s-disease

Article: Gina Rodriguez on Hashimoto’s, Equal Pay, and Learning to Fight For Herself by Zahra Barnes: https://www.self.com/story/gina-rodriguez-february-2018 

For more information about Chelsea, stay tuned for her interview episode in the next few weeks, and head to @chelseatheceliac on instagram, or chelseatheceliac.com 

Make sure you’re following @thatssochronic over on instagram for all of the latest That’s So Chronic goings on, and if you’re new around here (hi! I see you!) hit that big subscribe or follow button (and gooo on, leave a review, I know you want tooo) 

If you want to share a thought about this episode or an upcoming episode topic, send in a voice note! jessbrien.com/hotline 

Have a suggestion, or want to be involved in the That’s So: series? Fill out this google form: https://forms.gle/4RZbCiHARjV5gmcWA

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode Jadwiga talks about that big ol' week where she started performing stand up after being discharged from a psychiatric hospital, the thought process that goes into performing material about mental health, her diagnoses, and we get an inside look at her upcoming Comedy Festival show titled ‘Cardigan Faget’ (it’s pronounced “fah-jay” !)

BOOK TICKETS TO CARDIGAN FAGET RIGHT THIS MINUTE! GO! https://www.comedyfestival.co.nz/find-a-show/jadwiga-green/ 

Wellington: 18 - 22 May, 7:30PM @ BATS Theatre

And follow Jadwiga on facebook: facebook.com/JadwigaWawelska and over on instagram: @jadwigawawelska

Feel free to reach out on instagram, I’m @thatssochronic. I’d love to hear from you about a moment you ended up laughing when maybe you shouldn’t have!?

And of course, just some housekeeping to get out of the way...

And if you’re new around here. Hi! Welcome! We have new episodes every Tuesday, so make sure you subscribe and follow, and if you enjoyed this episode, make sure you leave a review! That’s the quickest and easiest way to help support the pod, so that TSC can reach as many ears around the world as possible, to hopefully spread awareness and more importantly… hope. 

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! If you want to share a thought about this episode or an upcoming episode topic, I’d love for you to leave a message on the That’s So Chronic hotline! Head to jessbrien.com/hotline 

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

Today we hear from comedian and Billy T Award* Nominee Josh Davies, who is bringing his show ‘Look! I’m Blind’ to Auckland and Wellington.

* it’s the crème de la crème of NZ comedy!

In this episode Josh talks about his diagnosis of X Linked Retinoschisis, what it was like growing up with low vision, the ins and outs of screen readers, the biggest accessibility hurdles when it comes to performing stand up, and a little taster of his upcoming show.

BOOK TICKETS TO LOOK! I’M BLIND! RIGHT NOW! https://www.comedyfestival.co.nz/find-a-show/look-im-blind/ 

Wellington: 11 - 15 May, 7PM @ The Fringe Bar

Auckland: 18 - 22 May, 7PM @ Sweat Shop Brew Kitchen

Feel free to reach out on instagram, I’m @thatssochronic 

And if you’re new around here. Hi! Welcome! We have new episodes every Tuesday, so make sure you subscribe and follow, and if you enjoyed this episode, make sure you leave a review! That’s the quickest and easiest way to help support the pod, so that TSC can reach as many ears around the world as possible, to hopefully spread awareness and more importantly… hope. 

@thatssochronic | @jessssbrien | #thatssochronic

SEND IN A VOICE NOTE! If you want to share a thought about this episode or an upcoming episode topic, I’d love for you to leave a message on the That’s So Chronic hotline! Head to jessbrien.com/hotline

Want to share your story on That's So Chronic? Here's the application form: https://forms.gle/csebLkwfwAjiLApK9 

Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.

Hosted on Acast. See acast.com/privacy for more information.

In this episode we chat about my MS diagnosis while in my final year of drama school, the effect of that dx on my life and career, what happened when a neurologist found a random lesion on my brain that looked a lot like PML, and the inspiration behind starting That’s So Chronic.

Not only is Ilia an incredible psychologist and friend, but she has also just become an incredible Mum. So throughout the episode you will hear my niece Caoimhe in the background adding her thoughts to the conversation… We’re starting her young!

Want to know more about me or something we talked about in this episode? Feel free to reach out on instagram, I’m @thatssochronic 

And if you’re new around here and you enjoyed this episode, make sure you press that subscribe button on Apple Podcasts, follow on Spotify, and leave a review wherever you get your podcasts. That really helps TSC get into more ears around the world to hopefully spread awareness, and more importantly… Hope.

@thatssochronic | @jessssbrien | #thatssochronic

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